This Is MS Multiple Sclerosis Knowledge & Support Community

I've always thought that one of the main reasons the drug companies focus on treatments for RRMS is that it is the only phase of the disease in which they have any chance at all of making their outrageously expensive treatments look successful. By focusing solely on RRMS, they are dealing with peopl...

Hi there, I haven't been on the site for a while but am back researching Tysabri and after reading some of the forums, I felt it would be helpful to me to be able to look up each user's ms history. As we all know, ms varies dramatically from person to person, so every comment is relative to the indi...

Maybe they could have widened the appeal by copying those stupid tourist t-shirts, something along the lines of "I was diagnosed with MS and all I got was this lousy tracksuit"?!?

Hi JFH,

Thanks for the link to the article by Dr Fowler. I found it reassuring to know that my urologist did all the right things (measuring my post void resudual volume etc) and also good to know that there is more research going on.

Vanessa

Hi Babs, I totally relate to what you are saying! I think I read a snippet about neurotransmitters somewhere (can't remember where) but nothing substantial. Certainly sounds like a great option for people in our situation. I too will do some further research and ask my urologist about it next time I...

Hi all, Ian: thanks for the links. I will look at them later today when my little boy is at preschool and I get some uninterrupted reading time! Matt: thanks for sharing your experience. I agree that the intermittent catherisation is not as painful as it looks and it certainly gives you much more fr...

Hi Jimmy,

Thanks for that information. I will up my magnesium and potassium and see if that helps at all. I don't drink coffee or cola and I only drink decaf tea. As I said, I am managing with the Ditropan and catheter at the moment, but it would be nice not to have to use it every time!

Vanessa

Hi Lyndacarol,

Thanks for sharing your experience. I know it's not an easy thing to talk about, but you are right about everyone here being supportive and helpful. I will keep the Detrol in mind in case I need to change my current medication.

Thanks,

Vanessa

Hi there, I was just wondering if anyone has any suggestions for improving bladder dysfunction in MS? I've done a search in the forums but have only found passing references. I know it's not really something anyone likes to talk about, but it's certainly a problem for me, so I guess others are deali...

Thanks for the newbie assistance Sarah! I will have to get up to speed with the particulars of the site.

Have a great day.

Vanessa

Hi Phil,

I sent you a pm to thank you for the support, but from my end it looks like I sent the pm to myself. Did you get it? I am new to this site and not sure how everything works! It seems you are online now, so I hope you see this if not the pm!

Vanessa

Hi Sarah,

Thanks for your prompt response. I already have David's pdf file printed and ready to take to the GP and neuro. I will have a better look around at both sites and start a journal soon and I will definitely contact CureOrBust should I need some local support!

Vanessa

Hi all, First, a big thank you to everyone who contributes to thisisms and CPn Help. I am currently gathering information to convince my GP and neurologist to prescribe Dr David Wheldon's antibiotic program to treat my secondary progressive ms. Second, an extra thank you to David Wheldon and Sarah -...