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Campath was approved Friday night

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The problem with SPMS and PPMS is the disablity increases are not just from disease activity but from the axons in the neurological system failing from other chemical reactions related to demylenation. The best results with revimmune occurr when you are just fighting inflamation. The sooner you get ...

The leap of faith is easy if you truly believe that there is nothing else out there that is going to help you get better or at least stop you from getting worse. That was the way I felt when I signed up for this back in 2007.

HiCy

Chris,

What does your report say concerning any plaques in your spine? I would imagine that these are the ones giving you problems with walking, etc. I know that the lesions in my spine are the ones giving me problems.


HiCy

To all, It is great to see all of you really pushing with the PT. I can't express enough the importance of exercise in everyones recovery. I also don't think you can push too hard. Chris, You will get results with your new Rocky approach. You will have days after you work out that you feel terrible ...

Well I am 16 months out and for the most part things are steady. I did not do an MRI at my 15 month. I always feel they make me feel crummy. I am going back in June for a 21 month check up and then on to 24. As I have written before some things are better in regards to stamina and some areas of stre...

To all, Since I was the original HiCyer on this thread I figured I would drop a line. I just went through my 15 month check up. I skipped the MRI but all my symptoms are stable. Some things are better but some things feel worse so I am not really sure how to measure the progress if any. JH is happy ...

I was told I was the second person to go on Copaxone after HiCy.

No one has said that this proceedure is 100% forever but some people have had great results and are multiple years out with no disease activity and great recovery after being on a course to PP. I don't think that any other protocol can claim that. Other patients have seen HiCy more than once. No MS ...

Kyle, I would not be so down on the treatment. Having gone through this I would have to say that it is not for everyone and the results will vary. I still think it is better that some of the other CRABS especially if they are not working. I believe that once there is more data, especially with copax...

I was the second person they put on Copaxone which I started back in December. I have discussed this with my Neuro and they admit it makes perfect sense to do this. Train the immune system while it is still new and learning and we can all be like the test mice who did not develop MS after they were ...

No new symptoms just a worsening of old ones and since these are worse I have not improved like I had hoped. It is hard to explain. It has been a slow regression starting back in December with the worse of it happening around the 1st of April. Things seemed to have leveled off. The heat sucks but th...

Dr. Chrishnan was my first contact at JH. This is the initial study of the protocol. I have to say that the results are not that terrific. I am sure this is where the 50% relapse rate that Carrie is quoting is coming from. After going through this I have mixed feeling about the procedure. It holds a...

To all, The fact that heat bothers MS symptoms is really pure physics. Your myelin acts as an insulator like the coating on a wire. As your lesions become worse and your disease progresses the myelin or insulation has greater damage. The heat can now get to the electrical signal traveling through yo...

Susan,

Squeeky wheel gets the grease. You need to be persistent. They have your file but do they have a recent MRI? I would get your doctor to prescribe one for you and get it down to them. It gives you another reason to call Carrie and push your case.


HiCy