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I was diagnosed in November 2006. I have been on Tysabri since June of 2007. I just tested positive for the JC virus very recently after refusing to be tested. I have no plans to go off the drug at this time. I hadn't had any symptoms since January of 2008, although now I am experience some left sid...

No to one up you, but my Tysabri cost is $9559.45 with an infusion fee (charges for actual infusion) of $659.00. My total monthly bill is $10,218.45. I have a good insurance plan, so overall for a year of treatments, MRI's and Doctors visits (of all kind...) I pay a $2500 deductible. Understandably ...

Just some background. Diagnosed Nov 06, sensory issues, on copaxone Nov 06 to May 07. Second MRI in May showed that some of my leisons had cleared, but just as many had appeared. Although I had no disability I had over 25 enhancing/active leisons, which was of concern to the Specialist, in an - its ...

Had my second infusion on the 11th. Went off without a hitch. My only side effect is a headache about an hour after the infusion which can be treated with Tylenol. The next day I don't even have a trace of a headache. Of course I am exhausted as well, but I can't decide if it is the drug, MS fatigue...

Just my experience, but after 6 months on Copaxone (the only drug I have taken) I have started Tysabri at the urging of my MS Specialist.

I am strangely not all that concerned about PML (which is crazy for me, because I am a worry wart). I hadn't taken anything but Copaxone, and they were more concerned about the interferon/Tysabri mixture.... I am open to all treatment options - conventional or not. I count myself lucky every day tha...

I don't know that the Drug will change my MRI, but I was diagnosed early, and have luckily not suffered a severe attack. It just seems to me that I should be doing something to try to treat the disease, because I know I have it, and don't have any symptoms at the moment. I guess what I was trying to...

So - I had my first infusion yesterday. I did not have an adverse reaction to the actual infusion or the medication this time out. I did get a headache of epic proportion about 3 hours after the infusion was complete, but some Tylenol PM cleared that up and let me sleep. We'll see what happens next ...

I had Lasik before I new I had MS. I was near-sighted before the surgery and had perfect vision after, this lasted for 5 years. I was diagnosed with MS in Nov 06, but felt my vision getting slightly worse before then. Now I need a prescription for distance, but only really need it for night vision o...

I finally got to see a Specialist (only a 4 month wait) and she was great. After viewing my MRI (I had over 25 leisions in my brain area), she was concerned that I was being treated solely with Copaxone (on for approx 6 months), and immediately ordered another MRI. Good news - some of the leisions w...

I thought it was strange to go on steroids as well, considering right now I have no symptoms, but I think the active leisions have her concerned. I was happy to hear her order the second MRI which will come about 6 months after I started on Copaxone (I'm secretly hoping its working because the only ...

Thanks for your reply - I misspoke she said "oral immunosupressent" not inhibitor (I'm glad I brought a pad and pen).....

Yesterday I had my first appointment with an MS Specialist. The neurologist I was originally sent to was less than knowledgeable about MS, so it was necessary. The original neurologist (11/06) suggested Copaxone, and a possible MRI in a year. Her opinion of steriods was that I shouldn't take them un...

Thank you for all of your replies. These are things I haven't even thought about.....

The day is finally approaching when I will have an appointment with an actual MS Specialist. I have my Medical records, my MRI films, my log of symptoms, and meds. I have many questions (most of which you all have answered either to me directly or to others on the forum - thanks...), but what should...