Search found 19 matches

by namedbos
Mon May 07, 2007 1:50 pm
Forum: Introductions
Topic: Hi I'm new from the UK
Replies: 2
Views: 2224

Hi Isabel Welcome

Isabel welcome I think you have come to the right plcae for information. I have found more information here than my neurologist would give me. Hang in there .. hopefully a cure would come by. in the meantime weigh in your options and decide on what works for you. There are also some trials underway ...
by namedbos
Mon May 07, 2007 1:41 pm
Forum: Introductions
Topic: Hi from Sanjay in Toronto
Replies: 11
Views: 3865

Hi Sanjay: Welcome to this site you will find good information here. I can see you seem to also be from India like me. I was diagnosed a few years back and am now thinking of going on medication. When you mention your first episode what excatly was it. I had muscle weakness in my thigh three years b...
by namedbos
Sun Mar 11, 2007 2:37 pm
Forum: Aimspro
Topic: Alternative to LDN
Replies: 2
Views: 8725

agree with exercise affect

I am not on any drugs eventhough I have been diagnosed , just stated exercising more regularyly and have found immediate benefits. So i agree with this theory that exercise really helps
by namedbos
Fri Dec 15, 2006 11:40 am
Forum: Introductions
Topic: Bigdave
Replies: 11
Views: 3682

Welcome Dave

This is a very good site and the best I have seen so far on the subject as well. I am sure you will find good information here to help with treatment options.
by namedbos
Thu Dec 14, 2006 7:21 am
Forum: Drug Pipeline
Topic: FTY720
Replies: 72
Views: 22930

Fingolimod

I am new to this forum and have also been considering Fingolimod trial. I saw that one of the side effects was on the heart rythmn and blood pressure for the folks already on trial have there been any changes in that that you have noticed compared to the situation before. I have not been on any medi...
by namedbos
Tue Dec 05, 2006 1:14 pm
Forum: Introductions
Topic: Hello.
Replies: 5
Views: 2775

welcome

I am pretty new here myself. Looks like this is a great forum.
by namedbos
Tue Dec 05, 2006 11:03 am
Forum: Introductions
Topic: Waiting for Right therapy
Replies: 31
Views: 8932

question

Thanks Bob for posting the new information, the parts i read were interesting although I cannot say i understood all the content in the first quick pass, so have to go back to it. I do have a question , i have heard multiple times about this MS attack and eventhough I have lescions on the MRI I have...
by namedbos
Mon Dec 04, 2006 3:00 pm
Forum: Introductions
Topic: Waiting for Right therapy
Replies: 31
Views: 8932

This would help

I would support starting such a topic. I think it would also help bring to the fore front some myths and possibly new symptoms of the disease. I think such an open discussion would be helpful.
by namedbos
Mon Dec 04, 2006 2:46 pm
Forum: Introductions
Topic: Waiting for Right therapy
Replies: 31
Views: 8932

Clarification

I think a few important points have been missed here about MS in the underdeveloped or developing countries. I am not convinced that the cases in the prosperour areas are on the rise. I am still in good contact wit folks back home and have not had any such impression. Heart disease may be another st...
by namedbos
Mon Dec 04, 2006 10:35 am
Forum: Introductions
Topic: Waiting for Right therapy
Replies: 31
Views: 8932

Heat and cold

I have no problems with Heat . Cold of course is another matter , my body does not seem to like the levels below freezing at all. I have shivers often as well. Has there been any cases where someone's symptoms have improved after moving to warmer weather.
by namedbos
Mon Dec 04, 2006 8:11 am
Forum: Introductions
Topic: Newly diagnosed
Replies: 6
Views: 3768

right place

Dani: Sorry to hear about you. I am in a similar situation but have not got a spinal tap done as neuro is pretty sure that I have MS. My Neuro. said that the bands in Spinal tap are not always indicative of MS but in my case they are pretty sure from the MRI and my exam that thats what i have. I am ...
by namedbos
Mon Dec 04, 2006 6:09 am
Forum: Introductions
Topic: Waiting for Right therapy
Replies: 31
Views: 8932

Answers

To answer the questions. I come from a fairly developed part of India in the capital . Delhi. So we had all modern amenities from early childhood. Although i would say that diseases such as Malaria etc. & Viral Fever were common while growing up compared to US. The things that we were not that c...
by namedbos
Sun Dec 03, 2006 11:28 am
Forum: Natural Approach
Topic: Anyone with any experience with Glyconutrients?
Replies: 6
Views: 4528

Glyconutrients

I tried the Ambrotose complex myself but it did not do anything for me, good or bad. It sounded great on theory but no benefit to me personally but I guess everyone reacts differently.
by namedbos
Sun Dec 03, 2006 10:37 am
Forum: Introductions
Topic: Waiting for Right therapy
Replies: 31
Views: 8932

follow-up

Houdini : I did ask the neuro about the Spinal Tap and he said it is not needed that they are fairly sure I have MS. They further said that "A spinal tap at this point is unnecessary. We believe you have MS. If the spinal tap was negative it would not change our thinking. If it showed oligoclon...
by namedbos
Sun Dec 03, 2006 4:54 am
Forum: Introductions
Topic: Waiting for Right therapy
Replies: 31
Views: 8932

Statins

I am going to ask my Primary care doc. about gettings statins to get started on those . This is a new perspective and information for me. I am not sure how these will help with MS symptims in addition to lowering the cholestorol but I will look that up. The other changes I have planned are more regu...

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