Search found 83 matches

by ursula
Fri Nov 21, 2014 7:43 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: first PML case on tecfidera
Replies: 4
Views: 4268

Re: first PML case on tecfidera

The woman took part in the approval study in germany. They let her walk around with severe lymphopenia for more than 3 years! There were no other risk factors as explanation for the PML. So it looks like if Tecfidera is the only reason for this unnecessary case of death. Biogen had admitted that lym...
by ursula
Tue Jan 14, 2014 5:46 am
Forum: General Discussion
Topic: Niacin B3
Replies: 60
Views: 14859

Re: Niacin B3

sorry, I don´t fully understand what you mean.
the other thread is about vitamin b12 which is something completely different than niacin.
by ursula
Mon Jan 13, 2014 4:57 am
Forum: General Discussion
Topic: Niacin B3
Replies: 60
Views: 14859

Re: Niacin B3

I'm currently CIS and only real symptoms (so far) area dropped foot that appears after maybe 40mins walking or 30 or so running. Guess what I'm looking for is whether niacin can help in reducing relapse rate (I've only had the one for now) and progression of lesions or general deterioration (I.e. M...
by ursula
Wed Nov 13, 2013 4:18 am
Forum: General Discussion
Topic: Niacin B3
Replies: 60
Views: 14859

Re: Niacin B3

I'm curious Ursula when you say you don't have flushes anymore is that because it has become well tolerated? Also when you say you have no symptoms that's amazing. How long had you been taking it before that happened? Has your level of disability changed at all? It is normal that the flushes go awa...
by ursula
Tue Nov 12, 2013 3:51 am
Forum: General Discussion
Topic: Niacin B3
Replies: 60
Views: 14859

Re: Niacin B3

I am not a pharmacologist. I am mainly interested in trials like these: http://mssociety.ca/en/research/medmmo_vitaminb3_20060929.htm http://www.ncbi.nlm.nih.gov/pubmed/19461950 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2651433/ http://www.ncbi.nlm.nih.gov/pubmed/20554037 but I will check my homoc...
by ursula
Mon Nov 11, 2013 7:25 am
Forum: General Discussion
Topic: Niacin B3
Replies: 60
Views: 14859

Re: Niacin B3

Also I finding conflicting reports on the safe level or amount to take given the supplements implications with excess use and the liver. Is 500mg to much or can I increase it? I take 1000mg niacin extended release. My blood levels are perfect (also liver enzymes). Should be monitored from time to t...
by ursula
Thu Oct 31, 2013 7:46 am
Forum: Regimens
Topic: B vitamins
Replies: 9
Views: 4838

Re: B vitamins

I have been taking vitamin b3 (niacin) for years now. The trials are very promising. http://mssociety.ca/en/research/medmmo_vitaminb3_20060929.htm I think only high doses are effective (I take 1000mg daily). The doses in mouse models are even higher but I got stomach problems with 1500mg. I have bee...
by ursula
Fri Oct 26, 2012 5:52 am
Forum: Introductions
Topic: MRI tomorrow
Replies: 5
Views: 1291

Re: MRI tomorrow

DAZED wrote:okay so i go for an mri tomorrow. I woke up having a metallic taste in my mouth,
metallic taste is one of the most common side effects of prednisolone
by ursula
Tue Feb 23, 2010 5:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Charité Berlin trial preliminary results?
Replies: 35
Views: 11622

hi yannis, rumors, rumors, rumors.(':oops:') everyone has something to say about the charite trial but nobody took part. i took part and the sonography wasn´t made by a beginner but by the leader of the sonographic institute of the charite. and they are not at all sceptic about the ccsvi issue but i...
by ursula
Sat Oct 31, 2009 2:05 am
Forum: Drug Pipeline
Topic: egcg trial
Replies: 13
Views: 5516

hi radeck, during the trial I wasn´t allowed to drink green tea of course (In still don´t know if I was in the placebo group or the "real" group). We got 800 mg egcg there. Unfortunately, you can´t buy the original stuff from the trial anywhere.. I can´t recommend a special brand of the eg...
by ursula
Fri Oct 30, 2009 9:14 am
Forum: Drug Pipeline
Topic: egcg trial
Replies: 13
Views: 5516

hi cheerleader, also good to hear that Jeff is doing well! There are hundreds of trials on egcg - seems to be good in many respects, especially neuroprotection. I am also very glad that you can get it easily. I am really convinced that it works against MS. I´m just wondering if it will ever become a...
by ursula
Thu Oct 29, 2009 6:38 am
Forum: Drug Pipeline
Topic: egcg trial
Replies: 13
Views: 5516

...thank you very much, sharon!

seems to be a good idea to go on with egcg...

ursula
by ursula
Thu Oct 29, 2009 4:58 am
Forum: Drug Pipeline
Topic: egcg trial
Replies: 13
Views: 5516

..I take only egcg and copaxone...
by ursula
Wed Oct 28, 2009 7:32 am
Forum: Drug Pipeline
Topic: egcg trial
Replies: 13
Views: 5516

egcg trial

hi (cheerleader), I haven´t been here in the forum fo a couple of months... in the meantime I finished the trial - unfortunately, they didn´t tell me in which group I was. The trial will go on for an other year or so. They didn´t even tell about my mri results! :x all I can say is that I have been r...
by ursula
Sun May 17, 2009 5:57 am
Forum: General Discussion
Topic: Sleep
Replies: 27
Views: 7203

hi jimmylegs, I know you are very much into vitamins.. So I shouldn´t have said I tried all of them - because I basically tried everything else I was just too lazy to translate everything. I tried valerian, magnesium, bach flowers, various teas and so on... nothing worked. As I said, mirtazapin is w...

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