This Is MS Multiple Sclerosis Knowledge & Support Community

Hi! I have been reading about the new MS medicine developed in Iran by the name of MS Nut (nutrition). It is available in syrup form and it is made from natural plants. They say it has CURED 65 out of 100 people it was tested on. They are getting more and more people in Iran with MS because they are...

My husband started taking Tecfidera about 3weeks ago. He did great on the 120 mg 2x per day but midway into the 2nd week on the 240 mg 2x per day, he got very weak, had a fever, heart rate and pulse were elevated. Ended up having the EMTs come and take him to the hospital. Took him off the Tecfidera...

Anyone have the flu and ended up with swollen lymph nodes in chest? Pulmonologist said it could be infection or something more serious.

My husband was just in the hospital for severe flu. While he was in there he had a ct scan and it came back with swollen lymph nodes in his chest. Could the flu have done that? He is now in rehab but we have been advised to have him have a biopsy on the lymph nodes. Any suggestions from anyone??

My husband had low dose cytoxan a week and a half ago. Every eight hours with steroids. He has SPMS. He was in the hospital for 3 days. He did well the day after he came home. Then it went downhill. Weakness - lots of weakness. Plus his trigeminal neuralgia came back. I ave been home with him the pa...

Thanks! As soon as we can get him out of the VA, I will try going there. Just don't know what to do.

Please help. My hustband is the VA hospital because of severe trigeminal neuralgia. They are treating him with anticonvulsants. He does not do well on these. He is very weak. I would like them to do IV steroids. They don't seem to want to. Can someone recommend a neurologist that specializes in MS i...

Thanks, Harry!

It's my fiance who has the MS and Trigeminal Neuralgia. His neuro put him on Gabapentin but after taking it 2 days, he got rubber legs and fell. Was not good! The neuralgia did stop for awhile - but it's back with a vengeance!

Thanks again.

Marlene

Does anyone out there have trigeminal neuralgia?? What are your treatments for it??

Thanks!

Hi, it's Marlene. My boyfriend, Scott, was taking LDN last year. Did pretty well. He stopped because of insurance reasons. He wants to start again but we can't get in touch with Dr. Edwin Miller. Can anyone tell us if he's still in practice???

Thanks.

Thanks for your input. He will be talking to his neurologist this morning and will ask him then.

I'm glad that Avonex is working well for you? How often do you inject?

Marlene

My boyfriend Scott's neurologist recommends that he go on Novantrone. He has been on Betaseron in the past but had bad injection site reactions. Would he be better off on Novantrone? I hear it's pretty risky.

Has anyone heard of the Hughes Syndrome that supposedly mimics MS symptoms??

My boyfriend is on 6 mg of LDN - probably for the last 3 months. Does anyone else take this dosage?

Thanks.

Marlene

My apologies to Brownsfan and Sharon! I was not able to get back in - pretty new to forusm please forgive me. Thanks for all your help.