Search found 13 matches

by HEC
Sun Jan 11, 2009 6:28 pm
Forum: Tcelna (Tovaxin)
Topic: Termination Appt. and What Did You Switch To
Replies: 81
Views: 22205

I had one new lesion on my last MRI in December after the trial was shut down compared to my December 2007 MRI that was done just for me. I was disappointed and wondered why the folks at Opexa didn't say anything, but then it occurred to me that the MRIs I've had done just for me in 2007 and 2008 we...
by HEC
Fri Jan 02, 2009 2:54 pm
Forum: Tcelna (Tovaxin)
Topic: Termination Appt. and What Did You Switch To
Replies: 81
Views: 22205

I started Copaxone on 12/16. I feel totally fine except for how much the shots sting. The injection itself is super easy, but the site reaction is a killer. Sometimes it's mildly annoying, but mostly it stings like waves of battery acid are being poured into my body for about a half hour. Not a cons...
by HEC
Tue Dec 02, 2008 8:49 am
Forum: Tcelna (Tovaxin)
Topic: Its over
Replies: 62
Views: 17943

Had an MRI and neuro visit yesterday to decide which CRAB drug to start taking. For me, Copaxone was the best option as R, A & B could all potential mess with my already messed up thyroid. My daily injections will start right around Christmas - oh, joy! My brain MRI showed one new lesion on the ...
by HEC
Tue Nov 25, 2008 8:32 am
Forum: Tcelna (Tovaxin)
Topic: Its over
Replies: 62
Views: 17943

Count me in!
by HEC
Tue Nov 25, 2008 8:18 am
Forum: Tcelna (Tovaxin)
Topic: Its over
Replies: 62
Views: 17943

Yep, Opexa file an 8-K yesterday confirming it, but I haven't seen a press release yet. Here's a link to read the whole 8-k, duplicative of a previous post from yesterday, but the reality hit home for me after seeing the actual filing. The company I work for was publically traded up until a few mont...
by HEC
Mon Nov 24, 2008 5:30 pm
Forum: Tcelna (Tovaxin)
Topic: Its over
Replies: 62
Views: 17943

I was able to get an appt on Monday afternoon to see my neuro for a visit unrelated to the study to make a treatment game plan since I don't have the luxury of being in denial until next June if I had continued to be MRTC negative. I had to go in the this afternoon for a blood draw for regular lab w...
by HEC
Mon Nov 24, 2008 12:23 pm
Forum: Tcelna (Tovaxin)
Topic: Its over
Replies: 62
Views: 17943

I just got the same call. Holy crap. No more funding, no more study, cancel all appointments, etc. No scoop as to whether or not there will be follow up down the road, but I will keep pressing for details.
by HEC
Wed Nov 19, 2008 5:35 pm
Forum: Tcelna (Tovaxin)
Topic: Tovaxin Open Label Extension Schedules
Replies: 174
Views: 65523

I met one of us in person this past Saturday at an MS Society local chapter event. I don't think she's a member on this site yet, but I will encourage her to sign up. Like me, she received vaccine in the double blind phase and tested MRTC negative until her last blood draw in mid September, at which...
by HEC
Mon Oct 20, 2008 7:26 am
Forum: Tcelna (Tovaxin)
Topic: Av8rgirl's results on Tovaxin - Phase IIb
Replies: 22
Views: 8533

Are you in the study at Evergreen in Kirkland as well with the lovely and talented Shalom, or is there another study hub for the Pacific NW? If you are a Seattleite, let me know if you plan to attend the local MS society chapter's Ladies Night on 11/15.
by HEC
Mon Oct 20, 2008 7:22 am
Forum: Tcelna (Tovaxin)
Topic: Tovaxin trial monitoring arm
Replies: 6
Views: 3863

Tovaxin monitoring arm update

Peeps, I stand corrected, I received an email from my clinical trial coordinator who says my blood draw on December 12th will be considered my 2nd of 3 visits to test MRTCs. (this excludes the screening visit that happened for all of us when we finished the last phase). If I'm positive in December, ...
by HEC
Tue Oct 14, 2008 8:47 pm
Forum: Tcelna (Tovaxin)
Topic: Tovaxin Open Label Extension Schedules
Replies: 174
Views: 65523

Info for the group schedule...

Hi Mike. I'm Heather (HEC) in Seattle, and I continue to be MRTC negative with my final MRTC test coming up on December 12th. I've actually had three MRTC tests so far in the monitoring arm phase of the trial. I had my second ever MS attack in July 2008 (exceptionally mild and hardly worth mentionin...
by HEC
Tue Oct 14, 2008 8:08 pm
Forum: Tcelna (Tovaxin)
Topic: Tovaxin trial monitoring arm
Replies: 6
Views: 3863

Hi Patrick! I love that I can email you on two websites now! My study coordinator told me that if you don't test positive after the third try, you have missed the vaccine window as there is nothing for them to use to make new vaccine. If I test negative again in December, I'm out. I don't think they...
by HEC
Mon Oct 13, 2008 4:24 pm
Forum: Tcelna (Tovaxin)
Topic: Tovaxin trial monitoring arm
Replies: 6
Views: 3863

Tovaxin trial monitoring arm

Howdy - I'm brand new to this website and forum but I've been emailing with someone else in the Tovaxin study in Chicago who let me know about this site. I know I received the vaccine during phase IIb, but I've been testing negative for MRTCs ever since and have one last monitoring blood draw in mid...

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