Search found 112 matches

by DM
Wed Sep 18, 2013 5:47 pm
Forum: Aubagio (teriflunomide)
Topic: Aubagio and Hair Loss side effect
Replies: 43
Views: 28659

Re: Aubagio and Hair Loss side effect

went for a haircut today. Hair was way too long. I was in shock what I saw, or should I say didn't see, on the top of my head. I knew over the past couple of years that it was thinning, but man, didn't think this bad. Could be age mixed with the drug but jeez, it is shocking. At least there is still...
by DM
Tue Sep 10, 2013 10:21 am
Forum: Aubagio (teriflunomide)
Topic: Aubagio and Hair Loss side effect
Replies: 43
Views: 28659

Re: Aubagio and Hair Loss side effect

no sidefx either and my arm hairs are fine. just trying to get the hair on my head back to the same way as bfr
by DM
Tue Sep 10, 2013 10:04 am
Forum: Aubagio (teriflunomide)
Topic: Aubagio and Hair Loss side effect
Replies: 43
Views: 28659

Re: Aubagio and Hair Loss side effect

As mentioned, I have been on this drug since 2007. Any types of shampoo, brands, you can suggest to get rid of the frizzies, and maybe even the thiness. Thnx
by DM
Thu Aug 08, 2013 6:57 pm
Forum: Aubagio (teriflunomide)
Topic: Aubagio
Replies: 51
Views: 42677

Re: Aubagio

Been on Phase iii 5.5 years now and still on til its legalized in Canada. Should be by Oct 2014. Dont know what I was on for the first 2 years, and altho on the drug for the past 3.5 years, not sure which dose. No sideFX whatsoever, except for my thinning hair.
by DM
Thu Aug 08, 2013 6:53 pm
Forum: Aubagio (teriflunomide)
Topic: Aubagio and Hair Loss side effect
Replies: 43
Views: 28659

Re: Aubagio and Hair Loss side effect

I have been taking this drug since 2007. I was in Phase III and have been extended multiple times. I am still on the drug provided by the MS clininc until October 2014. I am not sure what dose I was on for the first 2 years, or maybe the placebo, but after the 2 years were up, I am on the real thing...
by DM
Thu Mar 21, 2013 5:59 pm
Forum: Aubagio (teriflunomide)
Topic: Aubagio
Replies: 51
Views: 42677

Re: Aubagio

Haven't had any symptoms since the first episode back in 2006. Is the drug working/ Who knows? I only had the one episode, mild at that, and never had any other occurences. Is it the drug? Was I destined only to have the one? Don't know. I just keep popping those pills, ooops, I better go take one, ...
by DM
Fri Mar 15, 2013 11:29 am
Forum: Aubagio (teriflunomide)
Topic: Aubagio
Replies: 51
Views: 42677

Re: Aubagio

I have been on the trial since Nov 2007, not sure on what dose now but never had any sidefx and not even know if its working. Continuing on the traial til December 2014. Only sideFX is thinning of the hair
by DM
Fri Mar 15, 2013 6:39 am
Forum: Aubagio (teriflunomide)
Topic: Aubagio
Replies: 51
Views: 42677

Re: Aubagio

How many mg?
by DM
Thu Feb 28, 2013 6:01 pm
Forum: Aubagio (teriflunomide)
Topic: Aubagio
Replies: 51
Views: 42677

Re: Aubagio

Teriflunomide has yet to be approved in Canada. I have been taken this oral drug since November 2007. Not sure but I think I was on the placebo for the first 2 year term. Experienced no side FX at all. None! I have been on the real thing since 2009 and obviously, not sure whch dose. No side FX again...
by DM
Tue Jun 26, 2012 12:00 pm
Forum: Aubagio (teriflunomide)
Topic: Teriflunomide
Replies: 119
Views: 56094

Re: Teriflunomide

It has been a while since my last post. I am still on the extended study, still not knowing what I was taking during the trial, several years ago. As of now, I am scheduled to be off the drug in June 2013, unless it gets extended once again. My ultrasounds have stopped although the MRIs continue. I ...
by DM
Fri Nov 19, 2010 6:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ontario Man Dies
Replies: 1
Views: 1539

Ontario Man Dies

http://www.cbc.ca/canada/story/2010/11/ ... ml?ref=rss

I hope I am not duplicating someone elses thread. If so, I apologize
by DM
Fri Oct 01, 2010 2:46 pm
Forum: Drug Pipeline
Topic: Novartis Gilenya MS Pill to Cost $48,000 a Year
Replies: 14
Views: 5748

Talk about taking advantage of those in need. Price the stuff out of control just because its easier to take than a needle. Wait til the next pill is approved and watch their prices drop, unless the shareholders demand bigger dividends. So much for a company with a good conscious. Only in it for the...
by DM
Mon Sep 27, 2010 12:26 pm
Forum: Introductions
Topic: 17 and a bit confused
Replies: 6
Views: 1824

As far as I know, there may not be any change to how you feel now, and the MS may not worsen. On the other hand, who knows. That is why members here take it day by day and hope for the best. I was diagnosed in Nov 2007 and been on a clinical trial for an oral drug. I am quite a bit older than you bu...
by DM
Wed Sep 08, 2010 3:01 pm
Forum: Introductions
Topic: New member
Replies: 4
Views: 1214

Hi expat,

Another Ottawan here at the General. On an oral extended study. Everything is fine by me, except some fatigue, but been doing it for almost 3 years now. Never was very MSd out at all. If you are at the General, maybe we'll see you sometime
by DM
Sun Aug 08, 2010 3:09 pm
Forum: General Discussion
Topic: Need to make an appt to see a Specialist or Neurologist
Replies: 6
Views: 1850

Hi Wedgirl, Sorry to hear what you have been going through. I was diagnosed in 2007 and currently on a test study for oral treatment drug. During my diagnosis term, the thought of a spinal tap was worrisome. I am not going to pretend that it was a great experience, but not as rough as I expected. On...