Search found 153 matches
- Sat Mar 03, 2012 8:08 pm
- Forum: Introductions
- Topic: Belgium, 9 months after diagnose. trial ocrelizumab/Rebif
- Replies: 79
- Views: 32020
Re: Belgium, 9 months after diagnose. trial ocrelizumab/Rebi
Hi, I'm in the US (California) and started in the Phase III study of ocrelizumab vs Rebif. I had my first dose (well half a dose) on Wednesday. I ran a low grade fever started 40minutes into the infusion. I had my first "rebif" shot on Wednesday after the infusion. I take my second shot to...
- Fri Apr 29, 2011 8:36 am
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Hopkins video
- Replies: 23
- Views: 15601
Hi Linda, I did Copaxone after treatment, from June 09 to early January 10. then I stopped bc I knew I wanted to get pregnant. I am on nothing now still as I am breastfeeding the baby :) I need to contact the docs at hopkins and see if I will go back on copaxone for preventative measures when I'm do...
- Thu Apr 28, 2011 7:57 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Immunizations?
- Replies: 4
- Views: 6720
- Thu Apr 28, 2011 7:55 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Tysabri and Revimmune?
- Replies: 3
- Views: 6382
- Thu Apr 28, 2011 7:51 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Hopkins video
- Replies: 23
- Views: 15601
Good luck with whichever treatments you try. One HiCy patient on this board had a baby after HiCy, and she did it twice. Hi Steven and everyone - I am the person whom Steven was referring to. I had HiCy twice (July 08 and May 09). I am now approaching 2 yrs post hicy treatment #2. And knock wood (p...
- Mon May 03, 2010 10:26 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: 1 yr post HiCy (2nd round)...Great news!
- Replies: 6
- Views: 7824
1 yr post HiCy (2nd round)...Great news!
Well, this board is mostly "dead" now...but figured I'd drop a quick update in case anyone ever stops by. This week marks 1 year since I underwent a second course of HiCy. (first round 7/08, second 5/09). In this past year, I have not had symptoms or relapses.....prior to this, I had rela...
- Mon May 03, 2010 10:21 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: DENIED BY CHICAGO
- Replies: 2
- Views: 6541
- Thu Apr 01, 2010 7:56 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: cyclophosphamide for MS
- Replies: 28
- Views: 17749
- Thu Apr 01, 2010 5:09 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: cyclophosphamide for MS
- Replies: 28
- Views: 17749
Ami - I know from the outside it seems scary...but having gone thru it twice - it wasn't that bad at all. Not sure though what the heck the 14 day treatment is... HiCy is 4 days if in-patient chemotherapy. Then they release you to your home (or in my case, I was renting an apt in Baltimore near Joh...
- Wed Feb 17, 2010 9:13 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: GoodBye Tysabri Hello HiCy?
- Replies: 3
- Views: 6777
- Wed Feb 10, 2010 2:10 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: 3 month post hicy (round 2) update
- Replies: 8
- Views: 8560
Carrie Trekker is no longer at Hopkins, neither is Dr. Kerr.
I would try Dr. Edward Hammond ehammon5@jhmi.edu
Good luck,
~Keri
I would try Dr. Edward Hammond ehammon5@jhmi.edu
Good luck,
~Keri
- Tue Feb 09, 2010 11:00 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: 3 month post hicy (round 2) update
- Replies: 8
- Views: 8560
I haven't been around to update.... But my downslide was VERY brief...and could have just been caused by stress, working too much, and possibly getting sick. Regardless, my MRIs have been clean - meaning no active lesions and no new lesions. I consider the HiCy a success and am thankful to have don...
- Tue Feb 09, 2010 10:55 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: Chrishadms you tube video and facebook video
- Replies: 11
- Views: 8938
- Sun Aug 30, 2009 8:43 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: how long did it take for some of you to get in JH??
- Replies: 5
- Views: 7164
- Mon Aug 03, 2009 11:16 pm
- Forum: Revimmune (Cyclophosphamide, Cytoxan)
- Topic: 3 month post hicy (round 2) update
- Replies: 8
- Views: 8560
3 month post hicy (round 2) update
Hi again everyone, Well, it is with sadness that I report that things have been on a downslide for the last two weeks. My previous update, I was on top of the world and living without much limitations or restrictions. In the last week or so, I have become symptomatic to a somewhat severe degree. To...