This Is MS Multiple Sclerosis Knowledge & Support Community

Have been away from forum for awhile, but, I have been taking copaxone for 2 years, now. I went off for awhile because of heart problems from novantrone. They wern't sure which drug was the cause. I do the injections every other day. I started out every day, but, retained water which led to heart pr...

I am going for my last treatment in two days. It has been a long two years and lots of ups and downs. I still get symptomatic just before the treatment, but, the Drs. say it doesn't work that way. I have talked to many others in different forums, that say the same thing. We will be very glad when it...

:D JUST CURIOS, HAS ANY ONE TRIED OR IS USING THIS 'NEW' TREATMENT? I AM SPMS AND ON NOVANTRONE, THIS, IF IT WORKS, SOUNDS A WHOLE LOT EASIER TO TOLERATE. THE DRS. ARE HAPPY I AM STABLE, BUT I HAVE NEVER RETURNED TO BASELINE AFTER THE LAST EXACERBATION. SOUNDS TOO GOOD TO BE TRUE. LET US KNOW, THANK...

:D I JUST READ YOUR POST ABOUT NOVANTRONE AND I AM CURIOUS, DID A NEURO SUGGEST IT? IT IS USUALLY THE LAST RESORT FOR AGGRESSIVE SPMS. NOVANTRONE IS NOT A CURE-ALL, IT STABILIZES, OR SO THEY SAY. I AM ON MY SECOND YEAR AND THE DRS. ARE SATISFIED THAT I HAVEN'T DECLINED ANY FURTHER. YOU PROBABLY DON'...

:D GOOD FOR YOU. I HAD ALMOST GIVEN YOU UP, TOO MUCH POLITICS, HIDDEN AGENDA, COMPLAINING, AND ANGER. THIS IS FOR SHARING INFO. I HAVE NEVER FIGURED OUT HOW SOME MS.ERS CAN TYPE SUCH LONG DIATRIBES. I HAVE THE USE OF ONLY THE RIGHT SIDE, SO, IT IS AN EFFORT TO TYPE. GOOD WORK, STAY WELL, THANKS, VIK...

:D THANK YOU FOR THE REPLY. JUST SAW THE NEURO AND HE SAID HE HAS ONLY ONE PATIENT ON LDN AND IT WAS NOT HELPING. HE LIKENED IT TO 'BEE VENOM'. WE DECIDED TO STAY WITH THE NOVAVTRONE FOR ONE YEAR AND IF THERE IS NO RESULTS, RETHINK. I'VE ONLY HAD 3 TREATMENTS AND GO NEXT FRI.. WE HAVE CHANGED TO TWO...

JUST FOUND THIS WEB-SITE AND SEE SOME FAMILIAR NAMES. I HAVE BEEN RESEARCHING LDN FOR MYSELF, BUT, I HAVE SPMS AND IN MY 6th MONTH ON NOVANTRONE. I AM FEMALE, SPMS, MARRIED, TWO KIDS, FOUR GRANDCHILDREN, THEY KEEP ME GOING. THIS SEEMS LIKE A GREAT SITE FOR INFO AND NOT TOO MUCH WHINING AND COMPLAIN...