Search found 193 matches

by Punchy
Wed Aug 30, 2017 5:39 am
Forum: General Discussion
Topic: Struggling with low vit D and iron
Replies: 10
Views: 963

Re: Struggling with low vit D and iron

Thanks all, sorry I went MIA for a bit there. Jimmylegs, I was hoping you'd weigh in! I don't have a copy of my counts, but I wrote down what the doc told me. Iron serum - 7 umol Iron saturation - 0.08 Hemoglobin - 134 Vit. D - 60 (up from 26 in June) Phospherous - now 'normal' B12 - 222 Magnesium -...
by Punchy
Wed Aug 30, 2017 5:03 am
Forum: General Discussion
Topic: Low body mass index and MS
Replies: 11
Views: 1096

Re: Low body mass index and MS

Having weight loss surgery in a couple months, definitely not an issue for me!

I need to be at an optimal weight for mobility and assistance, should my disease get me to thatvpount.
by Punchy
Wed Aug 30, 2017 4:58 am
Forum: General Discussion
Topic: Peeing my pants in the Walmart parking lot
Replies: 18
Views: 8052

Re: Peeing my pants in the Walmart parking lot

Captain Pee-Pants here. I've peed my pants just about everywhere now, my friends and family have become quite used to it. My worst moment was probably when I took my kid to a birthday party at Menchies. Only one single bathroom that was occupied non-stop. I made it in, but didn't get my pants all th...
by Punchy
Wed Aug 30, 2017 4:46 am
Forum: General Discussion
Topic: Nostalgic reminiscions of a man I used to know.
Replies: 24
Views: 4323

Re: Nostalgic reminiscions of a man I used to know.

But are you still a good wanker?

It ain't easy. I can offer only solidarity, friend.
by Punchy
Fri Aug 04, 2017 2:15 pm
Forum: General Discussion
Topic: Struggling with low vit D and iron
Replies: 10
Views: 963

Struggling with low vit D and iron

My neurologist doesn't monitor vitamin D levels, but I'm preparing for weight loss surgery and discovered in April that mine were only 26. Since then I've made a huge effort to get my levels up by take no 4000UI daily in tablet form plus 400 as part of my multivitamin. I've been drinking fortified m...
by Punchy
Tue Jul 18, 2017 6:01 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Stabbing pain
Replies: 1
Views: 1818

Stabbing pain

I've been taking Tecfidera for about 4 months now, and for the most part I've left the gastro side effects behind. Last night I took my pill late, just before bed. Every time I take it I have to eat something after or else the pill just sits high up in my esophagus. I find the capsules are very ligh...
by Punchy
Mon May 15, 2017 1:49 pm
Forum: General Discussion
Topic: Who here has a Job?
Replies: 17
Views: 1943

Re: Who here has a Job?

I work 40+ hours per week, a long commute, have a young child who's in soccer, swimming, Tae Kwon Do. Dx 10 years ago and I am 37. It's hard, and yes I am tired all the time. I'm waiting for the bus home right now and I can barely stay on my feet. I want to beg off of my kids soccer game tonight but...
by Punchy
Wed May 03, 2017 10:31 am
Forum: General Discussion
Topic: MS and pregnancy
Replies: 9
Views: 964

Re: MS and pregnancy

My son was born via C-section, as was I. I'm big into the influence of gut bacteria, and believe it's the first step to a healthy immune system. I have heard that some hospitals are now swabbing c-section infants with their mother's vaginal and rectal swabs, to simulate the transfer that occurs duri...
by Punchy
Sat Apr 22, 2017 5:32 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fever and wheezing on Tec **Update**
Replies: 6
Views: 2257

Re: Fever and wheezing on Tec **Update**

Well, I had a pulmonary embolism. Lots of trauma to lung tissue, so no surprise that pneumonia took hold.

I'm titrating back up to 3x120mg today. Scared as heck, but I'm gonna give it one more try.
by Punchy
Sun Apr 16, 2017 7:34 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fever and wheezing on Tec **Update**
Replies: 6
Views: 2257

Re: Fever and wheezing on Tec

An update: turned out I had a pulmonary embolism with pneumonia on top of it. Have been in hospital all week. Coincidentally, the clot likely migrated the day after I upped my Tecfidera to 3/day. The docs don't think there's a connection, however they aren't familiar with the drug and they have no i...
by Punchy
Mon Apr 10, 2017 2:32 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fever and wheezing on Tec **Update**
Replies: 6
Views: 2257

Fever and wheezing on Tec **Update**

I'm on day 3 of taking three 120mg per day (two in the am, one in the pm). I'm titrating very slowly because it's killing my stomach. Anyway about 2 hours after the morning dose I started wheezing, bad enough that I can't lie down. I also have a dry cough. I thought it could be reflux so I took some...
by Punchy
Sun Apr 09, 2017 11:26 am
Forum: General Discussion
Topic: Interesting Gut Microbiome results
Replies: 19
Views: 2208

Re: Interesting Gut Microbiome results

I will be having bariatric surgery this year and have been researching its impact on the gut. From what I've read so far, it's mostly positive. If this could benefit my MS as well, that would be a double bonus.
by Punchy
Sat Apr 08, 2017 7:38 am
Forum: General Discussion
Topic: Vertigo & spins - treatments?
Replies: 9
Views: 1111

Re: Vertigo & spins - treatments?

Vertigo is one of my primary symptoms. It's awful, I feel for you. First you'll want confirm it's MS-related. More likely it's an inner ear issue. The best way to find out is by performing the Epley Maneuver. Your neurologist can do this, and you can even try it on yourself. http://www.webmd.com/a-t...
by Punchy
Thu Mar 02, 2017 5:48 am
Forum: General Discussion
Topic: lhermitte's sign
Replies: 10
Views: 1028

Re: lhermitte's sign

Mine appears during exercise or when I'm really warm. Are you in a warm climate?
by Punchy
Wed Mar 01, 2017 6:03 am
Forum: General Discussion
Topic: Pleasant symptoms
Replies: 2
Views: 535

Pleasant symptoms

Have you ever experienced symptoms of MS that you actually find pleasant? If so, did you treat it? In the past three months I've had two episodes where my legs, buttocks and hips feel wonderful - a relaxing, tingling sensation I find very pleasant. I have chronic tightness in my glutes and hips, mor...