Search found 1477 matches

by Scott1
Sat Aug 31, 2019 10:54 pm
Forum: General Discussion
Topic: I peed over a gallon last night
Replies: 6
Views: 965

Re: I peed over a gallon last night

Hi,

There are two types. One relates to the kidney and the other the hypothalamus. It sounds like you've got nothing to loose by testing for both.https://www.nhs.uk/conditions/diabetes- ... diagnosis/

Regards,
by Scott1
Wed Aug 28, 2019 11:12 am
Forum: General Discussion
Topic: I peed over a gallon last night
Replies: 6
Views: 965

Re: I peed over a gallon last night

Hi,

Did you check out diabetes insipidous? Its completely different from the normal type we think of.
https://www.nhs.uk/conditions/diabetes-insipidus/

Regards,
by Scott1
Mon Aug 26, 2019 2:53 pm
Forum: Undiagnosed
Topic: Weakness in right arm but muscles are hard
Replies: 9
Views: 172

Re: Weakness in right arm but muscles are hard

Hi, As you haven't been diagnosed yet, we are really jumping the gun. Nonetheless, if you have have tightness in the arm muscles and we assume a diagnosis is confirmed, the simplest way to look at why you've tightened is to imagine you have only two motor neurons. The first one runs from way up in y...
by Scott1
Wed Jul 31, 2019 2:17 pm
Forum: General Discussion
Topic: meralgia paresthetica (MP) in MS
Replies: 2
Views: 128

Re: meralgia paresthetica (MP) in MS

Hi, I'm not sure why you have that diagnosis but a couple of questions immediately came to mind. Is your gait altered (e.g can you walk normally or climb a set of stairs)? How far can you walk? Does one foot drag? Do you think one side of your pelvis is higher than the other? Are you slightly stoope...
by Scott1
Mon Jul 29, 2019 11:47 pm
Forum: General Discussion
Topic: Gilenya in pregnancy
Replies: 0
Views: 62

Gilenya in pregnancy

Hi, The EMA (European equivalent of the FDA) has just recommended that Gilenya elevates the risk of congenital deformities to the heart, kidney, bone and muscles in utero. It recommends it is not suitable for pregnant women or women not using birth control . Their view is it doubles the risk compare...
by Scott1
Thu Jul 25, 2019 11:44 pm
Forum: Undiagnosed
Topic: Hi I’m new. Looking for some help
Replies: 6
Views: 258

Re: Hi I’m new. Looking for some help

Hi,

Have you gone to a doctor yet and told him what you have told us? I really urge you to do this.

Regards,
by Scott1
Tue Jul 23, 2019 12:56 am
Forum: Undiagnosed
Topic: Hi I’m new. Looking for some help
Replies: 6
Views: 258

Re: Hi I’m new. Looking for some help

Hi, I think you should go to a doctor and describe exactly what you have written. If other people smell you then a doctor should notice it. If only you smell it then perhaps you have an infection in a nasal cavity or sinus. The slurring is something you should definitely raise and the sooner the bet...
by Scott1
Tue Jul 23, 2019 12:47 am
Forum: General Discussion
Topic: Please Help - Undiagnosed with L’hermitte’s Sign and Worried
Replies: 4
Views: 179

Re: Please Help - Undiagnosed with L’hermitte’s Sign and Worried

Hi, I think the odds are low based on what you've described. It actually doesn't sound like you've got the right symptom at all. It sounds more like a mild impingement. See what happens if a good osteo or physio does some manipulation. I don't think you should be as concerned as you are. Best of luc...
by Scott1
Wed Jul 17, 2019 12:28 am
Forum: Undiagnosed
Topic: Lp results / mri results
Replies: 2
Views: 126

Re: Lp results / mri results

Hi Jessica, No one on this site is going to take of the risk of guiding you to a wrong conclusion. Even a neurologist needs skill to make the right call. Nevertheless, lesions mean a type of scarring but that could be due to many things. "Dawsons fingers" is a pattern of scarring but it is not a def...
by Scott1
Fri Jul 12, 2019 8:05 pm
Forum: General Discussion
Topic: Cooling vest
Replies: 2
Views: 101

Re: Cooling vest

Hi, That's an excellent summary. I am a great believer in the cool drink idea. If you take some watermelon, ice and a little water and wizz it up in one of those drink makers you will get an excellent cold drink. As you're effectively pouring ice down your throat it really counteracts the effects of...
by Scott1
Tue Jun 11, 2019 4:49 am
Forum: Introductions
Topic: Medication
Replies: 10
Views: 382

Re: Medication

Hi, In terms of the ones normally thought of, I don't either. I do take Dantrium for spasticity but I didn't need anything like that from 1994-2015. From 1996 till about 2012 I did take Avonex and hated every dose. I have been taking an antiviral (valacyclovir) for 20 years but it isn't regarded as ...
by Scott1
Tue Jun 11, 2019 1:26 am
Forum: General Discussion
Topic: Hives?
Replies: 2
Views: 161

Re: Hives?

Hi,

I've never had that problem but I did google cephalxin and hives and it can happen by the look of it.

I looked at fermented food and hives and this blog says it can happen. https://blog.bulletproof.com/best-fermented-food-gut/ .

Maybe you just pushed your limits by combining things??

Regards,
by Scott1
Thu May 16, 2019 3:28 pm
Forum: General Discussion
Topic: Re: Change from Gilenya to Ocrevus
Replies: 3
Views: 1511

Re: Re: Change from Gilenya to Ocrevus

Hi, It isn't easy is it? Neurologists have been offering patients this choice since I was diagnosed in the early 1990s. Through that time, whatever medication is the new kid on the block becomes the best thing ever and the old champion retreats. Gilenya is described as a receptor modulator for remit...
by Scott1
Tue May 14, 2019 4:11 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 2026

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, I'm certainly not against bike riding but the posture of the body is curled over the bike which shortens the psoas. The chain of muscles I think you are describing are called iliopsoas. This video shows the ones I mean but there's no sound. https://www.youtube.com/watch?v=VcrzfTSCZEs . I underst...
by Scott1
Sun May 12, 2019 2:55 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 2026

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, Don't forget to try some massage. If you have some muscles that are tight they pull your posture out of whack. To compensate you start to move in unusual ways (e.g hanging on to things). A masseur will be able to release the muscles on either side of the spine called the erector spinae. If you a...