Search found 360 matches

by Needled
4 years ago
Forum: Copaxone
Topic: Generics, 40 mg. Copaxone and Teva
Replies: 27
Views: 11681

Re: Generics, 40 mg. Copaxone and Teva

I ordered my 20 mg Copaxone thru Aetna Tuesday, received it yesterday and didn't have any problems. The nurse did call back and ask if I was interested in the 40 mg. dose. I said no I want to keep doing what I'm doing since it seems to be working and I don't want to change anything. I guess I'll see...
by Needled
4 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1539071

Re: DrSclafani answers some questions

See what happens with a numb hand when I type... Anyway, I didn't feel as well after last winter. The ultrasound showed blockages last year but now I feel better. My question is -- Have there been any improvements to the ultrasound diagnostics? Are you seeing a better correlation between the ultraso...
by Needled
4 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1539071

Re: DrSclafani answers some questions

Hi Dr. S, I thought I'd add my update and I also have question. You found and treated a web in my RIJV in February 2010. The procedure was a success and benefits have held for the most part. My feet are now warm, hands are warmer, MS hug is gone, my back pain has improved, and most important my gait...
by Needled
5 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sclafani's CCSVI Case Studies
Replies: 2
Views: 8491

Re: Dr. Sclafani's CCSVI Case Studies

Thanks so much Dr. S and NHE and Cece. What a great idea. This is an amazing collection of works. Each case is so different and brings something new to the table. I know nothing about publishing, but isn't there some way to bring this collecion to the attention of a wider audience? You would think t...
by Needled
5 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1539071

Re: DrSclafani answers some questions

Dr. S,
Are you still surprised at the types and variety of problems you're finding, 3 1/2 years after performing your first ccsvi procedure?
Cheryle
by Needled
6 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1539071

Re: DrSclafani answers some questions

That was one of the best case studies we've been shown. Multiple images from multiple procedures. In Spring 2010 she became the second patient of an early adopter of interventional treatment of ccssvi It doesn't seem good to be among a doctor's first patients. Learning curve. actually it is not goo...
by Needled
6 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Two Year Follow-Up with Dr. Sclafani
Replies: 6
Views: 1053

Re: My Two Year Follow-Up with Dr. Sclafani

Hi Thekla, Thank you. I’m happy to be an instigator, but there were three of us – BestAdMom, Javaneen and me. It was a combined effort. We each emailed the doctors on a list mostly created and maintained by BestAd. And Dr. S. responded to BestAd’s email, so she’s should get the recognition. Along wi...
by Needled
6 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Two Year Follow-Up with Dr. Sclafani
Replies: 6
Views: 1053

Re: My Two Year Follow-Up with Dr. Sclafani

Thanks Cece. I should have mentioned that as part of Dr. Sclafani's scheduled protocol, I also had a Doppler check-up in August 2011, three months after the second procedure. The findings were the same as last week. Both veins patent, with some reflux but in light of how well I was feeling, there wa...
by Needled
6 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Two Year Follow-Up with Dr. Sclafani
Replies: 6
Views: 1053

My Two Year Follow-Up with Dr. Sclafani

So I thought I'd just share a success story -- 2 years and counting, fingers crossed. I was originally treated by Dr. Sclafani on February 24, 2010. Dr. S. found a large collateral vein in my RIJV, which was the result of a horizontal septum that almost totally blocked blood flow. The septum was bal...
by Needled
6 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1539071

Re: DrSclafani answers some questions

So happy to hear you're doing better. Rest up and try to take it easy.
Cheryle
by Needled
7 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 22339

OK, so who's going to be the first one to post about what's going on?
We need a fix here. Somebody help us and get typing. I guess you're all busy learning so much and having a great time meeting everyone...
Soooo wish I was there.
by Needled
7 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 114584

I'll be thinking of you tomorrow Cece. Best wishes and good luck for a smooth and successful procedure.
by Needled
7 years ago
Forum: General Discussion
Topic: copaxone lawsuit
Replies: 11
Views: 4219

Thanks Renee. I'll look also and post the link if I find it.
I don't know much about patents but I was assuming Copaxones new double-dose formulation 3 times a week (if it's approved) would extend their patent since it's a new formulation?
by Needled
7 years ago
Forum: General Discussion
Topic: copaxone lawsuit
Replies: 11
Views: 4219

Hi Renee, Would you happen to have a link to that study from last year's meeting? I missed that. I decided, on my own, to go every other day June 25, 2010. Then I went to three days a week this past March. It wasn't the cost so much as bad lipoatrophy and at some point I was going to run out of inje...
by Needled
7 years ago
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1539071

Hi Doc, Was just reading NotJohnson's Brooklyn Bound post, and NormB said his lower back pain improved after the procedure. I noticed my lower back pain dramatically decreased -- I hate to jinx it and say disappeared -- the day after my May 6 procedure. My back issues started with the onset of my di...