This Is MS Multiple Sclerosis Knowledge & Support Community

Cheer, obviously I can hardly thank you enough for you commitment in pursuing CCSVI and sharing your insight with the TIMS community. Sharing our experiences (good and bad) throughout the internet is a very powerful and important task - imo. one of the way an MS-patient can really have an impact. Al...

I'm very happy I can report one definite improvement: Usually after about 20-30 minutes of walking my right foot was always dropping to the front and toppeling to the outside. This has always been obvious to me and people who were walking together with me. The toppeling to the outside afflicted me s...

Regulators mainly took issue with cases of lymphopenia, a lack of a certain type of white blood cells, and with the risk of cancer

http://www.finanznachrichten.de/18052569

--Frank

I'm afraid that one always has to keep in mind that MS does leave a substantial structural damage in the CNS. There should be no doubt that the myelin- and axonal damage as well as grey matter damage and overall brain atrophy is real. And these kinds of structural loss will imo. most likely not be r...

Thanks for posting your Question to Dr. S. In Frankfurt they are doing the MRV according to the Haacke protocol so considering MRV I guess they did what is possible. I didnt ask Prof Vogl if he could use IVUS - did anyone else ask him? I do see that there might be some open possibilities for finding...

Hi Thekla, I do think that the Doppler could give some useful insight and might be especially valuable for the follow-up as a baseline comparison. But when it comes to finding disturbances in blood flow (whatsoever) I am pretty much confident that there is no better tool than the venography. --Frank

Yesterday I have been to Frankfurt for my Doppler and venography/angioplasty. The Doppler didnt happen altogether because Dr. Meyn had to do a surgery and I didnt manage to reach him throughout the day. My surgery then went ok, actually I think it was somewhat painful. They gave some medication (I t...

Dear Dr. Sclafani, I had my CCSVI examination (only MRV) appointment with Prof. Vogl. According to the findings I have collateral networks on both sides. My rIJV shows some stenosis about 20%. My lIJV is hypoplastic (about 3-4mm diameter). Some retrograd flow has been detected. Prof Vogl told me he ...

Hi Frodo,

I was in Frankfurt on the 07.Sept and received the letter yesterday.
My Doppler hasnt been done yet - it is planed to happen two hours ahead of surgery...

--Frank

I received the doctors (Prof Vogl) examination findings letter today. Two things I found to be particularly promising, it says: - Reduced flow in the left IJV AND partially retrograde flow (which is, what CCSVI is mostly about). - Pronounced collateral networks right and left over paravertebrale vei...

I'm not really sure about that, but I heard MRV is 1.200 EUR and the Doppler would be around 200 EUR.

--Frank

I got my Doppler appointment now, it will be done 2 hours ahead of surgery...

--Frank

As Prof Vogl told me yesterday he would endorse a venography/angioplasty only from the MRV findings and because "time is brain" I sent an email to him today asking about an appointment for venography/angioplasty ahead of the Doppler exam. I will have venography/angioplasty on 21.09.2010 (s...

Regarding the hypoplasia, I was diagnosed with a hypoplastic left IJV (sorry I dont know the exact diameter) but Prof Vogl said, that it would be possible to dilate it with the usual ballooning procedure...

--Frank

I have been to Frankfurt (Prof Vogl) today to get my CCSVI examination done. I only had MRV (Haacke protocol) as Dr. Meyn (the one doing the Doppler) is attending a conference this week. First, and most important, my results indicate issues on both Jugulars so I qualify for venography/angioplasty :D...