This Is MS Multiple Sclerosis Knowledge & Support Community

Hello all, I haven't really been on here for a while. Mostly because for the past two years my symptoms had quieted down and I was busy living an active life. I've been in the campath study for three years now. As I'd hoped for, I responded pretty well to the first two doses; (well not to the actual...

I have in IV in my right wrist, so it is hard for me to type. Therefore, I not sure how long this post will be. Yesterday the infusion went ok. Although, I went into vagus shock during the IV insertion and passed out ( my blood pressure also dropped in half). But after that is was pretty smooth sail...

Well Kristin and I go for our second dose of Campath tomorrow. It has almost been one year to date since our last infusion. Our MRIs showed good things. No progression in mine, and I think Kristin's even showed some improvement. It has been stressful trying to prepare for tomorrow. In fact , Kristin...

Dear Grump, The actual campath infusion was not fun as you can tell by my post, and while my main goal of joining this forum was to give an honest account of the experience, you have to read all of the posts to get real perspective of experience as a whole. Some people had no issues what so ever wit...

I am actually pretty happy with decision to try the Campath infusion already. However , with any treatment there are pro and cons. My quality if life has improved in the following ways. I don't feel like I have the flu all the time, like I did with the interferons ( constant headaches, body aches, a...

Well it has been 8 months since my first campath infusion. I actually have been feeling pretty good lately. I can't say it's a miracle drug or that it has repaired any damage so far. Although, some days my eyesight seems a bit better. My general energy level is really pretty good and I seem to be ab...

Hi Freiguy, I am not sure of my exact white blood count, my doctor focuses more on my platelet count ( wait, are they the same thing? I get confused) Anyway I do know that on my first month visit my platelets were 247,000. I know my friend's count was much lower though. Hers was closer to 180,000. W...

Well yesterday marked the five month date of my first Campath infusion. I wish I had more to report about how I feel, but it changes from day to day. I definitely feel the long term effects of the treatment. My hair has not recovered from the infusion. It used to be very healthy and shiny where as n...

Dear Caroline, First, I am so glad you ended up in the study and that things went so well. I also remember meeting you. I hope that seeing Kristen and myself , as well as finding this site, helped you to make the best decision for yourself. It nice to know that Kristen and I are no longer in this by...

This is the only thing I could find thus far about the Fingolimod deaths...

http://fty720.blogspot.com/

I believe the drug is Fingolimod. I don't think the deaths have been publicly released yet , they just happened last week. However my doctor is also participating in that study, so that is how he knew. Both patients who died had herpes ,I believe. I think they believe it is linked to that. Apparentl...

Well as it was our three month check up yesterday, so I decided to post a blog about our progress. Kristin and I haven’t had much of a chance to really talk lately, so most of it will be from my experience. My body is slowly healing. As far as how I actually feel in general. I feel better. I used to...

where to begin? Well physically things are okay. I am definitely having a flare up. I guess the fact that I expected it, makes it a little easier to swallow. My flare ups are almost always centered around Optic Neuritis. And for the past week, my vision has been its worst since my diagnosis. Usually...

well, I am not going to lie. The whole Campath experience was worse than I expected. By the fifth day, Kristin and I were just over the whole experience. In fact we were so done, that our nurse asked if we were mad at her. I eventually got the same rash as Kristin. Not as bad though. My major thing ...

Well we didn't get to update yesterday because it was a rough day. It was suppose to be our short day. Last day of steroids, two hour drip. It did however not work out that way. I started the day off in a horrid mood. Was it lack of sleep or roid rage? Not sure. By the time I got to the clinic to st...