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I wonder what the lemtrada protocol will be for checking ITP. In the study, which I've been in 4 years now, it's a monthly blood draw. I'm over it ! Def check with your neuro @ pseudo relapses. At one point, discussion was that it be a 5year dosing, but I got 3, 3 years in a row, the last one being ...

would you mind sharing the name/info on the MS-woman's issue doctor you mentioned in the pacific northwest? thanks!

Aspirin is fine w/ the campath. (81mg aspirin is sufficient for anti-coagulation) I've had 3 doses and have 2 stents. I dont know what the recommendations for lemtrada will be, but for the clinical trial, our blood is tested every month for ITP. I'm browsing the boards this evening looking for pregn...

it sounds simple but this is what "they" say: when you enter the vein, it's response is to naturally close up. there's even a medical term "intimal hyperplasia" it just happens, not because of a doctor's skill level. there aren't good numbers, data, etc; because noone's doing a '...

It's been a year since this topic has been updated. Thought I'd say that since then, I did get treated for CCSVI (4x to be exact) and am now ready for another campath dose. Yes cam path made me feel pretty bad for up to 3 months afterwards but then it goes away and life goes back to "normal&quo...

Stay local! Dr. Montague @ St. Joseph's has treated me several times and is very good at follow up care. Best of luck

as for how I'm feeling, it's the usual MS story, some days good, some days bad. I can still walk, but not very far. I'm sure that if it were not for both Campath and 2 stents, I wouldn't be walking at all. The neuropathy that disappeared for about a year has returned. But it's summertime in Florida,...

I'm headed in for round 3, part of phaseII CareMS study. it's been 2 years since my last infusion, they're (genzyme) letting me get another dose as part of the extension study. The news coming out from genzyme is very promising. I want to know the total # of people they are using to get these percen...

Thanks so much for the update. I'm so sorry to hear, keep us posted! How are you now? I don't know @ Dr. Beer or fertility autoimmune issues. Are they campath, or ms related...or a thought on causes of miscarriage being that momma's immune system doesn't recognize baby? Thanks, Kristin. (2 high dose...

I believe the care ms 2 study had an option for men to be checked. I have not heard any results from this from any trial participants. When I was fishing here for info on female fertility, no men offered up their results. Perhaps they opted out of this portion of the trial?

I had positive TPO antibodies in the beginning (2008) and haven't had any thyroid issues.......yet

you're very welcome. I also find much comfort here.
Remember to take it with a grain of salt
Now share your story for us as it unfolds!

Does campath really cost $18,000 and/or did your insurance pay?

Thanks for commenting and I wish you all the best!

I, too, got the high dose (25mg x2 doses) So far no serious tx related problems, but I know I am at a higher risk for thyroid since they screened for TPO antibodies, and i was positive, so I signed I knew I was at a higher rate for this. Also, I fear ITP! Haven't heard from fellow TIMS-Campath parti...

it's been 2 years/2 infusions of campath. kept the disease from a rapid decline to a slower steady decline, therefore good per my docs. all written up on this forum :) i'm part of those "good" statistics that mendesnelson posted. see how it's a stock quote article, and didn't give the rese...

The stats have come out very good for Campath. Not much activity here on the campath forum! I hear that 1 treatment with campath costs $18,000! How long before it will be available to everyone? I couldn't stand to see 0 replies on your post. Thanks for keeping the forum up to date! ccsvi alone won't...