This Is MS Multiple Sclerosis Knowledge & Support Community

Marie, That sounds very different from what I get. This is more like Charlie Horses, but in various muscles, mainly in my legs and feet. You're correct, I've thought tetany too, because I get that kind of feeling, like all the muscles are really tight all over my body, and sometimes it even causes t...

Marie, Mine have gotten so bad that I could barely move without a huge cramp, so painful I could barely stand it, and then painful for two days after. (Not as bad as the cramp itself, thank goodness. But, those cramps last about 20 minutes!) And, any muscle in my legs or feet will get them. I didn't...

Marie, You mentioned horrible spasms. I've found that different people mean different things when they use the word spasms. Do you mean muscle twitches, or do you mean excruciatingly painful muscle cramps? I have the muscle cramps and not much of anything is really stopping them. It would be interes...

Sarah,
I just tried a search, and it doesn't look like it's the best search engine in the world, so I think your idea will be better.
Thanks,
Carol

Thanks Merlin, Don't know if that's your name or just your screen name, but I like it either way. I had a cousin who I loved with that name and I've always liked the King Arthur stories with Merlin the wizard. (In fact, I used to avidly read all of them I could get my hands on....but there aren't th...

Sarah, I hadn't planned to stay here, and I can see you'd rather I didn't. I just noticed the boards existence and that there were people here treating with antibiotics, and decided to see if I could get some input about peoples' experiences with Herx reactions, since I hope to start ABX soon. I tho...

Sarah, As I said, I have Lyme disease, and I also have VERY high levels of 1,25 Dihydroxy vitamin D levels. I believe I have a different disease process going on than you. Sure, you may be fine with 4,000 IU D a day. And, if your bones are fine, you probably don't have high levels of 1,25 D, but I d...

Sarah, Actually, I feel that Dr. Marshall has more credentials than anyone who has developed any medical protocol I've seen. And, in fact, that's one of the reasons he got my attention. You are correc t in saying he's not a medical doctor. He's a researcher of molecular medicine with a Phd and has b...

Thank you Wiggy, that was very helpful. I keep forgetting that I can always take smaller doses, and in fact, the MP starts with small doses. I've never been sick enough to require help yet, so I guess that's another reason I'm worried about it. My kids are grown, so at least I don't have small child...

Cyprine, It's just that I've read things about people not being able to get out of bed etc., and I live alone,so that kind of herx would be a big problem with no care giver. I guess there is no way to know untl it's done, and that's what's scary. I just thought maybe I could get some kind of feel fo...

I am pursuing the idea of antibiotic therapy. I was diagnosed with MS in 1997, and then had a positive Lyme Disease test a couple of years ago, through Igenex Labs. (Was negative with the usual tests prior to that.) I have taken antibiotics for infections in the past and never noticed anything I tho...