This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Vesta, Disappeared is not the right word. It's still there but seems well controlled. I do not have major problems after 30 years, except those motor issues that resulted from some demyelination that arose 10 years ago when I stopped for about a year doing everything that kept me well (bad mistak...

Hi Vesta, The size of a valacyclovir dose is also a consideration. The first commercial product was Valtrex and its initial purpose was to treat genital herpes. The dose, at that time, was a short-term high dose (could be multiple tablets a day) that would be over in a week. The Facebook page, that ...

Hi Dim,
Yes, you’re correct about Uric acid and MS. However, some of the complaints on the FB page immediately made me think they should be checking their uric acid levels. Most don’t have MS.

Hi Dim, I looked through that Facebook site. Clearly, there are a range of people with many problems. What is common is they are all asking questions because of their problems, but their issues vary and it's not very clear that all problems are the same. The first questions that comes to my mind is ...

The trick is to use a product that causes chain termination of the replication of the viral DNA. However, EBV replicates two ways -1) Latently, where the virus is inside the host cell and replicates as the cell divides or 2) via Lytic replication, when the host cell becomes full of viral particles a...

Hi Elliot, I'm glad you're finding the device of use. May I ask a couple of questions about how you were before you started using this? Prior to using this- Were your toes curling under at all? Could you reach your own toes to cut the nails ? When you put a sock on, did the foot lift off the floor o...

I think we have to remember that (if this works) we could possibly remyelinate damaged pathways. It doesn't imply that the causative agent is eliminated. That's a problem that still needs to be solved. If the causative agent turned out to be EBV, then you would still need to treat that. Nonetheless,...

Hi, I definitely think you should try before you buy. Lifting your whole leg off the ground depends on a range of things. Not least is how strong you are on the standing leg. Your leg action really starts up in your torso. When your psoas contracts it acts like a pulley, then your iliacus muscles (t...

It will depend on how your leg operates without it. If you imagine just the bones of your leg and look at where they meet behind the kneecap , you would see both the tibia (lower leg) and the femur (upper leg) have two bumpy bits on the end. They aren't symmetrical and are slightly offset. So when y...

I can see what it's doing, but a lot of MS walking problems relate to dorsiflexion (the ability to lift the front o your foot so you don't trip). That depends on a muscle called tibialis anterior being able to contract and its antagonist, tibialis posterior relaxing). Additionally, you need your cal...

As I have been doing Pilates three times a week for 20 years, I thought I had seen all the variations. Whilst I have nothing against this Pilates suspension method, there is no way that I would consider it to be Pilates. They are using some modified exercises that come from Pilates but it's not Pila...

Maybe. It's hard to stop a speeding train. They started with people with advanced EDSS. Once motor problems are established they can take on a life of their own. Hence, people doing exercise or some manual therapies sometimes see improvement. Why didn't measure fatigue or cognitive issues. It's not ...

Hi, "The study did not meet the primary endpoint of confirmed disability improvement (CDI) by expanded disability status scale (EDSS) at 12 months compared to placebo." Frankly, it's an absurd end point to pick. Most confirmed disability relates to motor pathway damage. That arises as a co...

Hi,

I think so. Always work from evidence. Opinions are cheap and plentiful.

Regards,

Hi,

Has either neurologist done a recent MRI? Did it show any signs of progression?

Regards,