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I was having horrible bladder problems. They're still not solved but things have been dramatically improved since my neurologist prescribed desmopressin acetate a few years back. It's a nasal spray. Just puff it a few times and the bladder urgency miraculously stops for me. Ask your neurologist abou...

Went to neurologist today to get botox shots in my legs but we decided against it as the last time he administered some I wasn't sure if it helped at all, and may have even had a deleterious effect. So being that I'm already on Baclofen and Tinzanidine (at night) as well as 4AP, he suggested we give...

Had my first infusion of Rituxan yesterday at UCSF. Had a slight infusion reaction about two hours in that resulted in nothing more than a very itchy throat. They cut the flow, added more Benadryl, and we started again about 20 minutes later. Because of this hiccup whole infusion lasted about 7 hour...

...in each calf, for spasticity. Anyone try this? How'd it work? Last year I had injections in my bladder for incontinence with some mild relief, but no miracle. Thanks.

I use DDAVP (desmopressin acetate). It's a nasal spray you use a couple times a day. Covered by my insurance, otherwise it's very pricey at $150 a bottle (each bottle lasts about 2 weeks). I had horrible bladder frequency/incontinence and this is the only thing that's given me any relief. It's mirac...

Seems as though every time I get infused with methylprednisone (recently had 3 day course), or when I was getting cytoxan + methylprednisone, a day or two after the infusions I experience absolutely horrible bladder problems, to the point of straight up incontinence (or having to use bathroom every ...

I'm late to this party, but sounds interesting. I live in San Francisco so could easily make it down to Stanford. Could someone fill me in briefly on what I should know (what the procedure is) and who I contact at Stanford to get involved? Pardon my ignorance, and thank you.

I was very pleased with the two sticks I ordered from http://fashionablecanes.com/. Good selection, fast construction and delivery. And if I recall not too expensive. I didn't realize it, but at check out it also told me I had apparently selected one of the same ones Dr. House uses on the Fox TV sho...

Yes! Regardless of this, I am elated. This can only be good for us, and all Americans, and the planet.

Tough call, but if the new job is something you're jazzed about, I'd go for it. I am of the mind that we must continue to take risks, pursue our passions, despite our conditions. Having said that, I was laid off from a very high paying job that was a pleasure to go to every day just this week. It's ...

Any guess what sort of surgery Fox News Channel's Neil Cavuto is getting for his MS? Wouldn't be surprised if the news outlet got it wrong by saying surgery, and wondering if he's in fact getting something like HiCY... http://www.mediabistro.com/tvnewser/fnc/cavuto_recovering_from_msrelated_surgery_...

Thanks for the encouraging and informative response, Nick. And straight from the expert too. Funny, I was just getting ready to go to a wedding and considering dumping the diet for the day, but maybe now I'll rethink that. Do you ever have days when you go off the diet when circumstance doesn't perm...

Hey gang. Anyone with SPMS or PPMS had any luck with dietary regimens? About a month back, I started following the Best Bet Diet pretty rigorously. And though I've lost some weight, I haven't noticed anything tremendous in my lousy legs, bladder, or other affected body parts (I'm a 33 year old male ...

First of six infusions to be given once per month. So far, no adverse effects whatsoever. Hopefully that will continue and I'll actually see some benefits.

Anyone else on here tried Cytoxan other than the Revimmune crew?

Thanks.

Hey. Is the therapy that Dr. Greenberg was speaking about, and the therapy shown in this news piece, Cytoxan only or Cytoxan plus something more involved? My neurologist has advised me to begin Cytoxan therapy but there was no discussion of getting childhood vaccines again, total hair loss, bone mar...