Search found 85 matches
- Thu Aug 19, 2010 8:32 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225130
There is a factor, I believe, that is also taken into account when you get your call back for your scheduling date. Not sure about this just speculating. The scheduler did explain to me that once your insurance is approved then they call you with an available appointment date. She told me this somet...
- Wed Aug 11, 2010 12:26 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225130
I received a call from Albany today and was scheduled for the procedure. I will have the procedure at the hospital because I have insurance. I have Medicare so I was immediately approved for the procedure. Here is my time line. Hope this helps: First call to Albany was on May 28th. First call back f...
- Thu Jul 08, 2010 5:39 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment available in the U.S.!
- Replies: 859
- Views: 225130
- Fri Nov 27, 2009 5:01 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: News from Rici, a polish patient being operated
- Replies: 105
- Views: 36244
- Fri Oct 09, 2009 6:58 am
- Forum: General Discussion
- Topic: a.
- Replies: 2
- Views: 1665
- Fri Oct 09, 2009 6:13 am
- Forum: General Discussion
- Topic: a.
- Replies: 2
- Views: 1665
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- Thu Oct 08, 2009 8:35 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: a.
- Replies: 1
- Views: 1727
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- Sat Aug 29, 2009 7:09 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Schedule of Post HiCy Follow Up Appointments...
- Replies: 3
- Views: 12871
My Neuro here in Alabama orders all my tests and he does my labs, EDSS and MSFC at his office then they fax all the results to Dr. Kerr's office. My Neuro keeps a seperate J.H. file for me. I just sent Dr. Hammond all my MRI images for this past year for them to evaluate. The last time I went to J.H...
- Thu Aug 20, 2009 6:19 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Schedule of Post HiCy Follow Up Appointments...
- Replies: 3
- Views: 12871
Hey Steve, This is the schedule of followup appointments they gave me from J.H. Hope all is well. Chris S. HiCy – Schedule of required follow-up tests A. Blood and Urine Tests - Months 1 to 6 (inclusive) then Months 9, 12, 15, 18, 21 and 24 1. Heme 8 2. PT and PTT 3. Complete Metabolic Panel 4. Urin...
- Fri Jun 26, 2009 4:15 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Hi-Cy - where and how much?
- Replies: 7
- Views: 15391
- Sun May 24, 2009 4:07 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Hi-Cy - where and how much?
- Replies: 7
- Views: 15391
- Fri May 15, 2009 8:24 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: IPOP/HIPOP Post-chemo update
- Replies: 2
- Views: 3331
Hey Kari, It was 4 days post HiCy before they gave me the growth factor. I was -0 WBC a week after HiCy. when your numbers bottom out you will be the weakest you ever felt. If you remember I had to be readmited to JH because of the fever and there was no way I was going to make it back and forth to ...
- Fri May 08, 2009 8:38 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Baltimore in May?
- Replies: 26
- Views: 9762
I was told by the Doctors at JH that the HiCy (High dose Cytoxan) wipes out everything but the underlying immune system stem cells. That's how they do the reboot. The HiCy (High dose Cytoxan) wipes out your entire immune system then they give you a growth factor drug which makes your bone morrow gro...
- Fri May 08, 2009 7:29 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Day 1
- Replies: 6
- Views: 3577
- Tue May 05, 2009 6:12 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Baltimore in May?
- Replies: 26
- Views: 9762