I was diagnosed with Progressive MS , 14 years a go .
since then , I got worse and worse slowly until 4 years back
all sudden 4 years a go my MS became very aggressive , lost my mobility in matter of 2 years and developed many more symptoms over last 4 years
brave
Search found 61 matches
- Sun Apr 10, 2011 12:39 am
- Forum: General Discussion
- Topic: For those who are PPMS/SPMS (poll)
- Replies: 11
- Views: 3029
- Thu Mar 31, 2011 9:09 am
- Forum: Low Dose Naltrexone
- Topic: seeking recommendation
- Replies: 1
- Views: 2370
seeking recommendation
I do have prescription for LDN and have taken it last 3 months but my compound pharmacy charging me $60 for one month supply (3 mg)
do you know of any Pharmacy who can supply the prescription for less and ship it to me?
Thanks in advance
do you know of any Pharmacy who can supply the prescription for less and ship it to me?
Thanks in advance
- Sun Mar 13, 2011 11:23 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: [someone]
- Replies: 22
- Views: 4334
I personally believe Cece is knowledgeable and spend good amount of time researching . She is very care and tries to share her knowledge with other MSers BUT is every individual's responsibility to judge for yourself. If you disagree with her opinion just don't buy her opinion and move on , let othe...
- Wed Feb 16, 2011 7:44 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: success of ccsvi
- Replies: 23
- Views: 6136
I have been trying to find common base for successful CCSVI or unsuccessful procedure. here is my understanding, seems new diagnosed patients have a higher chance benefiting from CCSVI. I haven't seen any major improvement reported by MSer who have had MS for 5-6 years or longer or maybe at advance ...
- Sat Feb 12, 2011 12:52 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2371017
Hello Dr Sclafani I had my CCSVI procedure done at Albany on 11/24/10 looking at my ultrasound result (before procedure), I see that I met criteria #1 and result was negative for other 4 tests criteria #1: Gray-Scale abnormalities of the proximal internal jugular veins. This is positive when valve a...
- Wed Feb 09, 2011 1:46 pm
- Forum: General Discussion
- Topic: Have you been denied coverage in California?
- Replies: 8
- Views: 2083
- Tue Feb 08, 2011 11:12 pm
- Forum: General Discussion
- Topic: Sleep Apnea
- Replies: 14
- Views: 3785
- Mon Feb 07, 2011 7:50 pm
- Forum: General Discussion
- Topic: Stopping Tysabri~ Tested Positive for JC Virus
- Replies: 4
- Views: 3104
Hi T19 I just saw my Neurologist today. I was on Tysabri for one year then was on break for 4 months . now he wants me to re-start taking Tysabri and ordered JC test for me. I asked him many questions about JC test and how the result might impact his decision on putting me on Tysabri? here is what h...
- Sat Feb 05, 2011 6:28 pm
- Forum: General Discussion
- Topic: primary progressive ms
- Replies: 3
- Views: 2214
welcome Sandrab to TIMS I have had PPMS for 12+ years and have been on Avonex(5 years),Copaxon (3 years),Rebif (5 months) , Avonex again (1 year) and Tysabri (1 year), . None of them helped to slow down my progress . I fainted in office while I was on Rebif for 3 months. Having said that, we know th...
- Thu Jan 27, 2011 4:43 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 160903
- Tue Jan 11, 2011 9:26 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Question for ladies ONLY who have had CCSVI
- Replies: 18
- Views: 4851
Thanks for all replies again, I saw Dr yesterday and he stopped my Aspirin even though I have a swollen foot. it's strange that some days my I see just spots and like getting close to finish line but all sudden picks up heavily again. after CCSVI, I have been on Aspirin 325 mg daily until yesterday....
- Sun Jan 09, 2011 8:44 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Question for ladies ONLY who have had CCSVI
- Replies: 18
- Views: 4851
- Sat Jan 08, 2011 11:46 am
- Forum: General Discussion
- Topic: mylien repair
- Replies: 4
- Views: 2147
- Sat Jan 08, 2011 11:29 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Question for ladies ONLY who have had CCSVI
- Replies: 18
- Views: 4851
Question for ladies ONLY who have had CCSVI
Hello Ladies
I had CCSVI done 45 days a go, my first period after procedure, has been extremely heavy and has lasted 15 days.
This worries me and makes me very weak. Have you had any issue with your period after CCSVI?
Thanks,
brave
I had CCSVI done 45 days a go, my first period after procedure, has been extremely heavy and has lasted 15 days.
This worries me and makes me very weak. Have you had any issue with your period after CCSVI?
Thanks,
brave
- Tue Jan 04, 2011 9:16 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: swollen foot after CCSVI?
- Replies: 7
- Views: 2765
Thank you all for your concern and pushing me to see a Dr. today I saw a cardiologist and he insisted there should be a clot but so far ultrasound from legs and x-ray from lung hasn't shown any clot . I'm waiting for lab test result to make sure no failure in kidney More tests are scheduled for Thur...