Search found 255 matches

by newlywed4ever
Tue Aug 06, 2013 6:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

I had asked you whether small IJVs can be catheretized earlier. Today, I'm reading an article that claims small IJVs are related to MS severity. What are your thoughts? http://www.msdiscovery.org/news/new_findings/6941-small-internal-jugular-veins-linked-severe-ms?&utm_source=facebook&utm_medium=soc...
by newlywed4ever
Mon Aug 05, 2013 4:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

Can IJVs be too small for angioplasty?
by newlywed4ever
Wed Apr 24, 2013 11:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

I was tempted to see if Dr Arata could get through my occluded LIJV and am ever grateful for this thread. I'm still looking for answers but will wait for the Dr. Sclafani "stamp of approval" before pursuing new avenues.... please, i am not the "know-all of ccsvi or ms". I am happy to give general o...
by newlywed4ever
Tue Apr 09, 2013 3:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

I was tempted to see if Dr Arata could get through my occluded LIJV and am ever grateful for this thread. I'm still looking for answers but will wait for the Dr. Sclafani "stamp of approval" before pursuing new avenues....
by newlywed4ever
Wed Mar 06, 2013 5:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

Happy Birthday and I hope we all get to see you enjoy many more!
by newlywed4ever
Sun Jan 27, 2013 1:37 pm
Forum: Gilenya
Topic: Warning! Cancer after 6 months of taking Fingolimod(Gilenya)
Replies: 24
Views: 18677

Re: Warning! Cancer after 6 months of taking Fingolimod(Gile

Lvjay, thank you for sharing. Info from our peers is invaluable. Positive thoughts & prayers to you.
by newlywed4ever
Mon Oct 29, 2012 6:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

in·tus·sus·cept·ed, in·tus·sus·cept·ing, in·tus·sus·cepts
To take within, as in telescoping one part of the intestine into another; invaginate.

I can't think of any other being that has motivated me to look up definitions of words ;)

Just saw a fb photo of Brooklyn Park Carousel...sad. Stay safe.
by newlywed4ever
Sun Oct 28, 2012 8:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

I'm here - loyal but quiet.
by newlywed4ever
Thu Jul 26, 2012 6:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

Thanks for reposting the link, NZer - I missed it the first time around and now look forward to discussion.
by newlywed4ever
Sun Jun 03, 2012 6:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

drsclafani wrote:There are many people on this board that are passionate about life. Many just choose to read rather than write


You took the words right out of my mouth.
by newlywed4ever
Sun May 06, 2012 3:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 119685

Re: Cece's turn

I think we can all remember the day we first heard of CCSVI. The day before that, we may have had unspecific hope. Then we delved further into knowledge and some of us underwent the procedure(s) - which gave us specific hope. Our CCSVI hopes have waxed & waned depending on personal experience but I ...
by newlywed4ever
Wed May 02, 2012 2:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 119685

Re: Cece's turn

Cece, just want to let you know that I continue to follow posts here on TIMS. I don't often post but consider you and Dr Sclafani my mentors/teachers. Do keep us posted and, as always, I wish only the best for you.
by newlywed4ever
Thu Mar 22, 2012 4:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

Healing, positive energy is directed your way.
by newlywed4ever
Tue Mar 13, 2012 6:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are your hands and/or feet cold?
Replies: 29
Views: 7487

Re: Are your hands and/or feet cold?

Thanks for mentioning hoarseness and the corresponding link. I, too, get hoarse quite quickly (and don't even attempt to sing anymore - yikes!). I also have one cold foot most of the time and started using the foot warmers this winter - my foot will actually get hot after an hour or so...
by newlywed4ever
Mon Jan 30, 2012 7:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620657

Re: DrSclafani answers some questions

:) The case is one of the first returns in a search on "heroic technique interventional radiology." (For anyone else reading the case, as you can see it's nothing to do with CCSVI, but a pelvic injury case, where every time the good doctor unclamped the vein he was working on, the patient bled and ...