This Is MS Multiple Sclerosis Knowledge & Support Community

Hey Robin how are you doing? I agree with you on this. I got in the trial right after I was diagnosed and so far so good.

This are going well for me on all fronts. There's not much to report which is a positive thing. I will be going for my three year mri soon and I am curious to see what it shows.

Hey guys - I haven't posted much here lately. The information looks encouraging. I hope everyone is doing well.

I am at month 21 in the study. After every blood draw I have called my study nurse to get my counts. I have kept a log of each month to see if the counts go up/down. Did your study site not give you the information as you went along?

I was told I had a high level of bilirubin about 20 years back. I was diagnosed with MS almost two years ago.

What do you mean your head feels like sh...?

Are you getting the second dose which is three days instead of five? Good luck with everything. Keep us posted on you progress.

I am 16 months into campath and things are well. I wish you the best. Keep everyone updated on your progress.

Welcome! I am at month 15 in the trial. So far things are going well for me.

I finished my second year of infusions in August. I had a slight hiccup during the second round but everything worked out. Things are going well at this time. Thanks again to Ian and Robin for the excellent information they have shared with me regarding their campath experience. I hope everyone is d...

I just talked to my doctor and I am getting discharged from the hospital. She spoke to Genzyme and other doctors involved in the study and the infusion #2 and #3 are a go. She wants to do it on monday and Tuesday but I am not sure I will be able to due to work commitments. If those days don't work o...

Thanks everyone. I will let you know what I find out later.

My doctor is calling the director of the CAMMS323 study this morning to apply for an infusion protocol deviation. She wants to continue with the final two doses early next week to fulfill the round two directive. She wants to do the IV steroid push over a bit longer time than just an hour and then p...

The infusion is off for tomorrow. My doc is speaking with Genzyme to see what the next course of action is.

Fred

Everyone, So much for a walk in the park. Things didn't go as well as planned. Started with the 1000 mg steroids. After that the campath started. Two hours in I got violent chills that racked my body. This lasted about 30 minutes then subsided. After the 4 hours of campath finished I felt really sic...