Search found 29 matches
- Thu Nov 04, 2010 7:08 pm
- Forum: Drug Pipeline
- Topic: gilenia / fingolimod / FTY720
- Replies: 17
- Views: 15037
Blessings to you
God, I hope you do O.K. on this. I am so uncertain. I have fears about the side effects and I have a career that I can't afford to lose. I need to be functional at all times. Also, I am a smoker. I'm afraid my lungs will collapse on this stuff. Thanks so much for replying. I needed to hear from some...
- Thu Nov 04, 2010 10:52 am
- Forum: Drug Pipeline
- Topic: Novartis Gilenya MS Pill to Cost $48,000 a Year
- Replies: 14
- Views: 7576
I agree with all of you! #$% Novartis! I quit all of the treatments. Why should I jeopardize my life, the rest of my health, safety and well-being on an empty hope that does more damage than good, destroys your body and make you incapacitated. Without all that crap I can live my life and work and la...
- Thu Nov 04, 2010 10:37 am
- Forum: Drug Pipeline
- Topic: gilenia / fingolimod / FTY720
- Replies: 17
- Views: 15037
Gilenya
Has anyone started on this yet? My neurologist at the MS Center is really trying to push this on me.
- Wed Apr 14, 2010 6:03 am
- Forum: Rebif
- Topic: Stopped Rebif
- Replies: 20
- Views: 12781
Dear EyeDoc: I hope you do very well with your therapy. I, on the other hand, (and, I am not saying for other MS patients to follow my path) am doing very well off all interferon and injection treatments. I stopped injections mid-February and am feeling so much better without them. My neurologist di...
- Mon Mar 22, 2010 10:30 am
- Forum: Rebif
- Topic: Why I quit rebif
- Replies: 17
- Views: 9962
Dear Chadeldridge, Thanks for your well wishes. I wish I could have the painless experience that you have on Rebif. You are lucky. Perhaps, in the future, I may reconsider the interferon therapies, however, I am doing better without them. After a year and a half on Avonex, the doctor said that there...
- Mon Mar 22, 2010 8:19 am
- Forum: Rebif
- Topic: Why I quit rebif
- Replies: 17
- Views: 9962
I quit all the MS treatments.
Miss Fiesty: I agree with your post from a year and a half ago. I, too, quit the interferons. I've been off them for over four weeks now and I feel great. I still feel the MS, but at least I have my life back. It is wonderful to be drug-free and without side effects at last. The side-effects were ab...
- Wed Mar 17, 2010 5:39 am
- Forum: Rebif
- Topic: Stopped Rebif
- Replies: 20
- Views: 12781
Stopping Rebif
Hello Eyedoc,
How are you doing after discontinuing Rebif? Are you happier? Are you on any new treatment?
How are you doing after discontinuing Rebif? Are you happier? Are you on any new treatment?
- Mon Mar 15, 2010 10:12 am
- Forum: Rebif
- Topic: Rebif after Avonex
- Replies: 3
- Views: 3503
What Are Your Thoughts On Rebif?
I was on Avonex since July of 2008. Then, I made an appointment with an MS Center in February of this year because I felt that my neurologist was not really helping me with my illness. The doctor at the MS Center said that I need to stop the Avonex and start Rebif because he felt that my lesions inc...
- Mon Apr 20, 2009 7:15 pm
- Forum: Avonex
- Topic: First injection today : /
- Replies: 5
- Views: 3995
- Mon Apr 20, 2009 6:48 pm
- Forum: Avonex
- Topic: Sea-sickness/Motion sickness and MS
- Replies: 4
- Views: 5625
- Mon Apr 20, 2009 6:36 pm
- Forum: Avonex
- Topic: Head Fogginess/MS Fatigue
- Replies: 0
- Views: 3735
Head Fogginess/MS Fatigue
Hello: I am just wondering if anyone has ever experienced extreme fatigue sydndromes I just came back from my neuro. I've been complaining about major fatigue for about a year now and I described to him about the strange fogginess in my head and that I could not lift up a piece of paper because of t...
- Thu Apr 02, 2009 5:16 am
- Forum: Avonex
- Topic: Sea-sickness/Motion sickness and MS
- Replies: 4
- Views: 5625
Thanks for the input NHE. I most certainly will not be taking Avonex the day of or the day before my shark adventure. I have this all figured out when we go to Hawaii. The day after I take my Avonex, I plan on having a restful do-nothing day because I am in pain! As a matter of fact, I will call my ...
- Wed Apr 01, 2009 10:03 am
- Forum: Avonex
- Topic: Sea-sickness/Motion sickness and MS
- Replies: 4
- Views: 5625
Sea-sickness/Motion sickness and MS
Does anyone have any problems with sea-sickness and their MS? I have never really had a problem with that, but I know that I do get car-sick if I am in the back seat or trying to read. I also have balance problems and slight issues with vertigo (both symptoms of my MS). It has been quite some time s...
- Mon Sep 29, 2008 5:12 am
- Forum: Avonex
- Topic: How an Injection to the Thigh Feels
- Replies: 17
- Views: 15623
Thank you for explaining! I feel so much better now. I get weary everytime I have to inject my thigh because of that first experience. But, I'm on Week 7 now and am doing fine. The side effects are wearing off (I think and hope). I have not felt the same sensation that I did the first time around up...
- Wed Sep 03, 2008 4:50 am
- Forum: Avonex
- Topic: How an Injection to the Thigh Feels
- Replies: 17
- Views: 15623
Hi NHE, I like to take Advil because I am afraid of having liver damage due to the combination of Tylenol and Avonex. My doctor said that he has never seen an Avonex patient with a damaged liver yet. I'll take his word. Anyhow, the second time, I never took the Advil before I went to bed and I was m...