This Is MS Multiple Sclerosis Knowledge & Support Community

Just returned from my two year follow up with continuing good news. No new lesions. Blood flow still looks good. This time, after reviewing results from his updated protocol, Dr. Dake did notice a malformed valve in my right IJV (one long flap instead of two short). Not sure if this is necessarily p...

Dr Dake tried angioplasty, but my veins would not stay open. I am so thankful that stents were an option for me.
I am 35 with 3 small children. I probably could have waited to see if or when I would experience my next relapse, but I did not want to live that way anymore.

Heather

NO RELAPSES NO NEW LESIONS STENTS IN PLACE BLOOD FLOWING Woohoo!! I KNOW, I KNOW !!! Lesion count is not every thing. But, after seeing several bright white enhancing lesions in the past couple of years, I was thrilled to receive a clear MRI. In case you don't remember me, I was seen by Dr. Dake see...

Has anyone tried Ann Romney, wife of former governor and pres candidate Mitt Romney? She has MS and may be more accessable than Michelle Obama. Her husband attended Stanford. She is also involved in charity programs for children. Perhaps she might be interested in raising awareness for the studies i...

Dear Dr. S,
I have googled, but cannot find a clear answer. What exactly is "acute congestive plethora of the head"? What would this look like? How would you find out if you had it? Thanks.

Heather

I am quite happy with my stents. My only "complaint" comes from shoulder pain related to the larger stent that was needed for my larger right jugular. (I have been babying that shoulder and have really gotten my neck and muscles out of whack. ) At any rate, I can't wait for my one year che...

When I saw Dr Dake last October, he commented that my right jugular was larger than my left. He also said that while it was common to have a dominant jugular, my right jugular was larger than normal and my left was smaller than normal. I ended up with one stent in the right and two in the left. Does...

Gina,

Have you had any luck with finding someone semi-local?

A disinterested neurologist would be disappointing. A combative neurologist would be _____.
Please go ahead and fill in your own word here. I was thinking bizarre, but a few others might fit. Great? Awesome? Sweet? Ridiculous? Sad? Infuriating?
Knock yourselves out.

I have actually already been treated at Stanford, but thanks for asking. I just figured there might be more Texans curious to know where you found treatment. I definately know a few Austinites who are. (If you don't mind sharing your Drs name in a pm, that would be awesome.) Also, for what it's wort...

(For such an easy read, I am surprised how often you are misread.)

Come on Bob. You have to admit the general response from the neurological community has been pretty bizarre. When I brought up CCSVI with my neuro last summer I was surprised to be treated with such hostility. (Seriously, one of the nurses was yelling at me in the infusion suite.) I had not realized...

I am seeing my doc today to go over the MRV, she doesn't know what to look for, just trying to help me It sounds like you are going to have to tell her what you are looking for. It might help to show her some of pictures from Dr. Haacke's site. They are crystal clear. There are also many posted her...

That should do it! Thanks peaches for "paying it forward". I wish you all the best towards future treatment.

Heather

What part of texas are you from? I'm sure there are more than a few Texans who would love to know where you went for evaluation. We don't I don't necessarily need a specific doctors name, but a zip code to start searching in would be lovely!
Congratulations!