Search found 21 matches

by stathis
Sun Jul 17, 2011 2:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 345644

CCSVI TRACKING MS HISTORY Male/Female: M Age: 32 Date(s) & type of neurological diagnosis: 2004 with RRMS MS treatments: Betaferon (2 years), Tysabri (5 months), Copaxone (1.5 years). Currently no treatment MS symptoms before stenosis intervention: Vertigo, fatigue, brainfog, intense headaches,...
by stathis
Sun Jul 17, 2011 1:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Tinnitus part two
Replies: 7
Views: 2537

Mine is always there. It however lowers in intensity during the day due to the noise coming from external sources. However, when I lie down during the night it comes to play... especially at the right side. I was treated for CCSVI, had blocked left jugular vein, balooned it and its impact on the lef...
by stathis
Wed Jun 18, 2008 11:50 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Allergic reactions
Replies: 10
Views: 11028

hello deege, yes I had one more infusion on the 20th of April ,and yes unfortunately a had a severe reaction building up 1 WEEK after the infusion. I was three days bound to my bed, and luckily the reaction died of slowly leaving me with a weird head and ear tightness and severe tinnitus .... which ...
by stathis
Fri May 09, 2008 7:53 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Efficacy of Disease-Modifying Therapies Review Study
Replies: 20
Views: 9129

It is in the nature of the drug Tysabri to be more efficient in fighting immune diseases such as MS and Crohn's either you like it either you dont. However due to it being more powerful in altering the immune system, that is why it is more dangerous than the other drugs. While on Tysabri, the infect...
by stathis
Tue May 06, 2008 4:09 am
Forum: Stem Cells
Topic: Programmable Stem Cells?
Replies: 1
Views: 2470

Programmable Stem Cells?

Found an interesting article about UCLA Researchers that created Programmable Stem Cells.

Worth a look at:
http://www.dailytech.com/UCLA+Researche ... e11688.htm
by stathis
Mon May 05, 2008 11:49 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: tysabri worsening MS?
Replies: 25
Views: 10961

Since March (after my third dose), I have been reacting very bad to Tysabri, 1 week after infusions. All of a sudden buzzing noises come from my head, I feel dead tired for a few days straight. Fortunately there has been no progression of my neurological disease, unfortunately there are a few proble...
by stathis
Thu Mar 27, 2008 1:17 pm
Forum: General Discussion
Topic: Rite of passage
Replies: 6
Views: 2814

Have had five IV solumedrol sessions, five days IV with oral tampering for about 2-3 weeks to let the body get back to normal. Salt in your food should best be avoided, that is if you do mind becoming like a baloon... As for sugar, best avoid that as well, so your blood doesnt raise its sugar levels...
by stathis
Sat Mar 08, 2008 1:40 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Allergic reactions
Replies: 10
Views: 11028

Well, hello to everyone again, just had my fourth infusion two days ago 06/03, and I asked for something prior to treat a future allergic reaction such as Benadryl etc, but my doc replied it aint useful cause I aint having a reaction.... Well, as the first drop of Tysabri entered my blood, i immedia...
by stathis
Mon Feb 11, 2008 5:30 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri May Be linked to Melanoma
Replies: 16
Views: 8739

It is more than obvious that Tysabri in one way or another does dampen a humans body's defense outside of the brain and spinal cord in order to preserve the wellness of the neurological tissue from inflammations (attacks). Therefore, unfortunately for all us who take Tysabri, we must be extra carefu...
by stathis
Mon Feb 11, 2008 5:04 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Allergic reactions
Replies: 10
Views: 11028

I think all your points are clear and very well understood, somewhere in your post lies the truth about what happened during my infusion. I am not taking any Bendryl before the infusion, but I dont understand why you started it, was it because you had a mild reaction like mine before? or did you tak...
by stathis
Fri Feb 08, 2008 11:36 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Allergic reactions
Replies: 10
Views: 11028

(since no reply has been placed) Ohh now I remembered what happened ... I suddenly felt mentally abit weird, because I had a hangover from yesterdays cousins batchler part at the blue Oyster bar, and my face and hands became white, because I saw a two ton nurse with a moustache coming to put me the ...
by stathis
Wed Feb 06, 2008 11:46 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Allergic reactions
Replies: 10
Views: 11028

Allergic reactions

Hello to everyone, I am very much aware that this maybe the best forum around the world for MS, so this is the place to place my ...... question regarding my third infusion of Tysabri here in Greece. It started off neat, talking to my fellow Tysabri friends in the hospital chatting about stuff, howe...
by stathis
Wed Dec 05, 2007 9:30 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri Infusion updates...
Replies: 7
Views: 6965

Hi everyone..., I hope that all is well. If anyone is interested, I had my 15th Tysabri infusion yesterday, Friday the 30th. Hello, nice to hear how much of a difference a new medicine can make to our lifes, well 15th for you msladyinca ........ 1st for me. Yes got my first Tysabri infusion today a...
by stathis
Tue Jan 23, 2007 3:41 pm
Forum: Betaseron
Topic: severe acne
Replies: 6
Views: 11374

Have been taking antibiotics for the acne (vibramicyn ..) and it clears the b#$@#@ completely of my face, however once I stop it there we go again. :oops: I am doing quite well on Betaseron hopefully it aint from that, thanks anyway for your prompt replies, I will do a dermo check (takes time though...
by stathis
Mon Jan 22, 2007 4:20 pm
Forum: Betaseron
Topic: severe acne
Replies: 6
Views: 11374

severe acne

Hello everyone, I have been having a rather weird problem with my face, posting here just to see if anyone is experiencing the same problems. I have been taking Betaseron for 2 years know, no problems at all with the medication in terms of sickness and fever problem, however for at least a year now ...

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