Search found 475 matches

by eric593
Sun May 03, 2015 9:47 am
Forum: General Discussion
Topic: c-reactive protein and differential wbc
Replies: 7
Views: 1941

Re: c-reactive protein and differential wbc

My c-rp and blood panel have been normal every single time tested, and I've had very active MS for decades. I was told recently when investigated that my arteries were "pristine".

IMO, the test is not so much informative for an MS diagnosis if you're looking for indications towards that.
by eric593
Sun May 03, 2015 9:41 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: The biotin trial results are out
Replies: 121
Views: 27079

Re: The biotin trial results are out

lyndacarol wrote:
1eye wrote:BTW Suzanne (She Who Must Be Obeyed) points out that MedDay is an English/French pun (M'aider).
Thanks to Suzanne for pointing this out! How clever! This never occurred to me.
I don't understand????
by eric593
Sun Mar 01, 2015 1:38 am
Forum: General Discussion
Topic: Having trouble finding "the truth" about MS statistics
Replies: 4
Views: 1090

Re: Having trouble finding "the truth" about MS statistics

Here is a study reviewing original meds on MS progression to SPMS: http://www.ncbi.nlm.nih.gov/pubmed/23124789 Mult Scl Epub 2012 Nov 1. Time to secondary progression in patients with multiple sclerosis who were treated with first generation immunomodulating drugs. Tedeholm H1, Lycke J, Skoog B, Lis...
by eric593
Sun Mar 01, 2015 1:25 am
Forum: General Discussion
Topic: Having trouble finding "the truth" about MS statistics
Replies: 4
Views: 1090

Re: Having trouble finding "the truth" about MS statistics

This was published recently, it might answer some of your questions, although it doesn't account for any impact that meds may have. http://www.ncbi.nlm.nih.gov/pubmed/25712541 J Neurol. 2015 Feb 26. [Epub ahead of print] The outcome spectrum of multiple sclerosis: disability, mortality, and a cluste...
by eric593
Sat Feb 21, 2015 7:38 pm
Forum: General Discussion
Topic: 5 days of IV Steroids: Still no improvement
Replies: 12
Views: 1391

Re: 5 days of IV Steroids: Still no improvement

IVSM only reduces inflammation and thereby hastens recovery from an exacerbation, it doesn't change where a person would have ended up anyway. It doesn't change the outcome: http://www.ncbi.nlm.nih.gov/pubmed/15327039 As you can see from this evaluation, not everyone responds to it either (I don't)....
by eric593
Wed Dec 24, 2014 5:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS and vascular problems associated
Replies: 5
Views: 1246

Re: MS and vascular problems associated beyond any doubt

I'm sorry, but to find an association "beyond any doubt" between MS and vascular problems in a study whose background suggests conflict between any association and whose conclusion clearly states that their review is confined to MSer's in a small number of regions , seems to me to be over-reaching a...
by eric593
Wed Dec 24, 2014 5:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Treatment for Primary Progressive MS?
Replies: 22
Views: 2894

Re: CCSVI Treatment for Primary Progressive MS?

In reference to the link that Cece provided, I don't even think the Albany group is performing CCSVI procedures any longer, I can't find any reference to CCSVI on their website anymore. I believe, while they may have found short-term improvements in some of their patients early-on on self-reported m...
by eric593
Wed Dec 24, 2014 3:16 am
Forum: General Discussion
Topic: I need urgent help. I am considering suicide.
Replies: 18
Views: 3649

Re: I need urgent help. I am considering suicide.

You want to give in because of what soimething "might" be like, without ever giving yourself a chance to know what it IS like or test your own strengths? We'd all be gone if we wrote ourselves off before finding out what life IS like, because life is difficult at times for everyone. And what it look...
by eric593
Mon Jul 21, 2014 11:30 pm
Forum: General Discussion
Topic: Amputation for foot drop?
Replies: 18
Views: 3693

Re: Amputation for foot drop?

I don't think amputation is medically indicated for foot drop. I doubt this is even an option, you couldn't find a surgeon who'd agree to do this. If the Bioness must be worn with shoes, there's another one, I think WalkAide, that doesn't need shoes. I agree with Geoff that it could be upper nerves/...
by eric593
Sat May 24, 2014 10:53 pm
Forum: General Discussion
Topic: EPSONSALT FLOATATION THERAPY-ANYONE EVER TRY IT?
Replies: 5
Views: 1096

Re: EPSONSALT FLOATATION THERAPY-ANYONE EVER TRY IT?

I saw this on tv too. I've never tried it, but I'd like too, it looks interesting. Can't hurt.
by eric593
Thu Apr 03, 2014 3:07 pm
Forum: Medical Marijuana
Topic: CBD Marijuana Capsules
Replies: 54
Views: 12559

Re: CBD Marijuana Capsules

That's great that it appears to be helping you. How much do you use, and do you have a preferred method of ingestion as to its impact or duration of effectiveness? Do you have an AFO or FES to help when your leg begins to drag? Your muscles seem to have retained their mass if you rather suddenly are...
by eric593
Wed Apr 02, 2014 6:01 pm
Forum: General Discussion
Topic: Positive results - chronic toxicity study of ATL1102 in MS
Replies: 2
Views: 882

Re: Positive results - chronic toxicity study of ATL1102 in

Is it China that is using monkeys in this study? I didn't think anyone used monkeys anymore in labs, I thought it was no longer permitted.
by eric593
Sun Feb 16, 2014 11:53 am
Forum: General Discussion
Topic: Need advice on my NUCCA experience, please.
Replies: 22
Views: 2858

Re: Need advice on my NUCCA experience, please.

When I try something new, I tend to give it a time deadline before I make any judgments about it, say 6 months or a year. That way, I'm not having unrealistic expectations and critical review after each treatment, I don't think that's giving a new regime a fair shake. Sometimes, I will keep a runnin...
by eric593
Wed Feb 05, 2014 5:53 pm
Forum: General Discussion
Topic: PwMS in placebo end of trials are having less relapses
Replies: 17
Views: 2193

Re: PwMS in placebo end of trials are having less relapses

People in the placebo arm could be having less relapses than they did in the placebo arm earlier because with the internet and informative information much more freely available, people could be much more afraid of MS's trajectory and their prognosis than beefore when almost everything we knew about...
by eric593
Wed Feb 05, 2014 5:40 pm
Forum: General Discussion
Topic: I have no problem with heat
Replies: 7
Views: 920

Re: I have no problem with heat

None of the symptoms are "all or none" or necessary for an MS diagnosis. There is no symptom that 100% of MSer's have. I didn't develop heat sensitivity for more than a decade with MS. Some never develop it.

You're lucky in that one respect, that's all. Enjoy your hot baths, saunas and jacuzzi!