This Is MS Multiple Sclerosis Knowledge & Support Community

Hello everybody, I run a meetup.com activity group for people with MS in New York City (surprisingly there wasn't one anywhere in the tri-state area) and if you're interested please do join, it's free! - http://www.meetup.com/People-with-Multiple-Sclerosis/ Several meetups on the schedule with more ...

Hello everybody, I've started a new meetup.com group for people with MS in New York City (surprisingly there wasn't one anywhere in NYC) and if you're interested please do join - http://www.meetup.com/People-with-Multiple-Sclerosis/ Looking forward to meeting you! :-) Thanks, ToNY p.s. I dunno where...

simply put -- tovaxin sucks, ok? fucked me over hard, didn't work for others documented on this very site, and more importantly didn't make a diddly squat of a statististical difference against the placebo. now, to those that did great on it, more power to you. i'm glad it helped you but quit defend...

thank you! that's all i requested -- an update straight from Tim on what's been going on. the link to the 'results will vary' thread is very helpful too. too bad you're retiring, Tim. sure would be nice if you could address my personal quandary of why the hell did Tovaxin not simply do nothing for m...

they required a 30 or 60 day break from tysabri before they would check for mrtc's. don't remember which but that was the only rule.

and i didn't! clear your mind of all your preconceptions and learn to read words for what they are and not what your crazy mind misconstrues them for, ok? thank you

ugh... i just don't get the people here... all i did was ask for Tim to post his thoughts! i did not blame him for anything! i take FULL ownership of my life with everything that happens in it! can i not ask to discuss what's happened with a person very close to the situation with personal expertise...

your questions remind of another quirk of my trial experience. i actually did not qualify for the trial initially. my mrtc's weren't apparent in the first checkup. so that means the 6 tysabri treatments i had right before the trial were remarkably effective. 0 lesions on the first mri and no mrtc's!...

i'd like to know where the hell is Tim?! why has he stayed silent when so much turmoil has gone on with opexa and its trial patients? say something, anything! show proof of life!

this all stinks...

i'll just posit the obvious conclusion i feel might be on a lot of people's minds -- tovaxin doesn't simply do nothing but actually damages a person's brain/cns. i mean what else can i conclude after going from zero lesions to 22 and a bad relapse? i know it's simplistic to think that way but what e...

i received the WHOLE shebang straight from my trial site neurologist; mri results, the placebo or drug revelation, and a strong recommendation to stop before things get even worse. this came on the same day Scott called me to schedule a procurement!!! to say i was shell-shocked by all this would be ...

turns out i was receiving tovaxin the whole time in the IIb. got worse, mri and otherwise. it's over, johnny, it's over...

holy shit... i'm sorry to say, it turns out tovaxin really does suck ass. i got unblinded and despite getting worse, i was receiving tovaxin the whole time after all. it didn't prevent the recent relapse nor going from 0 lesions in the first mri to 22 in the last. i still wanted to stubbornly move a...

and therein lies the rub! patrickm came out guns ablazing practically calling me a traitor to the human race (without actually knowing any real tangible facts, just using conclusions his angry-at-the-results mind made up) and i had to defend myself against his and the quick-to-judge crowd. so i call...

first, i was mainly replying to patrickm's personal attack. second, i was defending my innocuous acts that have been blown waaaaaay out of proportion. third, i'm glad you're all conscientious law-abiding citizens that don't get as much as a parking ticket. evidently, i'm a selfish prick whose 1.5% f...