Search found 22 matches
- Sun Jan 01, 2012 6:31 pm
- Forum: General Discussion
- Topic: On what basis did your doc diagnose you?
- Replies: 18
- Views: 3862
Re: On what basis did your doc diagnose you?
My neuro really couldn't detect any abnormality from my MRI's but he was not an MS specialist. I had a spinal tap and it was conclusive.
- Sat Apr 11, 2009 6:52 pm
- Forum: Copaxone
- Topic: Copaxone for ppms? (also posted in general disscussion)
- Replies: 10
- Views: 7200
I have PPMS and have also been recommened for Copaxone in tandem with Novantrone treatment. My Dr. Sipe, does alot of reaseach and apparently has had some luck with this combo treatment. I said what were the numbers? (excel geek, sorry) 75 out of 100 had some positive outcome, from improvement in sy...
- Fri Apr 10, 2009 7:39 pm
- Forum: Novantrone
- Topic: Novantrone questions
- Replies: 6
- Views: 8809
Update: just finished treatment #3. The treatment must be cumlative. I do a blood CBC test about 10-14 days after the treatment to check the impact to my immune system. Treatment #2's blood work showed my immune system really took a dive. So much so, that before Treatment #3 they made me do another ...
- Wed Mar 18, 2009 7:38 pm
- Forum: General Discussion
- Topic: PLEASE HELP I IAM SO SCARED
- Replies: 247
- Views: 43825
- Tue Feb 10, 2009 9:18 pm
- Forum: Novantrone
- Topic: Novantrone questions
- Replies: 6
- Views: 8809
I did my first Novantrone treatment on Friday, Feb. 6. Went well, minimal side effects. The plan is to have one treatment for the next two months then start Copaxone. The combo of the two may suppress my immune system enough to keep the MS from progressing. So I am mushing forward... Chemo is just a...
- Fri Aug 15, 2008 4:44 pm
- Forum: General Discussion
- Topic: Provigil for fatigue
- Replies: 12
- Views: 3679
- Tue Jul 15, 2008 7:01 pm
- Forum: General Discussion
- Topic: Miscarriage
- Replies: 9
- Views: 2950
- Mon Jul 14, 2008 6:37 pm
- Forum: General Discussion
- Topic: Autopsy
- Replies: 33
- Views: 6752
- Thu Jul 03, 2008 7:27 pm
- Forum: General Discussion
- Topic: does rrms lead to ppms?
- Replies: 16
- Views: 4622
- Wed Jul 02, 2008 9:31 pm
- Forum: General Discussion
- Topic: Support Group?
- Replies: 9
- Views: 2575
I think it therapeutic to be involved in a support group. Yes, there will always be whiners, but what can you do? I go to a group and we have one who always pipes up about specific issues like no one else has had difficulties. It is a bit tedious but the conversation moves on and luckily this person...
- Wed Jul 02, 2008 9:24 pm
- Forum: General Discussion
- Topic: PPMS - does it always mean the patient will end up bedbound?
- Replies: 12
- Views: 4159
There is lots of hope. I too got dx'd with PPMS. I immediately started the Swank diet. You can look it up on line, but basically its pretty radical. Has it helped? I think so. I have less numbness in my feet which have been numb since 2006. I take Provigil for the fatigue, which has helped a bunch. ...
- Tue Jun 24, 2008 7:12 pm
- Forum: General Discussion
- Topic: Anyone done Rituxan?
- Replies: 1
- Views: 2044
Anyone done Rituxan?
What were your results? did your insurance pay? Did it stop your progression?
thanks
thanks
- Fri Jun 06, 2008 6:04 pm
- Forum: General Discussion
- Topic: How do you tell your co-workers? Or do you?
- Replies: 31
- Views: 7235
- Sat May 24, 2008 3:26 pm
- Forum: General Discussion
- Topic: Experience Project
- Replies: 5
- Views: 3294
- Mon Apr 28, 2008 7:03 pm
- Forum: General Discussion
- Topic: Concrete sandwich and concussion
- Replies: 12
- Views: 3257
This makes my head hurt just reading this. I had a concussion about 5 years ago from slipping on algae in a stream. Went back full on and hit my head on a rock...I felt like one of those cartoon characters with stars floating around my head. Nausea, dizzy, pain...Took me about 3 weeks to get back to...