Search found 58 matches
- Sat Apr 25, 2009 2:55 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: 6th PML Case?
- Replies: 13
- Views: 4266
Touch program says how Tysabri must be prescribed Tygris program observes how Tysabri patients react (from R'uter and Tysabri websites) TYSABRI is available only through the TOUCH Prescribing Program, which stands for TYSABRI Outreach: Unified Commitment to Health. TOUCH is a restricted distribution...
- Thu Apr 23, 2009 1:02 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: 6th PML Case?
- Replies: 13
- Views: 4266
European taking TYsabri + long term steroid therapy. This seems quiete strange. Here in France i've have been under Tysabri for nearly two years and heard about Tysabri added to Prednisolone only in case of relapse. The effect of long term steroid therapy is harmful. As well in UK(where i lived for ...
- Fri Mar 06, 2009 2:08 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: 95% sure i'm choosing Tysabri
- Replies: 14
- Views: 4071
friends
Bringing a friend for an infusion is not a problem.(at least here in France,where we're not so underdeveloped ;-) ) and since you're feeling quite anxious you should definitely come with your friend. Otherwise tysa IV is not different from steroid IV. also little corrction: in my message above i say...
- Thu Mar 05, 2009 1:47 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: 95% sure i'm choosing Tysabri
- Replies: 14
- Views: 4071
- Sat Jan 24, 2009 11:12 am
- Forum: General Discussion
- Topic: MS and fever (personal experience)
- Replies: 0
- Views: 1924
MS and fever (personal experience)
Hi As you may have read I have been on Tysa for 20 months and so far so good... Until this week when I have had some fever. This has reactivated my ms symptoms(right leg hobbling) and made me wonder whether i was having a relapse or not. But since this fever has gone i'm feeling better, the symptoms...
- Thu Dec 25, 2008 1:56 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Fourth PML case in 2008
- Replies: 45
- Views: 12187
TOUCH program. This program is non existent outside of he US, another reason for the cases in Euro. [/quote] As a french arrogant (?) :wink: guy I can't let you say this. I don't how it is exactly in the rest of Europe but here in France, Tysabri is prescribed under Touch program: monthly blood test...
- Tue Dec 23, 2008 12:47 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Franks Tysabri exp., little sideeffects, no improvement
- Replies: 50
- Views: 21940
Bonjour Belge, At the beginning i was feeling quite impatient like you. I know as well that i am quite lucky amongst Msers Personally i began feeling little improvements step by step: after 2nd infusion i could stay standing up(not walking, just painting my flat) for a quite long time without feelin...
- Tue Dec 16, 2008 2:48 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Franks Tysabri exp., little sideeffects, no improvement
- Replies: 50
- Views: 21940
Personally here in France, my neuro who i saw yesterday didn't speak about any break. I'll get my 18th infusion and Tysabri is really meeting its goal: no relapse since April 2007! As well my walking although maybe not as long as i'd like(4 km ,3 miles ie without hobbling is much less than what i us...
- Sat Dec 13, 2008 4:42 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: alcohol ;)
- Replies: 6
- Views: 5319
- Sun Nov 16, 2008 5:28 am
- Forum: Under 25 with MS
- Topic: Understanding
- Replies: 7
- Views: 9080
For the first years of my MS, I often used to speak out about it to relatives or friends. This tend people to see me just as a sick guy. Since that i prefer to not speak about it, unless i have serious problems: relapse eg. Also, i have a very limited list of people to speak about it. Otherwise, if ...
- Mon Nov 03, 2008 2:25 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Dr Alasdair Coles explains Campath on you tube
- Replies: 0
- Views: 2678
Dr Alasdair Coles explains Campath on you tube
Below youtube videos from Dr Alasdair Coles(leader of the research on Campath) exlains risks and gains from Campath. ttp://www.youtube.com/watch?v=6QvOiDfvrqg http://www.youtube.com/watch?v=HaYbTvSO0SY http://www.youtube.com/watch?v=SZuRvfFE8pI http://www.youtube.com/watch?v=ZO4VNIQKCok http://www.y...
- Wed Oct 08, 2008 9:23 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Tysabri and antibiotics
- Replies: 10
- Views: 7051
- Fri Sep 19, 2008 9:27 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: tysabri worsening MS?
- Replies: 25
- Views: 10967
Hi Cha As a 12 year MS guy, i have some steroid's experience. The effects of steroids aren't due to vitamin decrease or increase. Steroid side effect are often unbearable and there is nothing else to do than taking them early in order to avoid sleep disturbance while taking it. I have never heard vi...
- Fri Sep 12, 2008 1:46 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: sleepiness
- Replies: 2
- Views: 2954
Hi Veronika, don't worry about your second effect. feeling tired after Tysabri infusion is very common. Some of us experienced it after each infusion. In general, this tends to decrease infusion after infusion. I too experienced it after my very 1st infusion: i slept for the full afternoon following...
- Mon Aug 18, 2008 10:10 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: new brain infections
- Replies: 11
- Views: 5116
Mr accoutant
sorry, 2/43 000= 0,0046% is the chance to get a pml
whereas there are about 39,000 fatal crashes in the US each year
39 000/300 millions americans=0,013% chance to get killed while driving.
so before stopping tysabri, sell you car!!!
whereas there are about 39,000 fatal crashes in the US each year
39 000/300 millions americans=0,013% chance to get killed while driving.
so before stopping tysabri, sell you car!!!