This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Veronika,

Side effects vary from mild to severe on steroids. Here is a link to help clarify them for you.

http://www.nationalmssociety.org/about- ... index.aspx

Good luck.

Hi NHE,

Lol, I knew that. Boy was my brain farting yesterday.

For some strange reason I thought she was talking about those predizone dose packs. But then when I reread her note it was clear she wasn't.

Oh well, thanks for the heads up. As you can see I corrected my note.

Hi Veronika, I was told that steroids and Tysabri don't mix. Your doctor must feel that Corticosteroids are okay to take otherwise he/she would not have suggested it, but I would certainly still question him/her about it. I use the higher dose (1,000 mg) Sol-u-Medrol for my relapses. Good luck with ...

Hi Belge, I just had my 1st infusion of Tysabri on 4/15 myself. My side effects have included nausea and fatigue but no worrsening of other symptoms. Have you called your doctor or infusion tech to ask about your symptoms and if they're normal? From all that I have read and heard you should not be g...

I just had my 1st infusion & my co-pay was almost $500. Since I only have Medicare & they cover 80% that would put Medicare's negoiated price at $4,500.

Any way you look at it it's quite expensive.

Cherie

Thanks for the welcome Bob.
I hope your wife is doing well in the clinical trial.

Cherie

Doctor Name: Steven Glyman
Doctor Location: Las Vegas, NV
Doctor Contact Info: UNIVERSITY HEALTH SYSTEMS, Suite 220, 1707 W Charleston Blvd., Las Vegas, NV 89102, 702/671-5070, fax 702/385-3932, or www.uhsnevada.org

:D Hi Everyone, My name is Cherie, I'm 54, married, 3 children, 3 grandchildren, & 2 adorable blk/wht Shih Tzu's. I was diagnosed with MS in 1994, but doctors say you can easily tack on another 10 yrs to that diagnosis. Initially I was given the RRMS diagnosis, but that changed in 1999 to WRRMS....