Search found 65 matches
- Thu Mar 09, 2017 12:39 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Apology needed from Cheerleader and Cece
- Replies: 54
- Views: 12283
Re: Apology needed from Cheerleader and Cece
I for one vote that no apology is warranted. As if one poorly executed study is the death knell of anything is absurd. I have MS and had the procedure. I never assumed it a cure for MS and it wasn't. But it did improve my quality of life like no MS drug has even come close. Trolls will say it is pla...
- Wed Mar 08, 2017 8:51 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: UBC Canada CCSVI clinical trial results coming March 8th
- Replies: 3
- Views: 1870
- Tue Nov 10, 2015 12:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Study suggests MS not linked to CCSVI
- Replies: 9
- Views: 2674
Re: Study suggests MS not linked to CCSVI
Garbage in, garbage out. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4321389/ appears to be a review of other studies. As we have batted around many times, many of these "studies" were flawed in some way. I had treatment a few years ago and there is no doubt it has helped. That is not my o...
- Thu Oct 29, 2015 11:11 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A Single Drop of Blood creates MS
- Replies: 25
- Views: 5949
Re: A Single Drop of Blood creates MS
I think our big mistake was to present the CCSVI research as a research for a cure, instead of showing it as a research about the etiology. MS attracts a lot of miracle sellers, and only because of that, the whole concept was dismissed without further investigation. Time will put it the theory back...
- Fri Oct 23, 2015 1:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A Single Drop of Blood creates MS
- Replies: 25
- Views: 5949
Re: A Single Drop of Blood creates MS
The writing is on the wall. As always, I'll keep on promoting the story to anyone that will listen. It is tiring though. Its seems so clear that there is something to this and there is ample research that should be getting Neurologists attention. Shouldn't scientific curiosity, at the very least, ge...
- Tue Oct 20, 2015 11:36 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A Single Drop of Blood creates MS
- Replies: 25
- Views: 5949
Re: A Single Drop of Blood creates MS
I wonder if the issue is a lack of patient interest. I agree there is more than “something” to the vascular system. So much so that I went to San Diego a few years ago and was treated. Since that time, my life has changed drastically for the better. It is the only thing that I have ever done that re...
- Thu Oct 06, 2011 8:08 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Multiple Sclerosis drug Tysabri 'reduces MS relapses'
- Replies: 3
- Views: 2399
Re: Multiple Sclerosis drug Tysabri 'reduces MS relapses'
If all of the current drugs are 30+-% effective, are they doing anything at all? Might just be the variability of MS. Seems to be too much of a coincidence for all to have the same effectiveness. I guess all of the drugs could be targeting one aspect of how MS works its magic. My neurologist says th...
- Mon Aug 08, 2011 3:18 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: ccsvi latest news/essential health clinic
- Replies: 8
- Views: 2925
I think this is it http://brain.oxfordjournals.org/content ... b9cf76831a
- Sun Jul 31, 2011 7:29 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 2 new reviews by Dake and Siskin et al in Endovascular Today
- Replies: 22
- Views: 5527
- Sun Jul 31, 2011 2:05 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: 2 new reviews by Dake and Siskin et al in Endovascular Today
- Replies: 22
- Views: 5527
- Wed Jun 29, 2011 5:06 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: status post ccsvi questions
- Replies: 8
- Views: 2692
- Wed Jun 29, 2011 2:19 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Monkeys with MS
- Replies: 16
- Views: 4001
- Wed Jun 29, 2011 2:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Monkeys with MS
- Replies: 16
- Views: 4001
- Wed Jun 29, 2011 12:26 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Monkeys with MS
- Replies: 16
- Views: 4001
Monkeys with MS
Maybe the model we have been waiting for: http://www.sciencedaily.com/releases/2011/06/110628163321.htm ScienceDaily (June 28, 2011) — Researchers at Oregon Health & Science University have discovered a naturally occurring disease in monkeys that is very much like multiple sclerosis in humans --...
- Wed Jun 29, 2011 9:59 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: status post ccsvi questions
- Replies: 8
- Views: 2692
I had the procedure at the beginning of June. I had 30%-40% in both jugs and 30% in the azygos(sp?) as well. I do not feel particularly different but have noticed changes. My twitching while sleeping is gone according to my better half. I’ll have to take her word since I am sleeping. I think I can f...