Search found 51 matches

by Sandrine
Wed Aug 17, 2011 11:24 am
Forum: Rebif
Topic: Anyone with GOOD Experiences on Rebif??
Replies: 44
Views: 28146

Dear Amber, I am on Rebif44 for 4,5 years now. I had my 1st attack in October 2006, was diagnosed in December 2006 and started Rebif in February or March 2007. I had 1 relapse in April 2007, which means after a few weeks of treatment, I had some family problems etc. and was very stressed during that...
by Sandrine
Sat Feb 05, 2011 2:43 am
Forum: General Discussion
Topic: Histamine may be a possible drug target for MS
Replies: 4
Views: 2386

Hi, that is very interesting... In 2008 and 2009 I posted the experiences my sister made: it was always hay fever OR MS flare, e.g. when she had a flare during the hay fever season, her hay fever disappeared and vice versa ( http://www.thisisms.com/ftopic-6731-0-days0-orderasc-.html and http://www.t...
by Sandrine
Sat Jul 18, 2009 6:37 am
Forum: General Discussion
Topic: NMO / Devic ?!
Replies: 8
Views: 2825

Hallo @all,

we had to wait > 2 months for the result of the antibody test - it was negative! :D

The result doesn't change her symptoms, but MS seems to be the "better disease"...

I'm relieved :)

Sandrine
by Sandrine
Mon Jun 29, 2009 7:36 am
Forum: General Discussion
Topic: how long does your typical relapse last?
Replies: 15
Views: 42309

hi hlm, I had numness and strange feelings (burning...) in my legs for several months (but no other symptoms). That relapse started in october 2006, in december i was diagnosed in hospital and they gave me steroids for 3 days. My feet were still burning and the legs felt "strange". The dia...
by Sandrine
Tue May 26, 2009 4:10 am
Forum: General Discussion
Topic: lhermitte's sign confusion..?
Replies: 15
Views: 18453

I had a quite weak lhermitte's sign for some weeks in 2006, always when I put my head to the chest. It was like a vibration in my lower back and my behind and not painful (lucky me!) and it stopped after a few seconds - until i moved my head again.
by Sandrine
Mon Apr 27, 2009 3:06 am
Forum: General Discussion
Topic: NMO / Devic ?!
Replies: 8
Views: 2825

Just a very short answer (I'm at work): West Germany, south and than north. why?

Thank you!!
Sandrine
by Sandrine
Sun Apr 26, 2009 9:25 am
Forum: General Discussion
Topic: NMO / Devic ?!
Replies: 8
Views: 2825

NMO / Devic ?!

Hi, my younger sister and me were both dx with MS in 2006. I'm confused at the moment: Some weeks ago my sister went to a hospital to see another neuro bcause her doctor thinks about switching her to tysabri (at the moment she is on Rebif44) - she had 7 excerbations within 1 year and at least 7 new ...
by Sandrine
Fri Feb 13, 2009 6:27 am
Forum: General Discussion
Topic: Why R most Tysabri-PML cases in europe?
Replies: 2
Views: 2114

Of course you're right. I forgot the "confirmed"... And I have no ideas about the monitoring of PML or other less severe "side effects" in Europe compared to the US. Are there any tests done for JC virus in the US? Is there a spinal tap before they start tysabri, do you know? I h...
by Sandrine
Fri Feb 13, 2009 6:22 am
Forum: General Discussion
Topic: Advice anyone?
Replies: 11
Views: 3552

Hi, thank you again... About the B complex I'm not sure, I will have a look when I'm back at home. Concerning D3 and Mg/Ca - it is best to combine D3 and Ca and take Mg some hours later, right?? @gainsbourg: She takes a lot of antihistamines during her "hay fever period" in late spring and...
by Sandrine
Thu Feb 12, 2009 10:41 am
Forum: General Discussion
Topic: Advice anyone?
Replies: 11
Views: 3552

Thank you so much for your replies. I forgot to mention: My sister and me both take fish oil/omega 3 with vitamin E and also some B vitamins. We should think at least about additional vitamin D, I suppose... There is a lot of information about supplements in this forum I realised... But she really e...
by Sandrine
Thu Feb 12, 2009 12:59 am
Forum: General Discussion
Topic: Advice anyone?
Replies: 11
Views: 3552

Advice anyone?

Hi, I'm concerned because of my sister... My sister and me were both diagnosed with MS in autumn 2006. We had the same onset, same number of lesions etc. She was 23 and I was 26. We started both with Rebif 44, we both had another flare in april 2007 (ON for her, nystagmus for me) and than everything...
by Sandrine
Thu Feb 12, 2009 12:19 am
Forum: General Discussion
Topic: Why R most Tysabri-PML cases in europe?
Replies: 2
Views: 2114

Why R most Tysabri-PML cases in europe?

I'm confused - according to that data... < shortened url > ... 20,200 people in the US are on Tysabri and 16,900 outside US. BUT: There are until now 5 PML cases (Tysabri mono therapy) 1 in the US 4 in Europe (out of the 4 there are 3 !! Germans) What is happening? Better screening for PML risk cand...
by Sandrine
Fri Feb 06, 2009 4:37 am
Forum: Rebif
Topic: pinkillers
Replies: 5
Views: 4362

Hi burntsienna, do you really need 2 paracetamol and 2 ibuprofen for the 8.8 mcg-injection? Have you tried with less until now? I'm on Rebif for 2 years now and I unfortunately still need ibuprofen, which caused some trouble with my stomach :roll: I do my injection in the evening, take the painkille...
by Sandrine
Fri Jan 16, 2009 4:47 am
Forum: General Discussion
Topic: Testosterone
Replies: 16
Views: 5464

Any news about you and the testosterone?

Sandrine
by Sandrine
Wed Jan 14, 2009 3:55 am
Forum: Rebif
Topic: New formulation of Rebif
Replies: 40
Views: 21272

Be carefull, the moist Frio pocket could mold (UGH!)... :)

Concerning Afrika: I made a test with the pocket in our 37°C-room (I work in a lab), and the temperature in the pocket was below 30°C, but not 25°C.

Sandrine

P.S. Celcius-Fahrenheit converter:
http://www.wbuf.noaa.gov/tempfc.htm

Go to advanced search