Search found 145 matches

by mom10789
Mon Jun 09, 2008 6:49 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: canadians
Replies: 10
Views: 3783

no not really
i wear the ms sticker on my forehead
so why look for anything else
i'm sure if i stubbed my toe, it would be ms
shell
by mom10789
Mon Jun 09, 2008 6:02 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: canadians
Replies: 10
Views: 3783

we are trying to go through OHIP no other canadian has dr b in kingston is gonna help with all the paper work in canada dr hammond wants my pain under control and see my edss score then so far no luck all regular pain meds, alot of treatmeats,botox and tomorrow methadone my chiro comes every fri and...
by mom10789
Mon Jun 09, 2008 3:07 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: canadians
Replies: 10
Views: 3783

yeah, but robbie is canadian also
i was kinda surprised with dr freedman in ottawa
but i haven't given up yet
shell
by mom10789
Sun May 04, 2008 4:23 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: canadians
Replies: 10
Views: 3783

jaime don't be angry i'm just repeating what happened and i took all the info from carrie it must have said 25 steps somewhere in there being from ontario canada, i need to have a doctor on board from up here and carrie said there was no one from ontario yet even our insurance is different even i ha...
by mom10789
Sun May 04, 2008 3:12 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: canadians
Replies: 10
Views: 3783

canadians

first of all i should say sorry for not writting sooner it's been an off and on nightmare since coming back my major MS issue is pain, not rare but not too common either my neck, hands, arms, shoulders and ribs are agony i haven't been able to walk because of pain, i've had very little to no relief ...
by mom10789
Sun Apr 06, 2008 3:28 am
Forum: General Discussion
Topic: appoinments
Replies: 1
Views: 1684

appoinments

well, tues afternoon i find out why Canadian neors are concerned about revimmune. my appt is at the ms clinic in Kingston,ontaio. then wed morn i'm off to ottawa for my appointment with Dr Freedman to talk about stem cells. should be an interesting week
shell
by mom10789
Tue Mar 18, 2008 9:13 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: any hospital
Replies: 2
Views: 2560

any hospital

can you have the treatment done off-label at any hospital or only at john hopkins
thanks shell
by mom10789
Fri Mar 14, 2008 11:11 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Award for Revimmune
Replies: 24
Views: 10393

does off-label mean you can have the treatment anywhere or still only john hopkins
by mom10789
Fri Feb 29, 2008 3:44 am
Forum: Stem Cells
Topic: Another story
Replies: 16
Views: 7232

i've read alot these last few weeks about just about everything stem cell had a really rough beginning but it doesn't seem as risky as it once was i'm also just learning about hycy, and don't you need to go right on copaxon i realize stem cells are a whole lot riskier and more invasive but it just i...
by mom10789
Wed Feb 27, 2008 5:43 pm
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: kept it to myself
Replies: 14
Views: 4706

kept it to myself

i was dxd in 2001, since 2005 my life became agonizing painful ms i've tried it all abc drugs,ldn, abx and a few other things. some minor improvements over the last couple years but pain is still aweful. i have no use of my legs, my left arm and hand and since dec my right arm and hand are slowly lo...
by mom10789
Sun Jan 20, 2008 7:46 pm
Forum: Regimens
Topic: not sure
Replies: 0
Views: 2548

not sure

i've reaally only stayed on mino because i had to take some other abx for non stop UTI. and sarah was right abx has cleared my head completely
it just looks like my body has alot of different bacteria to deal with
one at a time
thanks for asking
shell
by mom10789
Sun Jan 20, 2008 5:48 pm
Forum: Regimens
Topic: bartonella?
Replies: 3
Views: 3720

bartonella?

i was feeling so sorry for myself on thurs 10, i called john hopkins to see if i qualified for the REVIMMUNE trial,haven't heard anything back so i will call again this week. when i told my gp i called them, he said i was single minded. first it was LDN, then ABX, then lyme and now chemo and why not...
by mom10789
Wed Jan 09, 2008 7:50 am
Forum: Regimens
Topic: shelley's ABX Adventure
Replies: 6
Views: 4232

sorry all, it has been monthes since i have written all was going along fine until nov 1 when i got yet another UTI the pain was unbelievable, had a high fever and those d... rigor spasms so my husband took me to the hospital, my gp was on call, he ran some blood tests,urine test, and came back and ...
by mom10789
Sat Oct 27, 2007 11:31 pm
Forum: Natural Approach
Topic: Melatonin effects question
Replies: 7
Views: 3782

i can't take it
i feel worse the next day
i'm only just new to abx
shell
by mom10789
Fri Oct 26, 2007 4:27 pm
Forum: Antibiotics
Topic: physio
Replies: 5
Views: 3461

thabks
but i swear my bellybutton to my neck just becomes more and more agonizing

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