Search found 792 matches

by catfreak
Mon Jan 18, 2016 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 350
Views: 64875

Re: Notes from CureIous' at Stanford

Oh my Mark! Thank you for sharing this with us. I get an MRI every six months but that is basically it. I go to my Neuro Friday and I am going to ask him if he can see them on the MRI Scan. Prayers for you! Please keep us posted.
by catfreak
Thu Apr 21, 2011 7:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Steve M - 18 months have passed
Replies: 9
Views: 2741

Joyce this is great news for you and Steve!! Tell him we are all rooting for more improvement!!

Keep up posted with more news.

Cat
by catfreak
Sat Jan 01, 2011 7:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 19803

Hi all, it's been a while since I posted anything. to Dr Sclafani: I can say MS tired for me is my husband having to make me get up and go to my desk ( I work from home) when I can hardly move. An sitting at my desk and crying because my brain will not allow me to think in any sort of orderly way. H...
by catfreak
Fri Oct 15, 2010 8:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My stents are fine at 1 yr
Replies: 6
Views: 1907

Rokkit, Glad to hear you had your 1 year appointment went well. I was suppose to go Oct 7th but my job ended and I had to get a new one and go to trying in Chicago for a week. I am trying to reschedule for November when my insurance goes into effect. We will see.. zero brain lesions is awesome!! I a...
by catfreak
Fri Oct 15, 2010 7:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HEADACHES AND CCSVI
Replies: 4
Views: 1951

Hi Sandy,

Just to let you know I had migraines along with my MS and it was unbearable somedays. The CCSVI treatment has made a huge change in my headaches. I still have headaches but not full dead on migraines and my life is much better since CCSVI.

Take care,

Cat
by catfreak
Sat Sep 11, 2010 8:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Treated for CCSVI almost a YEAR ago! Here's where I stand...
Replies: 23
Views: 4941

Hi Rhonda!!! :D :D :D Can you believe it's been a year!! My 1 year was Sept 2nd!! I am doing really good. Like you said doing things this year I could never have done a year ago. I had some numbness on my arms creep up on me last week that had been gone. When I get a headache it scares me but then I...
by catfreak
Sat Sep 11, 2010 7:32 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri drug holiday in multiple sclerosis poorly tolerated
Replies: 4
Views: 2392

I have been off Tysabri for 7+ months with no problem yet!!

Cat
by catfreak
Sat Sep 11, 2010 6:54 pm
Forum: General Discussion
Topic: IT IS A ROUGH DAY...
Replies: 15
Views: 2896

Hi Ppicklee,

Sorry to hear about your troubles, we all here can understand in some way how you are feeling.

I just wanted to say hello and hug to you..... And Jimmylegs is the best on vitamins and supplements. She helped me several times.

Cat :)
by catfreak
Sat Jul 17, 2010 8:54 pm
Forum: Daily Life
Topic: $tre$$
Replies: 27
Views: 4508

Crazy is right Jimmy! when we are in the MS situation we need whatever job we can get and work as long as we can. I find that we are workers!! and we want to work.

Hang in there girl!

Cat
by catfreak
Sat Jul 17, 2010 3:56 pm
Forum: Daily Life
Topic: $tre$$
Replies: 27
Views: 4508

Jimmylegs,

I am so sad to hear about your work situation. As smart as you are will find something. I remember being told I was over qualified for jobs. It is tough, you think they would want someone with experience!

You are in my prayers!

Cat
by catfreak
Tue May 18, 2010 9:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ALS
Replies: 17
Views: 4299

Billmeik,

I am so very sorry for your loss.

Cat
by catfreak
Tue May 18, 2010 9:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Catfreak's Update
Replies: 28
Views: 5651

I went to my Neuro today. He heard Dr Zamboni speak in Toronto and he was excited about how well I am doing. I am still his only stent patient but he has a patient going to Huntsville, AL to a Vascular Surgeon for angioplasty. He believes that patients need to get tested and treated for venous block...
by catfreak
Tue Apr 27, 2010 7:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I 'came out' at local NMSS dinner mtg tonite
Replies: 52
Views: 8565

Rose, I understand how you feel. If I did not have this full time job that I need badly, I would be finding a way to travel and talk CCSVI. I live in a very small town and it's like GREEK to those who don't know what it is. They just look at me like I am nuts. I don't even know how a person would st...
by catfreak
Thu Apr 22, 2010 6:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Kuwait didn't wait.....
Replies: 42
Views: 8242

This is so awesome!!

Cat
by catfreak
Sat Apr 17, 2010 5:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: This fence-sitter is finally going for a doppler!
Replies: 12
Views: 1934

Hi WW!!

Down here in Mississippi we would say you were straddling the fence...

Glad to hear you have decided to have the doppler!

Cat