Search found 93 matches

by Miss_Feisty
Thu Jun 10, 2010 9:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has Anyone Asked, And Been Told No? (Canada)
Replies: 25
Views: 6853

Finally received a yes for a referral! Only took 7 months since my response to this post...yikes. I wasted too much time and money on neurologists for this matter...they are all in the same "no" boat. Your GP is the only answer. Keep trying.... One mission complete, as the petitioning and ...
by Miss_Feisty
Wed Apr 21, 2010 1:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society's money
Replies: 23
Views: 6045

PCakes: So what is the benefit of membership? And where does the 'vote' come in? I see the society says on the link you provided to "have a say in the future of the society' Does this mean that members have input? So you are saying that by joining the society it may give members more sway in ho...
by Miss_Feisty
Tue Apr 20, 2010 10:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society's money
Replies: 23
Views: 6045

Arne: I don't want the society to die, I would prefer they work more efficiently towards CCSVI research and try to be more generous. They do fund other studies and clinics but the money is there to donate a million to ccsvi studies without abandoning other interests. I believe in advocacy and self a...
by Miss_Feisty
Mon Apr 19, 2010 12:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society's money
Replies: 23
Views: 6045

Hey Brightspot...notice the date on that article you posted a link to? A day after my post!!! Can't say there is any connection, but you never know who's watching this site. Or maybe it was an odd coincidence. Regardless it was a good article and he left out other data that kind of raises an eyebrow...
by Miss_Feisty
Thu Apr 15, 2010 7:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society's money
Replies: 23
Views: 6045

Exactly Brightspot....exactly right. I wonder if they would be brave enough to expose a dollar amount or maybe that is private.
:?
by Miss_Feisty
Thu Apr 15, 2010 6:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society's money
Replies: 23
Views: 6045

Thank you everyone for the informative links, I will pursue them. I haven't heard about the ccsvi allocation for the mswalk, I will check their site! Msrelly: I hope I am right or the MS Society will be in trouble, these are the charity returns or T3010 forms registered with the government! http://w...
by Miss_Feisty
Thu Apr 15, 2010 1:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society's money
Replies: 23
Views: 6045

MS Society's money

Sitting here with the 2009 MS Society of Canada's Charity Return info in my hands from the CRA website. They issued tax receipts for almost $17 million dollars last year amongst other revenues. This is your money and my money, mom's money, dad's money...you get the picture. This is on a national lev...
by Miss_Feisty
Wed Feb 24, 2010 11:05 am
Forum: General Discussion
Topic: Wanted: new neuro in Canada
Replies: 3
Views: 1751

Located in Ont. I'm willing to go out of province to find a suitable doctor. If I don't have any luck in my own country I will then pursue international options. I don't think my requirements are out of the ordinary but seem hard to find. I've already checked the 'rate a doctor' sites but most of th...
by Miss_Feisty
Wed Feb 24, 2010 8:23 am
Forum: General Discussion
Topic: What's Your Fear?
Replies: 34
Views: 6901

One thing I have learned, everyone endures a problem, a fear, a heart break, a loss. You are not alone. We are here sharing the good, the bad and the ugly. We understand and know how you feel. I had suffered enormous grief when I was diagnosed. Too many losses in a short time removed any feeling of ...
by Miss_Feisty
Wed Feb 24, 2010 6:57 am
Forum: General Discussion
Topic: Wanted: new neuro in Canada
Replies: 3
Views: 1751

Wanted: new neuro in Canada

Hello All, I'm shopping around for a new neuro in Canada. I am seeking a doctor who is knowledgeable, can offer positivity, able to listen and acknowledge problems and is not a crab drug pusher. I would like to see someone who is open to alternatives and is up to date on various treatments. I don't ...
by Miss_Feisty
Thu Dec 17, 2009 1:39 pm
Forum: Copaxone
Topic: Don't want Copaxone....
Replies: 9
Views: 4210

Thank you all for your replies, appreciated.
It's a difficult decision with any med.

Thanks for being here!
by Miss_Feisty
Thu Dec 17, 2009 1:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Canada responds to my concerns re: Competition
Replies: 9
Views: 3571

MS Society of Canada

How funds are raised & spent
http://www.mssociety.ca/en/community/mssc/default.htm

For a copy of our audited financial statements, please call 1-866-922-6065.
by Miss_Feisty
Thu Dec 17, 2009 1:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Canada responds to my concerns re: Competition
Replies: 9
Views: 3571

Sorry, I haven't yet done my research....but are the society's financial statements public? The situation doesn't make sense. The MS Society is a good organization, I'm tired of seeing such negativity surround what is suppose to be the "middleman or go between" to learn about the disease a...
by Miss_Feisty
Tue Dec 08, 2009 10:55 am
Forum: Copaxone
Topic: Don't want Copaxone....
Replies: 9
Views: 4210

Don't want Copaxone....

Hello, I hope someone can help. I really don't want to take the copaxone, I am willing to take my loses without crab drugs (aka the 70% it won't work). Tried rebif with horrible side effects and I'm tired of introducing all these foreign substances to my body. Maybe I'm making a mistake, but no one ...
by Miss_Feisty
Thu Nov 26, 2009 7:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Intro for your doctor
Replies: 2
Views: 2430

Thanks for the link.....I need to take some of my reading to the facebook thread. :D

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