Search found 27 matches

by rettahb
Sun Jul 11, 2010 11:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 202125

Procedure June 23, 2010

The only result I have seen is that I am happier. My mood has clearly elevated. But damn! yes I wanted to get my strength and walking back. I wanted to loose a whole list of symptoms! Do I have any regrets? absolutely not. It had to be checked! I had 30% stenosis in left Jugular an Azygous veins. Bo...
by rettahb
Wed May 12, 2010 11:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204225

I knew it would happen quick.

Good think I jumped..... breath........ must be patient.
by rettahb
Wed May 12, 2010 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi from Jeff, re. my stent treatment at Stanford
Replies: 268
Views: 68400

remembering a year ago

This is an anniversary for all of us! Yay!!!!
by rettahb
Wed May 12, 2010 11:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204225

got my call from the Doc in Albany

Now I'm waiting for the scheduler..... he said it would be about a week because they are backed up.

I got to this same point with Dr. Dake...... send positive energy my way!! :D
by rettahb
Mon May 10, 2010 8:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

scanning question?

I've been contacted by the Buffalo study. Do you think it will it be beneficial for me to participate? One thing the contract says is "I understand that the only benefit I will receive from these Tests is the knowledge that I present (or do not present) CCSVI." and then,"Thus, any inf...
by rettahb
Sat May 08, 2010 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

I'm nervous about taking from her blog with out her permission..... "- The 'old' stents had to be removed as well as clots that were starting to form. Balloons were tried again, as the Dr. and I had discussed it before the surgery that since he was going in we should try balloons. Well my veins...
by rettahb
Sat May 08, 2010 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

No it was stents........ that's why I asked about the "moving target".
She is in Ohio somewhere.
by rettahb
Sat May 08, 2010 7:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

re stenosis

I've been reading Denise M's post stent blog on facebook. She had remarkable results from stent placement... Before vascular angioplasty: http://www.youtube.com/watch?v=JO3DnqHJfeM&feature=channel After........ http://www.youtube.com/watch?v=KYNhYtVojSQ&feature=channel and http://www.youtube...
by rettahb
Wed Apr 14, 2010 7:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

Live webcast

Still time to register for the NMSS CCSVI web forum with Dr. Zamboni- to start in 30 minutes- (noon EST) TODAY

http://register.mediasite.com/?nd=regis ... yxt6q_yk06
by rettahb
Wed Apr 07, 2010 2:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

Brain Fog

Family Elder, I wand to be you!
by rettahb
Tue Apr 06, 2010 4:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

Why is there so much resistance to ensuring that MS Patients have adequate blood flow in their heads?
by rettahb
Tue Apr 06, 2010 5:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2372296

My medium size town hospital , Lawrence Kansas. Has a way of scanning and digitizing them......... Ask yours.
by rettahb
Sun Apr 04, 2010 6:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Did Stanford cancel it's study?
Replies: 17
Views: 4676

"Posted: Thu Apr 01, 2010 8:50 pm Post subject: Dudes... rumors be gone I spoke with Dr. Dake last week, the study is on. He's getting all the ducks in a row, and is quite excited. He has already selected the people to be involved, and is not recruiting." Has Dr. Dake already got ahold of ...
by rettahb
Sat Apr 03, 2010 8:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: List of Those Who Had/Scheduled to Have Procedure-Stanford
Replies: 58
Views: 16043

Rosa

Fantastic!!!

Dr. Dake called me on October 30 2009. And I've heard nothing since. I want to be you Rose2!
~retta

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