This Is MS Multiple Sclerosis Knowledge & Support Community

Had ben on betaferon for about 4 yrs, switched to Avonex after two relapses, then had two bad relapses within three months. Am after my 3rd infusion, all 14 in the group have not had any hospitalisations since starting,so am hopeful. Got eye/ear/throat infections last week, was feeling a bit flu-ey ...

will be having my third this sunday. People bring in gameboys etc, but generally we all chat!
I've had no side effects like I used to get from the interferon. I did however get some infections this week, ie ear/throat/eye. I presume they are both interlinked. Still, beats relapses!

Had my second infusion on sunday morning. After the first one I was wiped out, muscle and joint pain that had gone away came back with a vegenace. The second one has been easier -and I drove a roundtrip of 6 hours on monday, which I haven't done since my last relapse in Nov so perhaps things are loo...

don't know what to say except am thinking of you , so sorry.

re claustrophobia and MRI, as someone has already said, close your eyes before you go in and keep them closed is def the way to go, I get my steroids/tysabri through canulas, not half as sqeamish when they are in my upper arm, back of hand ..ewwww.. would both be really upsetting for you?

My mother(age 87) always says, "clean dirt is no poison" and " clean enough to be healthy, dirty enough to be happy"

yes, there may be some things you can no longer do, but there are plenty you can, try and focus on what you can do. (Easier said than done)

Thanks from me too!

I take omega oils (Udos) and a muti-vitamin, but nothing else. Should I be taking other things?

I am on the max dose of neurontin, 900 x 3 times a day, without it my life would be rough. I get burning pain in both my legs, pins and needles and a feeling liking the crinkly sensation of scunching cotton wool. I also take one 25 mg of amiltriptyline at night, this helps me sleep and reduces the &...

Had my first infusion last sunday, was absolutely wiped out the next day ,hot and cold ,v tired and muscles sore all over. Hope this will not be a regular occurance, as I had to miss work on the Monday.

I never leave home without my chillow,as my temperature
fluctuates a lot at night.
http://www.chillow.com/chillow.html

it. I think one of the biggest problems with the drug to date is that the long term effectiveness and risks simply aren't known at this time. Harry that's my biggest fear to be honest, I have a lot of trust in my neurologist and both she and I feel this is the best option open to me currently..but...

soles of both feet feel like they are badly sunburnt, all the time, gabapentin helps tone it down. Left side muscles all tight (the "ms hug" ) amiltriptilne helps. Legs muscles get very very sore by the end of the day, like I'd been out on the horse for hours(I wish!!) Scalp-of all places,...

thanks for that, Dreddk,it just seems to be suddenly creeping up, had it in my head it was "ages"away.