Search found 51 matches
- Fri Aug 05, 2011 12:05 pm
- Forum: Avonex
- Topic: Avonex while sick?
- Replies: 14
- Views: 15671
9 mos later, sick again, want answers
I Googled "Avonex cold" and ended up here. I read through these posts and even saw my own from November 2010. I have a bad cold: aches and pains, sore throat, some sinus goop. My 5 mo. old babies had it first: the girl kicked it right away, and the boy got a very bad case of congestion, wh...
- Sun Apr 03, 2011 9:08 am
- Forum: Diet
- Topic: Swank diet discussion
- Replies: 145
- Views: 103630
Updated Swank Diet -- absolutely!
I have been doing a modified/updated version of Dr. Swank's diet since I was diagnosed in 2007, and I highly recommend giving it a serious look. By "updated" I mean that the recipes that form the 2nd half of Dr. Swank's book are very dated (think 1950s cooking...1980s at best), and I prefe...
- Fri Nov 26, 2010 8:15 pm
- Forum: Avonex
- Topic: Avonex while sick?
- Replies: 14
- Views: 15671
Avonex while sick -- here goes nuttin'
NHE, you are such a prolific and well-informed member of ThisIsMS -- kudos. I have a cold, and I was wondering if it was a bad idea -- or a really really good idea --- to take Avonex while fighting off a cold. I Googled and I poked all round the Avonex (Biogen Idec) site, coming up with nothing usef...
- Mon Nov 02, 2009 8:16 am
- Forum: Rituxan (Rituximab)
- Topic: first infusion
- Replies: 6
- Views: 8306
Would like to hear more about your experience
Thank you for telling us about your experience with Rituxan. I hope you will keep reporting on your condition here, whether you have any or no side effects, improvement (or not) in your symptoms, etc.
Keep moving,
Longing4Cheese (Jack Sprat)
Keep moving,
Longing4Cheese (Jack Sprat)
- Fri Sep 18, 2009 2:48 pm
- Forum: Diet
- Topic: Swank diet discussion
- Replies: 145
- Views: 103630
I'm sticking with it - read Dr. Jelinek
Especially if one does not have dramatic symptoms, it's hard to determine a direct cause and effect relationship between treatment and symptoms, whether it's drugs or "lifestyle," or that in-between area (in my opinion), what one puts in one's body every day, aka FOOD. I have not shown any...
- Mon Sep 07, 2009 5:32 pm
- Forum: Copaxone
- Topic: avoiding IPIRs with copaxone
- Replies: 21
- Views: 13010
Welcome, Vladman
I think it's a good thing to post on a good forum to whatever extent you feel like. I am a pro-active patient compared to most people, and I have been searching hither and yon for information. Of the several sites where I have "joined," I find that ThisIsMS has the most informed and intell...
- Wed Jul 29, 2009 11:31 pm
- Forum: Copaxone
- Topic: avoiding IPIRs with copaxone
- Replies: 21
- Views: 13010
Had reaction to Copaxone, neuro thinks it was allergic
Well, it turns out that, after 6 months almost to the day on Copaxone, I seem to have developed an allergy to it. On June 4 I had a reaction to Copaxone that lasted almost an hour, and included features like a swelling face and mouth, stiff eye muscles (the ones that move the eyeballs), and a tickle...
- Sun Mar 29, 2009 12:11 pm
- Forum: General Discussion
- Topic: 10 sec's of our ms poster boy
- Replies: 26
- Views: 4806
Montel is for Montel and about Montel
I read his book Climbing Higher ... what an embarrassing display of self-absorption, even for a "memoir"-genre publication. I really didn't need to know all the ins and outs (ahem...) of his sex life with various "ladies" he was involved with... it wasn't so much the graphicness ...
- Sun Jan 04, 2009 12:06 am
- Forum: Copaxone
- Topic: Copaxone Sting Reduction Technique: A Personal Breakthough
- Replies: 21
- Views: 27444
I'll try it
I read this now, in January 2009, and, as a new Copaxone user (5th injection tonight...not fun...maybe a 4.5 sting rating?), I'm looking for anything I can do to make the "hey, that wasn't so bad" experiences more reliably frequent. So I'll try it out. At the very least, I'll get a massage...
- Thu Nov 20, 2008 4:35 pm
- Forum: Copaxone
- Topic: Copaxone for ppms? (also posted in general disscussion)
- Replies: 10
- Views: 7221
How they Dx PPMS
If you haven't had any identifiable "attacks" or spells or symptoms that occurred, lasted days to weeks, then got better (or mostly better), then you don't neatly fit into the description of RRMS, which 85% of MSers are. If you have very gradually declining ability to walk, weakness in a l...
- Wed Nov 19, 2008 11:48 pm
- Forum: Copaxone
- Topic: Copaxone for ppms? (also posted in general disscussion)
- Replies: 10
- Views: 7221
I've been RECLASSIFIED -- and will be starting Copaxone
I have had an interesting turn in my MS journey: I was Dx in June 2007, and have seen a total of three different neuros, at least one of whom is a well-known MS researcher and professor at UCLA. Everyone said I had PPMS. However, a few weeks ago I saw a top MS specialist at USC, and he questioned me...
- Sat Oct 11, 2008 10:48 pm
- Forum: Antibiotics
- Topic: Minocycline Promising for Fragile X Syndrome - autism, MMP-9
- Replies: 9
- Views: 4741
Minocycline Promising for Fragile X Syndrome - autism, MMP-9
Forgive me if this is already covered -- I did search for "autism" in the Antibiotics forum and got zero results. So, this may be very interesting news... UCR Researchers Propose Minocycline as a Promising Drug for Patients with Fragile X Syndrome RIVERSIDE, Calif. – A UC Riverside-led tea...
- Tue Oct 07, 2008 11:27 pm
- Forum: Natural Approach
- Topic: Alpha Lipoic Acid
- Replies: 4
- Views: 3322
Hit the online body building sites for inexpensive supplemts
I got a POUND of N-Acetyl L-Carnitine for about $32 (incl. shipping) from www.trueprotein.com, a body-building supplements site. It was hard to find the supplements area at first; click on Formulas and then pull down to Custom Solutions. You can dial in custom blends of supplements by percentages; y...
- Fri Sep 12, 2008 12:01 pm
- Forum: Copaxone
- Topic: avoiding IPIRs with copaxone
- Replies: 21
- Views: 13010
The Weiners
Yes, I've read Howard Weiner's book, Curing MS, and heard him speak at the same event where I heard Leslie P. Weiner (it was at the Nancy Davis Foundation "Roundtable" (actually several tiers of tables, facing a conference room with several hundred chairs set up; about 2/3 filled with audi...
- Thu Sep 11, 2008 10:37 pm
- Forum: Copaxone
- Topic: avoiding IPIRs with copaxone
- Replies: 21
- Views: 13010
PPMS and Copaxone; this site is great
Thanks for the clarification. I actually thought that was a very common reaction. I have a friend on Avonex, and of course have read many accounts online about people's struggles with the once weekly "shot night" phenomenon. I have been imagining that the reaction you describe is fairly ty...