Search found 89 matches
- Wed Feb 07, 2018 11:03 am
- Forum: General Discussion
- Topic: 20 year old treatment
- Replies: 16
- Views: 5448
Re: 20 year old treatment
I was diagnosed at 25. I did a year on avonex, which was terrible so I stopped. Tried copaxone for a year when I was 28 following my only post diagnosis relapse. Otherwise I’ve managed my disease with diet and excercise. I’m 39 now and EDSS score is 1 (some sensory issues and slight deficiency in my...
- Wed Aug 03, 2016 4:51 am
- Forum: General Discussion
- Topic: Numb hands
- Replies: 2
- Views: 1018
Re: Numb hands
An acute relapse affecting my cervical spine in 2008 left me with numb hands. Took about a year to get back about 95%. The hand exercisers in the link below worked wonders. I still use regularly. Best of luck.
http://prohands.net/medical.php
http://prohands.net/medical.php
- Sun Jun 05, 2016 12:57 pm
- Forum: General Discussion
- Topic: Chronic pain
- Replies: 3
- Views: 1268
Re: Chronic pain
Weed works wonders.
- Sat Apr 30, 2016 1:38 pm
- Forum: General Discussion
- Topic: Childhood Trauma
- Replies: 3
- Views: 1607
Childhood Trauma
After reading ideas suggesting childhood trauma contributes to the development of MS, I'm curious to see how many of us qualify.
My mother died from cancer when I was 11. Anyone else fit in this unfortunate criteria?
My mother died from cancer when I was 11. Anyone else fit in this unfortunate criteria?
- Wed Mar 11, 2015 5:12 am
- Forum: General Discussion
- Topic: Requesting accommodations at work
- Replies: 5
- Views: 1734
Re: Requesting accommodations at work
I work in Healthcare IT, so I can do 99% of my job remotely. They were aware of my condition years before this change was made and all of my reviews were excellent so there wasn't any issue.
- Tue Mar 10, 2015 7:51 am
- Forum: General Discussion
- Topic: Requesting accommodations at work
- Replies: 5
- Views: 1734
Re: Requesting accommodations at work
I telecommute on Fridays; it had helped tremendously. If you are in US, we are protected under Americans w Disabilty act, which mandates "reasonable accommodations." So long as you've been employed at your current job at least 6 months, it's worth investigating. Best of luck.
- Fri Feb 27, 2015 12:14 pm
- Forum: General Discussion
- Topic: No Meds
- Replies: 6
- Views: 1929
Re: No Meds
I've been off meds 8/10 years post diagnosis (including last 5 yrs). Did a year on Avonex following my first acute attack and a year on Copaxone following my second acute attack. I have not had a relapse in past five years (though a recent MRI showed 2 new brain legions). My EDSS is a 1. I am a firm...
- Thu Nov 20, 2014 4:59 pm
- Forum: General Discussion
- Topic: impotence
- Replies: 16
- Views: 2968
Re: impotence
Jimmy legs, I take 50mg zinc 4-5 days a week, and eat red meat once a week. Haven't had my levels checked in months, but they are usually in the normal to high range (though I know their high isn't necesarily that high). Both of my acute relapses were centered in my cervical spine.
- Thu Nov 20, 2014 1:15 pm
- Forum: General Discussion
- Topic: impotence
- Replies: 16
- Views: 2968
Re: impotence
Fellow 35 yr old male here. Unfortunately I've struggled w same issue (particularly following my 2nd acute attack at 30). Since then I've gotten my body in fairly good shape by lifting weights and jogging. I also eat a strict diet and supplement w Vit d, fish oil, magnesium, zinc and curcurmin. On t...
- Wed May 28, 2014 9:36 am
- Forum: General Discussion
- Topic: hoping to get function back
- Replies: 16
- Views: 3018
Re: hoping to get function back
My second acute attack left me with disability in my hands. These exercisers have helped me tremendously... FYI - I am not affiliated with this company; I don't get any $$$ out of this. Best of luck.
http://prohands.net/
http://prohands.net/
- Tue Oct 29, 2013 9:46 am
- Forum: General Discussion
- Topic: Hand problems and tendonitis
- Replies: 3
- Views: 3840
Re: Hand problems and tendonitis
I had hand weakness/sensory issues following an acute attack about four years ago. The link below (I don't make any money off this) is for hand exercisers that worked wonders for me. Overall, I've found working out to be my best treatment plan. Best of luck.
http://www.prohands.net/products/
http://www.prohands.net/products/
- Tue Oct 22, 2013 7:10 am
- Forum: General Discussion
- Topic: Can I stop taking Avonex injections?
- Replies: 4
- Views: 2000
Re: Can I stop taking Avonex injections?
I stopped Avonex after a year (side effects were awful). I've been diagnosed 9 years and have not take drugs (aside from 2 methylpredisone infusions following an acute relapse) and have and EDSS of 1. From my experience, diet and exercise is the only treatment plan to yield positive results. Best of...
- Tue Jun 04, 2013 10:06 am
- Forum: General Discussion
- Topic: Interesting article regarding legion repair
- Replies: 0
- Views: 1196
Interesting article regarding legion repair
Is specific to the bs mouse version of MS, but worth a read nonetheless.
http://www.medicalnewstoday.com/releases/261341.php
http://www.medicalnewstoday.com/releases/261341.php
- Tue May 07, 2013 6:19 am
- Forum: General Discussion
- Topic: Multiple Sclerosis more common in black women than white
- Replies: 1
- Views: 1464
Re: Multiple Sclerosis more common in black women than white
Not sure what to believe about odds with this disease. Article also say Hispanics are less likely to be diagnosed. Read other studies that December birthdays also decrease likelihood. Well I'm hispanic, born on Christmas Eve. Would much rather beat the odds when it comes to Powerball. Ugh. Okay, I'm...
- Wed Apr 24, 2013 5:31 am
- Forum: General Discussion
- Topic: steriods
- Replies: 2
- Views: 1412
Re: steriods
Avoid salt and increase potassium intake (banana, avocado) to lessen water retension. Limit sugar (especially processed foods, white bread/rice) as much as possible, and combine with all meals with a healthy fat (unsalted walnuts, almonds, pistachios) to lower glycemic index. Drink lots of water. Go...