Search found 104 matches

by msladyinca
Mon Oct 12, 2009 12:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 371232

Hi Ewizabeth, Fatigue is one of the side effects of Tysabri. See page 9 of the Tysabri label: < shortened url > you might want to ask your neurologist about Provigil, because it really works well to fight fatigue. I am on Provigil, plus I just completed my 39th Tysabri infusion and have been on thi...
by msladyinca
Thu Nov 20, 2008 4:13 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: new PML case
Replies: 26
Views: 7758

To lyndacarol: [/size] The length of membership here does not grant any special privileges. I never said it did... I was only commenting on the length of membership on this MS forum between Ursula and me, and I did not appreciate being labeled/implying that I am "Biogen/Élan spokesperson"...
by msladyinca
Wed Nov 19, 2008 4:20 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: new PML case
Replies: 26
Views: 7758

Ursula, [/size] So who are you? The official spokesman of Biogen Idec in every MS forum? For your information, I am a MS patient that has had MS for 32 plus years. I am 100% disabled and can no longer work. I am not an official spokesperson for any pharmaceutical company. I've been studying Tysabri...
by msladyinca
Mon Nov 17, 2008 3:42 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: new PML case
Replies: 26
Views: 7758

Harry, I still don't see where you admit you were wrong when you misstated the following: [/size] First Biogen told us that it was only MS patients who had taken combo drugs that were effected by PML after using Tysabri. Now after monotherapy with Tysabri, other health issues and distant past drug ...
by msladyinca
Sun Nov 16, 2008 4:27 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: new PML case
Replies: 26
Views: 7758

You are wrong Harry..., [/size] First Biogen told us that it was only MS patients who had taken combo drugs that were effected by PML after using Tysabri. Now after monotherapy with Tysabri, other health issues and distant past drug use are an issue Initially, Biogen reported that the two trial cas...
by msladyinca
Sat Nov 15, 2008 1:49 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: new PML case
Replies: 26
Views: 7758

Regarding the cases of PML, in a recent MS seminar - Dr. Roby, a MS specialist at Temple University Hospital - stated that ALL of the PML cases involved patients that either had other unknown health issues, or that they were previously on other strong immunosuppressant medications such as Remicade,...
by msladyinca
Wed Sep 24, 2008 1:02 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: TYSABRI(R) Demonstrates Sustained Improvement in Functional
Replies: 10
Views: 4028

Biogen are claiming that Tysabri increases the probability of achieving sustained improvement in physical disability over two years when in fact they only included people who had an EDSS score of 2.0 that really have no physical disability to start with. My feeling is that unless a person is actual...
by msladyinca
Mon Sep 22, 2008 11:41 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: TYSABRI(R) Demonstrates Sustained Improvement in Functional
Replies: 10
Views: 4028

To mjs: you said, we Aussies have had to wait for Tysabri to be made available (though given the history, perhaps not such a bad thing), but now that it is available, everybody in the country (regarless of age, income or employment status) can access the drug for $32 per month How wonderful! Thank ...
by msladyinca
Sun Sep 21, 2008 4:42 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: TYSABRI(R) Demonstrates Sustained Improvement in Functional
Replies: 10
Views: 4028

Hi again dreddk... by stating "NZ", do you mean New Zealand? And if so, is it not covered under Australia's PBS? (please forgive my ignorance regarding same). I have had MS for 32 + years and I've been on Tysabri since October 2006..., I have not had one single relapse since that time... ...
by msladyinca
Sun Sep 21, 2008 3:52 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: TYSABRI(R) Demonstrates Sustained Improvement in Functional
Replies: 10
Views: 4028

Thank you dreddk for posting this FANTASTIC news which was released on Friday, September 19, 2008 and presented at the World Congress on Treatment and Research in Multiple Sclerosis in Montreal, Canada..., I noted that part of this data which you posted here inadvertently omitted the following: &qu...
by msladyinca
Wed Aug 27, 2008 4:29 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 82952

Hi mom, No one can give you advice as to what you should do..., if you are interested in Tysabri, you should definitely discuss Tysabri with your neurologist. If you are looking for information regarding Tysabri, here are a few links for you to research this proven data: TYSABRI® Demonstrate Signif...
by msladyinca
Mon Aug 25, 2008 1:02 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Great News regarding Tysabri!
Replies: 1
Views: 2337

Great News regarding Tysabri!

Hi everyone, I haven't posted here in a while, but my MS is still stable after 24 Tysabri infusions... I have some really great news regarding Tysabri, woo hoo! Re: those who are concerned about developing PML with the use of Tysabri..., let me briefly explain what my neurologist told me about PML:...
by msladyinca
Wed May 28, 2008 11:20 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 82952

Wonderful Seeva! I'm so proud of you for sticking to your guns and being insistent upon Tysabri therapy! :D Please keep me (us) posted as to what happens when you see the new neurologist and whether or not they agree to place you on Tysabri therapy. I'm sending many prayers and hugs of support to b...
by msladyinca
Wed Apr 09, 2008 1:43 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri and progressive MS
Replies: 8
Views: 5108

Hi Marc, [/size] Rituxan can indeed be prescribed off label for MS. It is in trials for both RRMS and PPMS, but that does not disqualify its use off label for either of those two conditions. I stand corrected, as indeed it is used off label. [/size] As for the instances of PML seen in Rituxan, the ...
by msladyinca
Tue Apr 08, 2008 2:51 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri and progressive MS
Replies: 8
Views: 5108

Hi everyone, In the US, Tysabri is approved for "relapsing forms of MS". These include Relapsing/Remitting, SPMS with relapses, and Progressive Relapsing. These are all in the inflammatory stages of MS. Tysabri is not currently approved for SPMS without relapses, nor Primary Progressive M...

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