Search found 10 matches
- Thu Sep 05, 2013 9:19 am
- Forum: General Discussion
- Topic: Lunch suggestions?
- Replies: 11
- Views: 1566
Re: Lunch suggestions?
Sardines. Straight out of the tin with flax seed crackers...or resting on a bed of spinach with fresh lemon squeezed over. Quick, easy.
- Mon Aug 27, 2012 5:02 pm
- Forum: General Discussion
- Topic: Doctor refuses ALL medications for over a year now?
- Replies: 6
- Views: 1899
Re: Doctor refuses ALL medications for over a year now?
What side of town are you on? I realize it's several months later, but have you found a Dr. yet? I'm not sure about what insurance they take, but my neurologist is Jeannette Wendt and I'm happy there. http://nwneuro.com/Physicians/ I've heard good things about the Barrow neurological center up in Ph...
- Mon Aug 27, 2012 4:39 pm
- Forum: Daily Life
- Topic: 25 (had to drop out of college)...what to do now?
- Replies: 2
- Views: 2391
Re: 25 (had to drop out of college)...what to do now?
Maybe redefine what you want, and address the physical and emotional feelings you're having through various meds, supplements, and exercise regimens. There is a lot of information on that within these forums. Taking care of a house is overrated, I can't help ya on that front! :) I'm the only one in ...
- Mon Aug 27, 2012 2:59 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: pseudo relapses after Campath
- Replies: 8
- Views: 8777
Re: pseudo relapses after Campath
My husband and I were wondering how they'll address protocol too. Full patient compliance is a very difficult thing to achieve. At my site a couple of people have been kicked out of the study because they stopped coming in. Personally, I'm getting sick of the monthly draws, and really hated the chan...
- Mon Feb 21, 2011 4:13 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: just came from my routine 3month campath visit
- Replies: 4
- Views: 3759
Extension
Hi, wow, there's rarely any activity in the Campath discussions! I never quite know how to feel about that. I just signed the extension too. It's not necessarily yearly infusions though. For sure it's continuing the same tests; the blood, urine, neuro & physical exams, quality of life questionna...
- Wed Jun 09, 2010 8:54 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Is Campath helping you?
- Replies: 8
- Views: 4606
I was kind of rambling there, sorry. In case I wasn't clear I've been in the trial for 15 1/2 months or so. In all that time I've had one very minor episode. In fact I wasn't entirely certain it was one until they poked me with a pin and declared it so. The Year prior to that I had an episode every ...
- Wed Jun 09, 2010 8:01 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Is Campath helping you?
- Replies: 8
- Views: 4606
Hi! I have nothing to compare Campath usage to. I'm in the branch for the newly diagnosed and had my second year infusion not too far back. After the first infusion in February 2009 I felt not so great by the end of the week, but that only lasted a few days. Then I was sluggish for a few weeks, not ...
- Sat Mar 14, 2009 11:35 am
- Forum: Introductions
- Topic: New
- Replies: 5
- Views: 1837
- Sat Mar 14, 2009 10:28 am
- Forum: Introductions
- Topic: New
- Replies: 5
- Views: 1837
New
Can I just say that MS sucks?! Got my official diagnosis January 6th, this year. I was relieved then shocked...upset, mad, and not so sure what to think now. Maybe I'm floating into the realm of acceptance?! Do you ever really accept it? I've only had 2 real episodes. The first was in the spring jus...
- Sun Mar 01, 2009 8:48 am
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Another alemtuzamab labrat
- Replies: 84
- Views: 25833
Hi guys. I just finished on Friday too. One thing to ask about is Acyclovir, it's an anti-viral. On Day 1 my neuro said there's been an amendment to the protocol and while it's not effective yet she was leaving it up to me if I wanted it. We both thought it would be beneficial and one of the study f...