This Is MS Multiple Sclerosis Knowledge & Support Community

One of the things that I have been doing over lockdown is family history research. I always knew my father's father (never knew him) had Pernicious Anemia (a lack of "intrinsic facteur" which is the thing that allows the stomach to absorb b12. But I have found out that also his mother had ...

Do they help?

Hi. Many years ago when I was newly diagnosed, I heard a lot about MS and b12 injections. Now I never hear about it, Does anybody still take them?

Diolch iawn !

Hello, I can't remember the last time I was here so thought I'd do a brief (Re) introduction. I'm burntsienna, dx in 1996, now SPMS. Live in the UK, from US originally. On gabapentin, propranolol (beta blocker, for hand tremor) Trazadone, and daily profilactic nitrofurantoin (antibiotic) because of ...

hello. I'm 37 and have been dx with MS for 17 years. My mobility is currently quite good although I was a wheelchair user between 2011 and 2013, I did a lot of physio and gym work and regained my legs. I am currently 21 weeks pregnant with my first pregnancy (I adopted my first child 6 years ago) an...

Unfortunately, I've tried to take LDN on 3 separate occasions, but it gives me unbearable stomach cramps. the first time I tried it the dose was obviously too high at 4.5 mg. The second time the dose started at 1mg with the intention to work up, but it caused the same stomach cramps. So, I stopped i...

thank you for your replies. i just don't know what to decide. I'm just becoming really scared about Aza and cancer, the more i hear about it, and I'm hearing more than I thought I would, but there are things about methotrexate and its toxicity that just don't sit well with me. When it comes down to ...

Did the person doing your ultrasound have experience with CCSVI scans? I'd encourage you to try again. You're in the UK? I have heard good things about EHC clinic, if that would be a possibility. MRVs are not part of the diagnostic process these days, for most IRs. It's a Zamboni-protocol ultrasoun...

i'm pretty sure it was doplar ultrasound. The scanner said that if that had showed anything then I would go on to have an MRV, but it didn't.

As I have not been able to tollerate any of the first line DMD treatments (Interferons or Copaxone) my neuro has suggested that I try either Methotrexate or Azathioprine. They both seem to have pros and cons. . . the pros being tablet form, possible anti-inflammatory properties and fairly low day to...

About a year ago I was scanned for CCSVI and there weren't any blockages found, so the recommendation obviously was to have no angioplasty. It took me a little while to get over my disappointment but then just put it out of my mind and moved on. However, I'm feeling a bit blue today after a recent r...

hi. i've been on and off of amantadine for fatigue over the years with very different experiences. The first couple times i had no noticeable effects at all. then a few years ago i tried it again, but this time i wasn't taking any other medication other than the pill. that time it made a huge positi...

sorry, but it doesn't look like much independent verification is out there that any of this is actually real. (not questioning anyone here, but)

Exactly. This can be one huge study (more than that). Thank you Kuwait for leading the way. I hope our country is watching this space.. What frustrates me, is that you hear the excuses from doctors, societies and anyone who would have to approve a new treatment being done and funded and the sceptici...