Search found 2198 matches
- Mon Jan 18, 2016 7:09 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Notes from CureIous' at Stanford
- Replies: 363
- Views: 107228
Re: Notes from CureIous' at Stanford
Well I got the emails and had to come here and check. I don't get out much so probably no whiplash in my future but has anyone else 'felt' their stents as a sore and swollen area right beneath your ear? I suppose that's location related but mine sometimes gets sore and that swollen spot is not on th...
- Mon Jan 28, 2013 8:58 am
- Forum: Introductions
- Topic: New, old member Loobie!
- Replies: 3
- Views: 1386
New, old member Loobie!
Hey all,
After a major extended hiatus, I'm back scrounging around on TIMS! Interested in the AO stuff that is the buzz here lately and actually came to a thread on here from a google search so I decided to see if I remembered my password! I hope I can get in on some good discussions.
After a major extended hiatus, I'm back scrounging around on TIMS! Interested in the AO stuff that is the buzz here lately and actually came to a thread on here from a google search so I decided to see if I remembered my password! I hope I can get in on some good discussions.
- Mon Sep 12, 2011 4:10 am
- Forum: General Discussion
- Topic: Swelling? Inflammation? Pressure in the noggin...
- Replies: 12
- Views: 3319
Re: Swelling? Inflammation? Pressure in the noggin...
I had much of the same issues. I almost 'stopped moving' as the dizziness got so bad. I'm not trumpeting this at all but the CCSVI procedure took MOST of it away for me. Now I can push myself a lot more in terms of exercise without getting what I used to call "full head". However, it doesn...
- Fri Aug 12, 2011 5:56 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Massive study disputes Zamboni theory of multiple sclerosis
- Replies: 63
- Views: 11699
One thing that is OBVIOUS to me, based on the mixed bag of results people have after getting the veins opened up, is that there is much more to be done. I think the fight is really all about down which road do we go? I mean sure the genetic component, and the venous, and the immune all undoubtedly p...
- Tue Aug 02, 2011 11:25 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: sweating in MS
- Replies: 19
- Views: 6058
Before the procedure, and when I was still capable of running, I sweat like a pig. I would get a 1/4 mile in and my shirt would be drenched. Likewise when I was simply hot out, I would also start dripping from my nose straight away. That went away to a point when I started 'getting bad'. After the p...
- Thu Jul 28, 2011 1:29 pm
- Forum: General Discussion
- Topic: Aimspro bladder dysfunction in SPMS study completes
- Replies: 10
- Views: 3317
- Thu Jul 28, 2011 6:56 am
- Forum: General Discussion
- Topic: Aimspro bladder dysfunction in SPMS study completes
- Replies: 10
- Views: 3317
- Thu Jul 28, 2011 6:55 am
- Forum: General Discussion
- Topic: Nerve Stimulation Technique for Bladder Symptoms
- Replies: 14
- Views: 4526
- Thu Jul 28, 2011 6:51 am
- Forum: General Discussion
- Topic: Biogen, Bayer MS drugs aren't cost effective, study says
- Replies: 4
- Views: 2123
The drugs simply don't work. The primary endpoint of the trials was statistical relevance of less lesion load after a short period of time. So that's all they had to meet. There was not one endpoint that had to do with disease progression so this drug wasn't even designed to deal with that. Since an...
- Thu Jul 14, 2011 11:59 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Heat Intolerance?
- Replies: 46
- Views: 9608
We'll never know, until it's studied and CCSVI is perfected (let's hope it gets there) if CCSVI is the culprit. I myself don't think so. I know that everyone's central nervous system functions at a lower level in the heat. Think about how heat would zap you even when you were healthy. I mean when I ...
- Thu Jul 14, 2011 11:51 am
- Forum: General Discussion
- Topic: Another study showing that exercise not bad for MS
- Replies: 7
- Views: 2641
- Thu Jul 14, 2011 11:48 am
- Forum: General Discussion
- Topic: Do you sweat in heat or not
- Replies: 6
- Views: 1709
- Mon Jul 11, 2011 9:19 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Montel's announcement
- Replies: 228
- Views: 50460
I'll tell you Dake gets some bad press for the stuff that has happened with stents. All I know is when I saw Siskin, he said he had never seen such open, flowing stents and I saw him basically 2 years post procedure. Vive la stents I say! Plus, he's developing some new ones. I'm a fan of them but to...
- Mon Jul 11, 2011 9:12 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Here's an interesting kettle of fish.
- Replies: 10
- Views: 2698
- Mon Jul 11, 2011 8:58 am
- Forum: General Discussion
- Topic: Another study showing that exercise not bad for MS
- Replies: 7
- Views: 2641
since i started going on my exercise bike, i fell overall better. just dont push yourself too much. There's the rub for me. For me at least, there is a DEFINITE correlation between exercising and feeling good. I get sometimes in that conundrum of not even being able to exercise as I can't exert the...