This Is MS Multiple Sclerosis Knowledge & Support Community

There is a study out looking for people that have MS disease. It is called HALT-MS. It uses cancer drugs and stem cells. It is in three locations in the USA. If you google HALT-MS you should be able to find information about this study.
It is also in Medical News Today under the MS section.

Thanks Jamie, I called John Hopkins today to get more information.I'm definitely interested. Doing pretty well right now-after 17 years- and would like to keep it that way. Are there personal stories of people who have tried Revimmune and how it effected them? I'm sure treatment time is not the tim...

I called Hopkins last September, just to see if I could get some information on the treatment. I was told they were booked solid with people doing the treatment off-label, and they weren't accepting new patients for it. However, the person I spoke with told me they were planning to do a clinical tr...

Is there anyone that has been in the balance trials for the Brain Port?
If there is, please let us know about your experience with this devise.
www.wicab.combrain port balance technology
Thanks

Hi All, Just got back from the Maldives - veliganduisland.com if anyone is interested! It was kind of emotional for us as this time last year was when Mel was at her worst and the holiday (same island) kinda sucked as a result, she was unable to walk at one stage and could only stay awake for a cou...

steven73 wrote:

L wrote:I know that it's been mentioned before, but what's the dose of Copaxone that HiCyers are currently on? It's a lot higher than the standard dose, no?

I'm on the standard dose. I use just one regular Copaxone needle each day.

The dose for HiCy patient is one standard shot per day.

The name of the device is Foot Up. The price is about $150.00. Has anyone used this device? If you have used it, do you see any improvement?

Thanks Jamie and Keri. So HiCy patients are not isolated? I assumed that while there was no immune system visitors would be restricted, but this isn't the case? And once the four days are over the sickness disappears quickly? One more question, sorry for all the questions, is nausea brought on as t...

Lars wrote:Guess what, Rush has apparently been flooded with inquiries today, hmm....wonder why. Does anyone know if the Rush therapy is identical to Revimmune? As you know, they don't respond to that name.
Lars

look at www.rebootingkathy.blogspot.com she had the rebooting done at Rush.

Well I have clonus like a MoFo lol. Get this, last couple of days the whole right side of my body, and my trunk, feels like when I was very first diag'd. All weird like. Drives me nuts...so I worry a little right?... Well then I get up and walk across the room better than I have in 2 years and put ...

Can anybody out there tell me who to contact at Rush in Chicago? I called the MS center at 312-942-8011 and the little girl who answered had no idea what I was talking about and told me to call Northwestern for the stem cell transplant. Thanks :D Try the Rush Multiple Sclerosis Center Phone number ...

A woman named Kathy has gone through the procedure in Chicago.
Type in www.rebootingkathy.blogspot.com to read and watch.

Davis

I am interested in the device and would appreciate any information from people with MS that have used or are using the device.
I am investigating the device for purchase.

Davis

When I was at JHH I remember it being called a line and a hickman but that was in May, 08. I was in IPOP for 18 days after the 4 days in the hospital. For me, it took 9 days of infusion rebooting medication to get my numbers back up. It also took a while for my numbers to fall after the HiCy in the ...

I am interested in this treatment possibly, but I do have nigh BP. I am on medication, but my BP seems to spike really easy and I do have a family history of heart problems. Does anyone here who had this treatment have high bp as well or know if this will be an issue? Prior to treatment there is a ...