This Is MS Multiple Sclerosis Knowledge & Support Community

Hmmm....I really appreciate your perspective. The more different views of this, the more I understand things a little better, so thanks for your input. I have seen numerous testimonies and read case studies from both clinics and at least they generate some hope of at least feeling better for a littl...

Hi all.... I am on a mission to get Adult Stem Cell Therapy and am looking at both Panama's Stem Cell Institute and Cellitex Clinic in Cancun, Mexico. I am sill researching both, but have created a fundraising page to help deffer costs. http://www.gofundme.com/3ubkpo I also wanted to ask for advice ...

If you took LDN and felt better for a few weeks or months only to crash and start feeling much, much worse...you most likely have an underlying systemic bacterial infection of some kind. This kind of scenario with LDN is an indicator that your MS might be caused by Lyme disease. If you have been dia...

I am being prescribed LDN by my LLMD and Ampyra by the neurologist that dx'd me with PPMS.

I notice very little improvement with both. but I just started the ampyra a week or so ago...so...we'll see.

I was first dx'd with RRMS in Feb of '08 by one neurologist, then dx'd with chronic neuological borelliosis (Lyme) in Sept '09 after coming up positive on an Igenex panel and seeing an LLMD here in the local area. Then, saw another neuro at UT southwestern where my Lyme diagnosis was dismissed after...

I've also been tested extensively for Lyme Disease, blood test as well as Western Blot test. My DR and I were really hoping it was the culprit, to no avail, not to mention we've ruled out every other disease. Were you tested at IGENEX labs in California? If you were tested at Quest or LABCorp or si...

Well....its been another 2 months... My LLMD had to take me off of doxy/amoxy because I had new MRI results in December that indicated I had a new active lesion in my neck and a new one in my brain.....both VERY small....but active. He has instead started me on Minocycline since it penetrates the BB...

But lyme is not Cpn (chlamydia pneumoniae.) That is what Robbie asked. Sarah I understand that. I was just pointing out that Lyme, however, is not exclusively passed by ticks. This is a common misconception that doctors and normal people alike need to be aware of. Sorry....don't mean to come off as...

is cpn the same as lyme? CPN is a much different organism. Lyme Disease is spread exclusively through the bite of infected ticks. Be VERY careful of your use of the word "exclusively" here This is flat out misinformation. It has been scientifically shown that Borellia is not only passed by ticks, b...

Hi all... Its been a while since I posted. You'll find most of my posts in the Copaxone forum, but I'll most likely be posting here from now on. I'm 39, Male, 5'9", 155lbs, U.S. Army veteran turned IT computer geek. If you read my previous story, you'll discover that I was Dx'd with RRMS in Feb of '...

If you are improving on Antibiotics, its a good bet that all of your MS related issues have a systemic bacterial infection at their root, such as Lyme Disease and its co-infections.

Thanks so much for the reply. I'm a recent member of the LDN Yahoo newsgroup and they are telling me similar things regarding melatonin. Yep, I'm looking at it as the culprit now. I didn't take it last night and just took my normal Copaxone injection and was fine. Don't think melatonin is gonna work...

Sorry gang, but this might be kinda long.... I had some kind of attack yesterday morning. I have never felt anything like it before in my life. I had read that Copaxone users can encounter the occasional "reaction" to the drug, even after years of being on it without having said reaction. It usually...

I might be able to give you my perspective on it... I was recently diagnosed with MS this past Feb. I had just started a new relationship with a woman I've know through work for a very long time. She knew that I wasn't feeling myself and held my hand as I was first beginning to seek answers for why ...

TT, Good topic. For me it feels like I have a constant low level buzzing in my legs. Mostly in my left. When I'm on my feet for more than 5 minutes, the fatigue starts setting in and I begin to feel like someone is turning up the force of gravity. Ultimately I begin to feel like I'm struggling to wa...