Search found 60 matches

by lionheart
Thu Jan 28, 2010 11:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Interferons
Replies: 8
Views: 2790

CCSVI and Interferons

Hi, all! I am sorry if the topic has been discussed already, searched but couldn't find any reference.. I am interested to know what happens if we are on Intereferon treatment? Are we still qualified for the Liberation procedure? If yes, what afterwards? Do we stop or continue? Because if we are bal...
by lionheart
Thu Jan 28, 2010 11:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cheer : low number of CCSVI diagnoses..... !!??
Replies: 64
Views: 13326

One thing is clear, there is a lot more to go! But the good point is that almost all who have undergone the liberation procedure are feeling better. And that the issue has been filed for clinical trials (it's been, am I right). I really hope this will be the breakthrough we all have been waiting for...
by lionheart
Thu Jan 28, 2010 7:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cheer : low number of CCSVI diagnoses..... !!??
Replies: 64
Views: 13326

Hi, Zeureka! Did you happen to ask the doctor/s why with some people those findings are not found :) ? What about them? Are they considered not to have MS for some reason? Aren't you all interested? It seems somehow inconsistent to me. Some have it, some don't, but all of them have MS... The explana...
by lionheart
Thu Jan 28, 2010 4:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cheer : low number of CCSVI diagnoses..... !!??
Replies: 64
Views: 13326

But doesn't the lack of this find in ALL ms patients, lead you to doubt it... Maybe some of the members here who are better acquainted or have undergone the procedure or have just talked to those drs may answer - why doesn't the venous problem go for ALL? What about those who don't have it? Don't th...
by lionheart
Thu Jan 28, 2010 1:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cheer : low number of CCSVI diagnoses..... !!??
Replies: 64
Views: 13326

Hi! I don't want to sound pessimistic or anth, but would second Lmarino's opinion... The problem is that nth's been proven yet, and years would pass before it is. I truly admire Cheer for her enthusiasm, her dedication, for sharing and evth she's been doing for her husband and for us!!! But as far a...
by lionheart
Wed Aug 26, 2009 1:27 am
Forum: Diet
Topic: Gluten Free Diets
Replies: 14
Views: 6003

Hi all! I haven't been around for a while, but can say that have made some changes in my diet, smth unthinkable before. I didn't believe in the theory that eating habits actually affect illness. Now I do. Not that I have any specific reasons to, but has just changed the way I used to think. Well, it...
by lionheart
Fri Jun 12, 2009 6:40 am
Forum: General Discussion
Topic: My daughter
Replies: 54
Views: 12890

Hi Chris, i am new to this forum and am not acquainted with your story, but from what I've been reading here : It's great!!! I love hearing such stories! They give me so much hope and make me feel so good! Let you and Suzi be healthy for many years to come! I have a question - perhaps I don't unders...
by lionheart
Wed Jun 10, 2009 10:22 pm
Forum: General Discussion
Topic: My Update: Over a Year Now...
Replies: 5
Views: 2432

Hi, Liquidskin! I have heard that the beneficial effect of interf. continue for some time after stopping it, anyway I really hope you'll be fine for much, much longer than 7-8 months. I hate the drug myself and have been thinking lately whether stopping it would cause any big damage, as these drugs ...
by lionheart
Fri May 22, 2009 3:03 am
Forum: General Discussion
Topic: Do you really think there will be a cure?
Replies: 53
Views: 11702

Hi all! How do you feel about the theory that MS is all business and a cure or way to stop it has been found some long time ago, but there's no interest to disclose it, as many and powerful pharmaceutical companies would lose billions as well as hundreds of research institues would lose funding. The...
by lionheart
Wed Apr 01, 2009 7:14 am
Forum: General Discussion
Topic: Hughes Syndrome mimics MS ...
Replies: 3
Views: 2800

Yeah, but how about MRI and lesions? I'm afraid that if you have relevant symptoms plus lesions on the MRI....it is MS and nth can change it. Alas.
by lionheart
Sat Feb 28, 2009 11:41 am
Forum: General Discussion
Topic: Natural History
Replies: 44
Views: 6512

Hi! I have a question for Sandy and Sarah: What was your regimen, your diet during those 20 years when you experienced no deterioration? And were you free of absolutely any symptoms, even an itching here and there, were you feeling like absolutely healthy persons? And then what? all of a sudden with...
by lionheart
Wed Feb 25, 2009 2:01 am
Forum: General Discussion
Topic: Cure in our lifetime?
Replies: 69
Views: 10163

Guys, you are terrific! I feel better only by reading your posts. Thank you. And you are soo knowledgeable about evth related to ms..well, I also read stuff, but obviously am way behind. I believe that in the first place finding drugs for neuroprotection is very important and feasible and the sooner...
by lionheart
Tue Feb 24, 2009 9:00 am
Forum: Regimens
Topic: My Regimen (any tweaks?)
Replies: 23
Views: 8094

The second opinion isn't to prove the diagnosis, as mine is definitely ms, my complaints were typical, but just to find a professional opinion of a doctor with reputation on my current treatment. I read the article you gave link to, Cheer, thanks for it and i must agree that perhaps there are people...
by lionheart
Tue Feb 24, 2009 8:45 am
Forum: Regimens
Topic: My Regimen (any tweaks?)
Replies: 23
Views: 8094

Thank you for clarifying, Cheer. But I am thinking - in order to go to a neuro this means you have some neurological problems, either a double vision, or numbness, or anth else, (hence you meat some McDonald criteria). Not that you haven't had any complaints (relapses of a kind) but just lesions...H...
by lionheart
Tue Feb 24, 2009 2:50 am
Forum: Regimens
Topic: My Regimen (any tweaks?)
Replies: 23
Views: 8094

Cheer, What do you mean by 'there's no certaninty with MS', do you mean that an MRI isn't enough evidence that you DO have MS? That you may have lesions, etc. plus some minor problems (not disability) and NOT have MS? Take CRAB and not have ms? Forgive me, I don't really believe this, I wish it was ...

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