Search found 1467 matches

by Scott1
Tue Jun 11, 2019 4:49 am
Forum: Introductions
Topic: Medication
Replies: 8
Views: 213

Re: Medication

Hi, In terms of the ones normally thought of, I don't either. I do take Dantrium for spasticity but I didn't need anything like that from 1994-2015. From 1996 till about 2012 I did take Avonex and hated every dose. I have been taking an antiviral (valacyclovir) for 20 years but it isn't regarded as ...
by Scott1
Tue Jun 11, 2019 1:26 am
Forum: General Discussion
Topic: Hives?
Replies: 2
Views: 83

Re: Hives?

Hi,

I've never had that problem but I did google cephalxin and hives and it can happen by the look of it.

I looked at fermented food and hives and this blog says it can happen. https://blog.bulletproof.com/best-fermented-food-gut/ .

Maybe you just pushed your limits by combining things??

Regards,
by Scott1
Thu May 16, 2019 3:28 pm
Forum: General Discussion
Topic: Re: Change from Gilenya to Ocrevus
Replies: 3
Views: 1414

Re: Re: Change from Gilenya to Ocrevus

Hi, It isn't easy is it? Neurologists have been offering patients this choice since I was diagnosed in the early 1990s. Through that time, whatever medication is the new kid on the block becomes the best thing ever and the old champion retreats. Gilenya is described as a receptor modulator for remit...
by Scott1
Tue May 14, 2019 4:11 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, I'm certainly not against bike riding but the posture of the body is curled over the bike which shortens the psoas. The chain of muscles I think you are describing are called iliopsoas. This video shows the ones I mean but there's no sound. https://www.youtube.com/watch?v=VcrzfTSCZEs . I underst...
by Scott1
Sun May 12, 2019 2:55 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, Don't forget to try some massage. If you have some muscles that are tight they pull your posture out of whack. To compensate you start to move in unusual ways (e.g hanging on to things). A masseur will be able to release the muscles on either side of the spine called the erector spinae. If you a...
by Scott1
Sat May 11, 2019 5:26 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, The copoxone (also known as Glatiramer acetate,Copolymer 1 or Cop-1) is a therapy for remitting relapsing MS. It was originally designed as a sequence of the amino acids; glutamic acid, lysine, alanine and tyrosine to crudely resemble myelin basic protein. In an animal model (EAE), T cells that ...
by Scott1
Thu May 09, 2019 1:44 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, Sorry to hear this. There will be a series of steps that your neurologist will guide you through. You might find yourself asking "is that it?" As you get a handle on where you are, feel free to ask questions or seek second opinions. I've been diagnosed since 1994 and many others here have long e...
by Scott1
Tue May 07, 2019 11:01 pm
Forum: Undiagnosed
Topic: Optic neuritis
Replies: 15
Views: 304

Re: Optic neuritis

Hi, As your question is why would you be sent to a neurologist after an MRI (ordered by your GP) then the easiest answer is the GP doesn't feel he is the right person to interpret the result. An MRI is just a picture. If you saw what the technician wrote on the accompanying report, it would sound li...
by Scott1
Sun May 05, 2019 1:20 pm
Forum: Undiagnosed
Topic: In Limbo
Replies: 7
Views: 259

Re: In Limbo

Hi Dawn, I'm also sorry to hear of your situation. As your husband has problems, do you have to do all the chores at home as well? If so, you are working at lot more than 40 hours. Some of the problems people like us have are getting sufficient rest, sufficient nutrition and finding a stress free li...
by Scott1
Thu May 02, 2019 2:15 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, Are they doing any more MRIs? The IV stuff can be a bit odd sometimes. The last time I had it (5 years ago) it played havoc with my blood sugars. I was in hospital for 3 and a half weeks which is unusually long. Post the three days on the drip I had this very weird feeling of weakness as though ...
by Scott1
Wed May 01, 2019 3:08 pm
Forum: General Discussion
Topic: Bowen technique question
Replies: 5
Views: 214

Re: Bowen technique question

Yep, If the gait is out, then the pelvis is out of alignment as well. Whatever technique you use, you just have to work muscles eccentrically (ie in a lengthened state). My preference is Pilates but yoga works the same way. As everything is held together with fascia (connective tissue), don't forget...
by Scott1
Sat Apr 27, 2019 2:18 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi,

It sounds like your neurologist is being thorough. Not all serum blood tests tell the whole story so, depending on what he concludes, he may arrange more tests.
Uncertainty is always stressful. Given your symptoms, I think you're approaching it the right way.

Regards,
by Scott1
Sat Apr 27, 2019 1:10 am
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, The best way to do an MRI is with a contrast (usually Gadolinium). The contrast shortens the relaxation rate of tissue. A new lesion shows up as a bright area. Old lesions don't so the scan can help with the dissemination in time test. Essentially, the scan is to determine the integrity of the b...
by Scott1
Fri Apr 26, 2019 5:39 pm
Forum: Undiagnosed
Topic: Diagnosed with CIS today, more tests to come - things to know/ask?
Replies: 48
Views: 1465

Re: Diagnosed with CIS today, more tests to come - things to know/ask?

Hi, One upon a time MS diagnosis was broken into "clinically definite" or "probable" MS. In 2001 that changed and a new set of rules (that have been revised about three times since) called the McDonald criteria became the accepted benchmark symptoms for diagnosis. Those criteria gave three broad cla...
by Scott1
Mon Apr 22, 2019 7:30 pm
Forum: General Discussion
Topic: I wonder if this might help MS?
Replies: 2
Views: 152

Re: I wonder if this might help MS?

Hi, I read an article about this in a local paper. It works by stimulating the signal from the muscle back to the brain. The lesions we have interrupt the signal from an upper motor neuron to a lower motor neuron. In essence,the damage we have is at the other end of the chain from their proposal for...