Thanks a lot for your answers.
All the best
Search found 15 matches
- Fri Apr 15, 2016 7:52 am
- Forum: General Discussion
- Topic: MS hereditary from father to children ?
- Replies: 6
- Views: 2511
- Wed Apr 13, 2016 8:38 am
- Forum: General Discussion
- Topic: MS hereditary from father to children ?
- Replies: 6
- Views: 2511
MS hereditary from father to children ?
Hi, I'm living in France. I'm father of 3 children born in 1988, 1990 and 1995. I'm 56. I have got MS in 2001. I'm now SPMS One of my daughters is stressed to have MS and she finds every month a new (imaginery ?) symptom. Have you heard some cases of hereditary MS from a father to her daughter ? Tha...
- Sat Apr 30, 2011 11:53 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
- Replies: 158
- Views: 33162
- Fri Jan 28, 2011 1:54 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2349059
Dr Sclafani, i coming back with more informations. I made in France several exams with following conclusions : Doppler protocol Zamboni : Diagnose CCSVI with two criterias : Left jugular internal: no flow and refluxes in valsalva, but no stricture Left jugular right : high flowrate Vertebral left : ...
- Wed Nov 03, 2010 1:48 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2349059
All i see at that link is a single image of an MRvenogram. It does not show much of interest and does not visualize the more essential area where most of the stenoses occur so it is not possible for me to advise you since i do not have sufficient informoation to help you. Neither the clinical infor...
- Mon Nov 01, 2010 12:49 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2349059
In France
What is the state of Doppler ultrasound in france? Are there centers that state that they perform the Zamboni protocol. I look forward to hearing more about the state of ccsvi in france. perhaps then I can give you an opinion. best s Dr Sclafani, thank you for your answer. In France, as I know, onl...
- Sun Oct 31, 2010 5:17 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2349059
Dear Dr Sclafani, I'm living in France. I would like to get your opinion on my CCSVI. Please find here a picture : http://ivcc.fr/images/ccsvi_jcm.jpg One doctor said I maybe have a TOS Another didn't want to make the liberation treatment, because too risky, my stenosed vein was due to a congenital ...
- Wed Oct 20, 2010 1:19 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 748080
Dear Doctor, thanks for these informations. I understand a little bit better my problems. I forgot to tell about an other symptom : Very rarely, when I am lying and I am making an effort to stretch a leg, I have a pain, which disappears quickly on the back of my skull, as if the pressure increased a...
- Tue Oct 19, 2010 12:59 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 748080
Dear Dr Flanagan, many thanks for your reply. I don't know what to tell you more about my symptoms .. For several weeks, I have the feeling to sleep more and more twisted. I have difficulty extending the fingers of my left hand, but remain flexible. My feet are cold and insensitive. Find here my sca...
- Tue Oct 19, 2010 5:18 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 748080
CCSVI - CTOS
NINOU, what are your signs and symptoms? Do you get migraine-like headaches? How is your balance? What other tests have been done? I don't have any migraine. No problem of balance, but I can't stand up alone. My left arm is very weak, I can not lift it alone over 45 °. Disappearance of the pulse wi...
- Mon Oct 18, 2010 12:52 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 748080
TOS & CCSVI
Dear Doctor, I would like to know what you think about this MRI : http://ivcc.fr/images/ccsvi_jcm.jpg. I'm 50 with a secondary progressive MS , edss from 2 to 7 in 5 years. One doctor has detected a Thoracic Outlet Syndrom. What is it possible to do ? liberation treatment ? surgery ? Other ? I'm liv...
- Sun Mar 30, 2008 12:26 am
- Forum: Low Dose Naltrexone
- Topic: LDN and primary progressive MS
- Replies: 9
- Views: 8961
Multicenter Clinical Trials of LDN for MS
Thanks a lot. do you the date of this article and studies ? Mid April 2008 ? Italian clinical trial of LDN and PP-MS: http://www.unitedspinal.org/publications/action/2008/02/25/multicenter-clinical-trials-of-ldn-for-ms/ More details will be published in the mid of April in Chicago (at the 60th annua...
- Sun Mar 16, 2008 2:08 pm
- Forum: Aimspro
- Topic: Aimspro in France ?
- Replies: 0
- Views: 7123
Aimspro in France ?
Can we try it in France ?
- Sun Mar 16, 2008 2:05 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Tysabri and progressive MS
- Replies: 8
- Views: 5087
Tysabri and progressive MS
I have a progressive MS and I 'm really sad when french neuros said to me Tysabri is not for you.
Is there anboby treated with Tysabri and having progressive form ?
Help !
Is there anboby treated with Tysabri and having progressive form ?
Help !
- Tue Mar 11, 2008 1:10 pm
- Forum: Low Dose Naltrexone
- Topic: LDN and primary progressive MS
- Replies: 9
- Views: 8961
LDN and primary progressive MS
Hello everybody ! I'm living in France and I have a primary progressive form of MS. I would to know if anyboby on this forum has used LDN with a progressive MS. It's very difficult to get a such information on the french forum. I already have tried all treatments like betaferon, endoxan and mitoxant...