Search found 120 matches

by codefellow
Fri Dec 23, 2011 1:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI with a trach?
Replies: 6
Views: 1017

Re: CCSVI with a trach?

Keep us posted....are you in Canada? The logistics of getting someone to treatment get challenging. No, fortunately I am in New Orleans. Dr. McGuckin visits here from VAC every once in awhile, so if she chooses to go forward, he would be the one I would want to do it, that is, if he would even agre...
by codefellow
Fri Dec 23, 2011 7:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI with a trach?
Replies: 6
Views: 1017

CCSVI with a trach?

I kept my wife updated on CCSVI and angioplasty, as much as I understood. Despite her very advanced MS (paralyzed from the neck down), she decided to wait for more research and clinical trials. Since her cognition is 100%, I had to respect her decision. But after her last infection, she now can only...
by codefellow
Tue Dec 06, 2011 9:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ...where are the collars?
Replies: 3
Views: 1148

Re: ...where are the collars?

Great news! Thanks for the updated info Cece!
by codefellow
Tue Dec 06, 2011 4:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ...where are the collars?
Replies: 3
Views: 1148

...where are the collars?

As I understand it, there are collars available now that can provide objective, non-invasive measurements of blood flow. I thought I read that when people without MS sit up, blood drains much more slowly out of the head than it does for people without MS, as measured by these collars. If so, it seem...
by codefellow
Thu Nov 17, 2011 9:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a fail on human rights
Replies: 4
Views: 1314

Re: a fail on human rights

I have a broken leg.

I also have MS.

The broken leg did not cause my MS.

Therefore, I cannot be treated for my broken leg.

:roll:
by codefellow
Sat Aug 06, 2011 2:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 new reviews by Dake and Siskin et al in Endovascular Today
Replies: 22
Views: 3870

Hard proof in MS drug trials is reversal of brain atrophy, healing of lesions, lack of new lesions and similar evidence on MRI. That's what the neuros want to see, but they are also insisting pwMS stay on their drugs duing venoplasty studies...and you can bet any MRI changes will be credited to the...
by codefellow
Sat Aug 06, 2011 4:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 new reviews by Dake and Siskin et al in Endovascular Today
Replies: 22
Views: 3870

Hard proof in MS drug trials is reversal of brain atrophy, healing of lesions, lack of new lesions and similar evidence on MRI. That's what the neuros want to see, but they are also insisting pwMS stay on their drugs duing venoplasty studies...and you can bet any MRI changes will be credited to the...
by codefellow
Fri Jul 29, 2011 4:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2426

But you actually proved my point about the collars. Anyone else remember them except me and maybe Cece? I don't remember the specifics but I remember them being mentioned a couple of months ago here, although this is the only place I've heard of them so I don't know if they really exist or not. The...
by codefellow
Thu Jul 28, 2011 7:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2426

Contrary to popular opinion here at thisisms the placebo effect can last as long as someone remains convinced of the treatment, or even as little as being told they've had a treatment they strongly believe in and it not only is capable of letting people hop out of wheelchairs but also makes cancero...
by codefellow
Thu Jul 28, 2011 7:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2426

Well then, who is the most despised skeptic? Don't worry, I won't blab. :twisted: My impression is you and scorpion are tied. :D Personally, I think skeptics perform a valuable service here, even though some discussions can sometimes get a bit shrill. Everything in moderation (tip of the hat to jim...
by codefellow
Thu Jul 28, 2011 4:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2426

I know I will never convince you either way if you've already decided - all the guff I've heard about 100%s. It was not big enough to conclude anything, either way, about the probability. For a cohort that size, it could be as true as the sunrise, or it could be a coincidence. I know nothing about ...
by codefellow
Thu Jul 28, 2011 1:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I am becoming skeptical...
Replies: 20
Views: 2426

I am becoming skeptical...

Some questions I think are worth discussing (again): 1) If Zamboni is even close to right, why are his results so frigging difficult to duplicate by ANYONE, even other vascular specialists? Is it because he designed his criteria FROM the patients he had, instead of settling on a criteria and then se...
by codefellow
Sun Jul 17, 2011 12:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are narrow blood vessels to blame in MS?
Replies: 36
Views: 4881

The contention that many of the symptoms alleviated by CCSVI treatment are not quantifiable is also interesting, and of course somewhat problematic. While fatigue might not be quantifiable, certainly cognitive functioning is, if pre-and post-neuropsych testing could be done on potential CCSVI treat...
by codefellow
Mon Jul 04, 2011 8:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI why is it dangerous?
Replies: 17
Views: 2532

For me the case in favor of getting the procedure was that I might feel better and be better. I have indeed gotten that. Right now my best advice is to pick your doctor wisely, one who has picked his treatment methods wisely, to minimize the complications. And if I might jump in here, even if you h...
by codefellow
Sat Jul 02, 2011 12:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Autoimmune The Real Hoax: Dr. Hubbard
Replies: 14
Views: 2256

I think Dr. Zamboni does not have the neurological knowledge to address whether MS is autoimmune or not, so he defers to the former body of knowledge on that one, and talks about how CCSVI can dovetail right in with what is already known about MS. (There was always some unknown way in which the blo...