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nobody is trolling and nothing is coincidental and cruel. I talked to Dr.Hammond when I was pregnant in december, I had a 8 month attack. He is aware of my situation but I was pregnant at the time, I didnt get my MRI until 2 months ago I waited and waited and waited like everyone else, I even called...

too bad, you could go by the hysterical family. :) I got a call back this morning, so I am going in June. My sister in law got a call back before mothers day, she said she is going sometime in august, I dont know the day. You have to realize there seems to be a lot of people who want this treatment....

Are you on any anti depressants currently?

Part of me is anxious to get this done asap, another part is more than willing to wait. I guess I see it as, I am not dying of cancer. MS sucks sure! but I am doing fine everall, my legs seem to get getting funky which is a concern but I just had a baby.. yep the good ole post partum flair. I guess ...

yep, same exact thing happened to me. Guess we just have to wait. At least we can enjoy the summer and recover in the fall.

I asked because EBV lives in b cells forever once it has been contacted. Since a considerable amount of MS research seems to keep looking at that, I wondered if the EBV is gone as well and thought it might ossibly be another reason for effective therapy My bias is that MS is probably not autoimmune...

Lyon wrote:

mrhodes40 wrote:since we are on the subject, are the b cells killed in treatment as well? just curious.

Yes, all the white blood cells are killed in the process. T and B cells.
Bob

Is that a good thing? What is the importance of theT and B cells?

They know I am serious, I talked to Dr. Hammond ( for about an hour and a half! ) and I have talked to Carrie 3 times. First time was when she asked for more MRI's, they wanted my history. The last 2 times I asked about my status and she said they definatly want to see me and someone would call in w...

I filled out some paper work late afternoon for tysabri. Since I have MS symptoms creeping back in on me, weak legs etc... I cant wait for treatment at JH. That and the fact nobody is calling me to set up an appt even though I was told they wanted to see me. I realize they are busy, not their fault....

Thats why I am puzzled that they want to see me, I asked Carrie twice and talked to Dr. Hammond once. ButI have yet to recieve a call for an acutal appt. That's why I hope I dont invest the money to fly up there just for nothing. :? Although I wouldnt have to worry about debating on having the treat...

I dont have any enhanced lesions and they want to talk to me.

I thought of that, but I realize they are busy with other people. it is frustrating waiting but on the other hand i know I am not the only person they are trying to work in. There may be people that are worse off that need treatment before me. I am patient, it's hard sometimes, but i understand if t...

I called twice and talked to Carrie. Both times she told me som,eone would be calling me in 2 weeks.. well the first time I waited 3 weeks called he ragain, She said some wil be calling, they definatly want to see me i said ok. Now it's been another 2 weeks. Iam sure they will call, not sure who is ...

I havent heard back from anyone tey to set up an appt. I talked ti Carrie twice and she said they definatly want to see me. That was her exact words, but of course that doesn't mean I will qualify. It's been about 8 weeks now. I am in no hurrym, honestly I rather enjoyt the summer and lay in the sun...

Per protocol you have to have someone of age with you 24/7 for 25 days you are there. The kids can be there I'm sure but they need to know Mom is gonna suck for a month. They wont let you do this alone? I was thinking and didn't want my husband with me, I rather he stay home and watch the babies. I...